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Journal of Asthma Volume 50, 2013 - Issue 8
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Patient Advocacy

Feasibility, acceptability and preliminary effectiveness of patient advocates for improving asthma outcomes in adults

Andrea J. ApterSection of Allergy & Immunology, Division of Pulmonary, Allergy, & Critical Care Medicine;Department of Medicine;University of Pennsylvania PhiladelphiaPACorrespondence[email protected]
, MD, MSc,
Fei WanUniversity of Pennsylvania PhiladelphiaPA;Department of Biostatistics and Epidemiology
, MS,
Susan ReisineUniversity of Connecticut Health Center FarmingtonCT
, PhD,
Daniel K. BogenUniversity of Pennsylvania PhiladelphiaPA;Department of Bioengineering
, MD, PhD,
Cynthia RandJohns Hopkins University BaltimoreMD
, PhD,
Bruce BenderNational Jewish Health DenverCO
, PhD,
Ian M. BennettUniversity of Pennsylvania PhiladelphiaPA
, MD, PhD,
Rodalyn GonzalezSection of Allergy & Immunology, Division of Pulmonary, Allergy, & Critical Care Medicine;Department of Medicine;University of Pennsylvania PhiladelphiaPA
, BA,
Chantel PrioloSection of Allergy & Immunology, Division of Pulmonary, Allergy, & Critical Care Medicine;Department of Medicine;University of Pennsylvania PhiladelphiaPA
, MPH,
Seema S. SonnadChristiana Care Health System WilmingtonDE
, PhD,
Tyra Bryant-StephensChildren’s Hospital of Philadelphia PhiladelphiaPA
, MD,
Monica FergusonDepartment of Medicine;University of Pennsylvania PhiladelphiaPA
, MD,
Rhonda C. BoydChildren’s Hospital of Philadelphia PhiladelphiaPA
, PhD,
Thomas Ten HaveUniversity of Pennsylvania PhiladelphiaPA;Department of Biostatistics and Epidemiology
, PhD, MPH &
Jason RoyUniversity of Pennsylvania PhiladelphiaPA;Department of Biostatistics and Epidemiology
, PhD show all
Pages 850-860 | Received 09 Dec 2012, Accepted 03 Jun 2013, Published online: 17 Jul 2013

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Katia Mazalovic, Flore Jacoud, Alexandra L Dima, Eric Van Ganse, Maeva Nolin, Didier C, Claire Zabawa & the ASTRO-Lab group. (2018) Asthma exacerbations and socio-economic status in French adults with persistent asthma: A prospective cohort study. Journal of Asthma 55:10, pages 1043-1051.
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Articles from other publishers (23)

Andrea J. Apter, Tyra Bryant-Stephens, Xiaoyan Han, Hami Park, Anna Morgan, Heather Klusaritz, Zuleyha Cidav, Audreesh Banerjee, A. Russell Localio & Knashawn H. Morales. (2022) Clinic navigation and home visits to improve asthma care in low income adults with poorly controlled asthma: Before and during the pandemic. Contemporary Clinical Trials 118, pages 106808.
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Teerapon Dhippayom, Apinya Wateemongkollert, Kanchana Mueangfa, Haerin Im, Piyameth Dilokthornsakul & Beth Devine. (2022) Comparative Efficacy of Strategies to Support Self-Management in Patients with Asthma: A Systematic Review and Network Meta-Analysis. The Journal of Allergy and Clinical Immunology: In Practice 10:3, pages 803-814.
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Sandra E. Zaeh, Rachelle Ramsey, Bruce Bender, Kevin Hommel, Giselle Mosnaim & Cynthia Rand. (2022) The Impact of Adherence and Health Literacy on Difficult-to-Control Asthma. The Journal of Allergy and Clinical Immunology: In Practice 10:2, pages 386-394.
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Logan J. Harper, Gabrielle LoveRijuta Singh, Andre SmithDaniel A. CulverJ. Daryl Thornton. (2021) Barriers to Care among Patients with Sarcoidosis: A Qualitative Study. Annals of the American Thoracic Society 18:11, pages 1832-1838.
