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Acta Oncologica Volume 50, 2011 - Issue 5
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Research Article

Validation study of an end-of-life questionnaire from the Swedish Register of Palliative Care

Lisa Martinsson Institution of Radiation Sciences, Umeå University, Umeå, SwedenCorrespondence[email protected] [email protected]
,
Per-Anders Heedman Palliative Education and Research Centre in the County of Östergötland, Sweden
,
Staffan Lundström Department of Palliative Medicine, Stockholms Sjukhem Foundation, Stockholm; Department of Oncology-Pathology, Karolinska Institute, Stockholm, Sweden
,
Greger Fransson Department of Biomedical Engineering, Medical Informatics, Linköping University, Sweden
&
Bertil Axelsson Institution of Radiation Sciences, Umeå University, Umeå, Sweden; FoU unit, Östersund Hospital, Östersund, Sweden
Pages 642-647 | Received 26 Aug 2010, Accepted 05 Jan 2011, Published online: 10 Mar 2011

Citations (31)

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K. Lindemann, L. Martinsson, S. Kaasa & D. Lindquist. (2020) Elderly gynaecological cancer patients at risk for poor end of life care: a population-based study from the Swedish Register of Palliative Care . Acta Oncologica 59:6, pages 636-643.
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Sixten Elmstedt, Hanna Mogensen, Dan-Erik Hallmans, Björn Tavelin, Staffan Lundström & Magnus Lindskog. (2019) Cancer patients hospitalised in the last week of life risk insufficient care quality – a population-based study from the Swedish Register of Palliative Care. Acta Oncologica 58:4, pages 432-438.
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Martin Nilsson, Björn Tavelin & Bertil Axelsson. (2014) A study of patients not registered in the Swedish cancer register but reported to the Swedish register of palliative care 2009 as deceased due to cancer. Acta Oncologica 53:3, pages 414-419.
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Articles from other publishers (28)