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Steef Redeker, Emma K. Massey, Charlotte Boonstra, Jan J. Busschbach, Reinier Timman, Harald F. H. Brulez, Daan A. A. M. J. Hollander, Luuk B. Hilbrands, Frederike Bemelman, Stefan P. Berger, Jacqueline Wetering, René M. A. den Dorpel, Margriet Dekker‐Jansen, Willem Weimar, Sohal Y. Ismail, J Bemelman, K.A.M.I. van der Pant, N. Zwiers, W. Fleur, R.Y. Espineira‐Ramirez, M. Van Milgen‐Adriaens, J. van de Wetering, W. Weimar, E.K. Massey, S.Y. Ismail, M.A.A. van Noord‐Haubrich, J.J. Busschbach, S. Redeker, D.L. Jansen, J.C. Wageveld‐Sanderson, I. van Berkel, I. Clarisse, D. Hollander, P. van de Linde, C van Dijk, A. de Rooij, M.A. van den Dorpel, E.E. Versluijs‐Rovers, G.C.A. van Dongen‐Segeren, R. Schelfhout, A.C. van Kooij, A.S. van Krieken, M.M. Koevermans, T. van der Marel, H. Brulez, L. Zwiers‐Visser, E.M. Wisse, N.C.J. Brouns, P.S. Dubbelman, B. Holling, R.M. Smulders, I. Dooper, L.B. Hilbrands, M. Lobeek, S.P.F. Hopman, J.S.F. Sanders, S.P. Berger, M.J. Crop, C.A. Brugman, H.G.K. Scholten‐Greben, J. Waijer, M.J. Kisteman, J. Van der Laan, M. Mahangoe, I. Poorterman‐Stokvis, M.A. Dekker‐Janssen, I.A.M. Hutten, J.H. Potgieter, S.J. Brok, H. Kettelerij & A.C. Boonstra. (2021) Implementation of the kidney team at home intervention: Evaluating generalizability, implementation process, and effects. Transplant International 34:11, pages 2317-2328.
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Andrea J. Apter, Luzmercy Perez, Xiaoyan Han, Grace Ndicu, Anna Localio, Hami Park, Alyssa N. Mullen, Heather Klusaritz, Marisa Rogers, Zuleyha Cidav, Tyra Bryant-Stephens, Bruce G. Bender, Susan T. Reisine & Knashawn H. Morales. (2020) Patient Advocates for Low-Income Adults with Moderate to Severe Asthma: A Randomized Clinical Trial. The Journal of Allergy and Clinical Immunology: In Practice 8:10, pages 3466-3473.e11.
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Michele Vitale, Linda Dorado, Vanita Pais, Souraya Sidani & Enza Gucciardi. (2019) Food Insecurity Screening Among Families of Children With Diabetes. Diabetes Spectrum 32:4, pages 338-348.
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Andrea J. Apter, A. Russell Localio, Knashawn H. Morales, Xiaoyan Han, Luzmercy Perez, Alyssa N. Mullen, Marisa Rogers, Heather Klusaritz, John T. Howell, Maryori N. Canales & Tyra Bryant-Stephens. (2019) Home visits for uncontrolled asthma among low-income adults with patient portal access. Journal of Allergy and Clinical Immunology 144:3, pages 846-853.e11.
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Valerie G. Press & Heather Hoch. (2019) The Search for Culturally Tailored Inhaled Corticosteroid Adherence Interventions Continues: A Dearth of Effective Strategies for African Americans with Asthma. The Journal of Allergy and Clinical Immunology: In Practice 7:4, pages 1194-1196.
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Isaretta L. Riley, Beverly Murphy, Zayd Razouki, Jerry A. Krishnan, Andrea Apter, Sande Okelo, Monica Kraft, Cindy Feltner, Loretta G. Que & L. Ebony Boulware. (2019) A Systematic Review of Patient- and Family-Level Inhaled Corticosteroid Adherence Interventions in Black/African Americans. The Journal of Allergy and Clinical Immunology: In Practice 7:4, pages 1184-1193.e3.