Lisa Martinsson, Margareta Brännström & Sofia Andersson. (2023) Symptom assessment in the dying: family members versus healthcare professionals. BMJ Supportive & Palliative Care, pages spcare-2023-004382.
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Berivan Yildiz, Simon Allan, Misa Bakan, Pilar Barnestein-Fonseca, Michael Berger, Mark Boughey, Andri Christen, Gustavo G De Simone, Martina Egloff, John Ellershaw, Eline E C M Elsten, Steffen Eychmüller, Claudia Fischer, Carl Johan Fürst, Eric C T Geijteman, Gabriel Goldraij, Anne Goossensen, Svandis Iris Halfdanardottir, Dagny Faksvåg Haugen, Christel Hedman, Tanja Hoppe, Rosemary Hughes, Grethe Skorpen Iversen, Melanie Joshi, Hana Kodba-Ceh, Ida J Korfage, Urska Lunder, Nora Lüthi, Maria Luisa Martín-Roselló, Stephen Mason, Tamsin McGlinchey, Silvi Montilla, Birgit H Rasmussen, Inmaculada Ruiz-Torreras, Maria E C Schelin, Katrin Ruth Sigurdardottir, Valgerdur Sigurdardottir, Judit Simon, Ruthmarijke Smeding, Kjersti Solvåg, Julia Strupp, Vilma Tripodoro, Hugo M van der Kuy, Carin C D van der Rijt, Lia van Zuylen, Verónica I Veloso, Eva Vibora-Martin, Raymond Voltz, Sofia C Zambrano & Agnes van der Heide. (2022) Live well, die well – an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study. BMJ Open 12:8, pages e057229.
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Lisa Martinsson, Jonas Bergström, Christel Hedman, Peter Strang & Staffan Lundström. (2021) Symptoms, symptom relief and support in COVID-19 patients dying in hospitals during the first pandemic wave. BMC Palliative Care 20:1.
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Lisa Martinsson, Peter Strang, Jonas Bergström & Staffan Lundström. (2021) Dying from COVID-19 in nursing homes-sex differences in symptom occurrence. BMC Geriatrics 21:1.
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Maria E. Carlsson & Katarina Hjelm. (2021) Equal palliative care for foreign-born patients: A national quality register study. Palliative and Supportive Care 19:6, pages 656-663.
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Sofia Andersson, Lisa Martinsson, Carl Johan Fürst & Margareta Brännström. (2021) End-of-life discussions in residential care homes improves symptom control: a national register study. BMJ Supportive & Palliative Care, pages bmjspcare-2021-002983.
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Kristofer Årestedt, Margareta Brännström, Lorraine S. Evangelista, Anna Strömberg & Anette Alvariza. (2021) Palliative key aspects are of importance for symptom relief during the last week of life in patients with heart failure. ESC Heart Failure 8:3, pages 2202-2209.
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Eva Eljas Ahlberg & Bertil Axelsson. (2020) End‐of‐life care in amyotrophic lateral sclerosis: A comparative registry study. Acta Neurologica Scandinavica 143:5, pages 481-488.
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Lisa Martinsson, Peter Strang, Jonas Bergström & Staffan Lundström. (2021) Were Clinical Routines for Good End-of-Life Care Maintained in Hospitals and Nursing Homes During the First Three Months of the Outbreak of COVID-19? A National Register Study. Journal of Pain and Symptom Management 61:1, pages e11-e19.
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Per FürstStaffan LundströmPål KlepstadPeter Strang. (2020) The Use of Low-Dose Methadone as Add-On to Regular Opioid Therapy in Cancer-Related Pain at End of Life: A National Swedish Survey in Specialized Palliative Care. Journal of Palliative Medicine 23:2, pages 226-232.
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Gerd Ahlström, Per Nilsen, Eva Benzein, Lina Behm, Birgitta Wallerstedt, Magnus Persson & Anna Sandgren. (2018) Implementation of knowledge-based palliative care in nursing homes and pre-post post evaluation by cross-over design: a study protocol. BMC Palliative Care 17:1.
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Jinfeng DingClaire E. JohnsonAngus Cook. (2018) How We Should Assess the Delivery of End-of-Life Care in General Practice: A Systematic Review. Journal of Palliative Medicine 21:12, pages 1790-1805.
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Lisa Martinsson, Staffan Lundström & Johan Sundelöf. (2018) Quality of end-of-life care in patients with dementia compared to patients with cancer: A population-based register study. PLOS ONE 13:7, pages e0201051.
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Sofia Andersson, Kristofer Årestedt, Olav Lindqvist, Carl-Johan Fürst & Margareta Brännström. (2018) Factors Associated With Symptom Relief in End-of-Life Care in Residential Care Homes: A National Register-Based Study. Journal of Pain and Symptom Management 55:5, pages 1304-1312.
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Kjell Asplund, Staffan Lundström & Birgitta Stegmayr. (2017) End of life after stroke: A nationwide study of 42,502 deaths occurring within a year after stroke. European Stroke Journal 3:1, pages 74-81.
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Kristofer ÅrestedtAnette AlvarizaKurt BomanJoakim ÖhlénIda GoliathCecilia HåkansonCarl Johan FürstMargareta Brännström. (2018) Symptom Relief and Palliative Care during the Last Week of Life among Patients with Heart Failure: A National Register Study. Journal of Palliative Medicine 21:3, pages 361-367.
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Lena Axelsson, Anette Alvariza, Jenny Lindberg, Joakim Öhlén, Cecilia Håkanson, Helene Reimertz, Carl-Johan Fürst & Kristofer Årestedt. (2018) Unmet Palliative Care Needs Among Patients With End-Stage Kidney Disease: A National Registry Study About the Last Week of Life. Journal of Pain and Symptom Management 55:2, pages 236-244.
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Lisa Martinsson, Per-Anders Heedman, Staffan Lundström & Bertil Axelsson. (2017) Improved data validity in the Swedish Register of Palliative Care. PLOS ONE 12:10, pages e0186804.
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L Martinsson, P-A Heedman, M Eriksson, B Tavelin & B Axelsson. (2016) Increasing the number of patients receiving information about transition to end-of-life care: the effect of a half-day physician and nurse training. BMJ Supportive & Palliative Care 6:4, pages 452-458.
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Zainab Ahmadi, Nicholas G Wysham, Staffan Lundström, Christer Janson, David C Currow & Magnus Ekström. (2016) End-of-life care in oxygen-dependent ILD compared with lung cancer: a national population-based study. Thorax 71:6, pages 510-516.
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Ingela Henoch, Ida Carlander, Maja Holm, Inger James, Elisabeth Kenne Sarenmalm, Carina Lundh Hagelin, Susanne Lind, Anna Sandgren & Joakim Öhlén. (2016) Palliative Care Research - A Systematic Review of foci, designs and methods of research conducted in Sweden between 2007 and 2012. Scandinavian Journal of Caring Sciences 30:1, pages 5-25.
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Hel?ne Eriksson, Anna Milberg, Katarina Hjelm & Maria Friedrichsen. (2016) End of Life Care for Patients Dying of Stroke: A Comparative Registry Study of Stroke and Cancer. PLOS ONE 11:2, pages e0147694.
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Zainab Ahmadi, Staffan Lundström, Christer Janson, Peter Strang, Margareta Emtner, David C. Currow & Magnus Ekström. (2015) End-of-life care in oxygen-dependent COPD and cancer: a national population-based study. European Respiratory Journal 46:4, pages 1190-1193.
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Magnus Lindskog, Bj?rn Tavelin & Staffan Lundstr?m. (2015) Old age as risk indicator for poor end-of-life care quality ? A population-based study of cancer deaths from the Swedish Register of Palliative Care. European Journal of Cancer 51:10, pages 1331-1339.
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Marie-Louise EkeströmMariann OlssonSara RunesdotterCarl Johan Fürst. (2014) Family members' experiences of the impact of the LCP in a palliative care unit and a geriatric ward in Sweden. International Journal of Palliative Nursing 20:8, pages 381-386.
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Margareta Brännström, Lena Hägglund, Carl Johan Fürst & Kurt Boman. (2011) Unequal care for dying patients in Sweden: a comparative registry study of deaths from heart disease and cancer. European Journal of Cardiovascular Nursing 11:4, pages 454-459.
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. (2012) Current World Literature. Current Opinion in Supportive & Palliative Care 6:3, pages 402-416.
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ANNA-KARIN LINDBLOM, SIV BÄCK-PETTERSSON & INGELA BERGGREN. (2012) A quality registers impact on community nurses’ in end-of-life care - a grounded theory study. Journal of Nursing Management 20:2, pages 206-214.
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