Crossref
Amy Korwin, Heather Black, Luzmercy Perez, Knashawn H. Morales, Heather Klusaritz, Xiaoyan Han, Jingru Huang, Marisa Rogers, Grace Ndicu & Andrea J. Apter. (2017) Exploring Patient Engagement: A Qualitative Analysis of Low-Income Urban Participants in Asthma Research. The Journal of Allergy and Clinical Immunology: In Practice 5:6, pages 1625-1631.e2.
Crossref
Andrea J. Apter, Knashawn H. Morales, Xiaoyan Han, Luzmercy Perez, Jingru Huang, Grace Ndicu, Anna Localio, Alyssa Nardi, Heather Klusaritz, Marisa Rogers, Alexis Phillips, Zuleyha Cidav & J. Sanford Schwartz. (2017) A patient advocate to facilitate access and improve communication, care, and outcomes in adults with moderate or severe asthma: Rationale, design, and methods of a randomized controlled trial. Contemporary Clinical Trials 56, pages 34-45.
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Rebecca Normansell, Kayleigh M Kew & Elizabeth Stovold. (2017) Interventions to improve adherence to inhaled steroids for asthma. Cochrane Database of Systematic Reviews 2017:4.
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Marilyn M. Schapira, Chantel Mozal, Frances S. Shofer, Rodalyn Gonzalez & Andrea J. Apter. (2017) Alignment of Patient Health Numeracy with Asthma Care Instructions in the Patient Portal. HLRP: Health Literacy Research and Practice 1:1.
Crossref
Tyra Bryant-Stephens, Shakira Reed-Wells, Maryori Canales, Luzmercy Perez, Marisa Rogers, A. Russell Localio & Andrea J. Apter. (2016) Home visits are needed to address asthma health disparities in adults. Journal of Allergy and Clinical Immunology 138:6, pages 1526-1530.
Crossref
Luzmercy Perez, Knashawn H. Morales, Heather Klusaritz, Xiaoyan Han, Jingru Huang, Marisa Rogers, Ian M. Bennett, Cynthia S. Rand, Grace Ndicu & Andrea J. Apter. (2016) A health care navigation tool assesses asthma self-management and health literacy. Journal of Allergy and Clinical Immunology 138:6, pages 1593-1599.e3.
Crossref
Bruno F. SunguyaMurallitharan MunisamySathirakorn PongpanichJunko YasuokaMasamine Jimba. (2016) Ability of HIV Advocacy to Modify Behavioral Norms and Treatment Impact: A Systematic Review. American Journal of Public Health 106:8, pages e1-e8.
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Amanda R. McCullough, Crístín Ryan, Christopher Macindoe, Nathan Yii, Judy M. Bradley, Brenda O’Neill, J. Stuart Elborn & Carmel M. Hughes. (2016) Behavior change theory, content and delivery of interventions to enhance adherence in chronic respiratory disease: A systematic review. Respiratory Medicine 116, pages 78-84.
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Dimitrios KikidisVotis KonstantinosDimitrios TzovarasOmar S. Usmani. (2016) The Digital Asthma Patient: The History and Future of Inhaler Based Health Monitoring Devices. Journal of Aerosol Medicine and Pulmonary Drug Delivery 29:3, pages 219-232.
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Michelle M. Cloutier. (2016) Asthma management programs for primary care providers. Current Opinion in Allergy & Clinical Immunology 16:2, pages 142-147.
Crossref
Bruce G. Bender. 2016. Pediatric Allergy: Principles and Practice. Pediatric Allergy: Principles and Practice 354 359.e2 .
Andrea J. Apter, Tyra Bryant-Stephens, Knashawn H. Morales, Fei Wan, Sharmaine Hardy, Shakira Reed-Wells, Maria Dominguez, Rodalyn Gonzalez, NaDea Mak, Alyssa Nardi, Hami Park, John T. Howell & Russell Localio. (2015) Using IT to improve access, communication, and asthma in African American and Hispanic/Latino Adults: Rationale, design, and methods of a randomized controlled trial. Contemporary Clinical Trials 44, pages 119-128.
Crossref
Bruce G. Bender. (2014) Nonadherence in chronic obstructive pulmonary disease patients. Current Opinion in Pulmonary Medicine 20:2, pages 132-137.
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