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Research Article

An exploration of patient-reported symptoms in systemic lupus erythematosus and the relationship to health-related quality of life

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Pages 383-390 | Accepted 16 Mar 2012, Published online: 31 May 2012

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Dorcey L Applyrs, Edith M Williams, Trevor D Faith, Diane L Kamen, Elizabeth Vazques & Janine M Jurkowski. (2018) Cultural and quality-of-life considerations when administering corticosteroids as a therapeutic strategy for African American women living with systemic lupus erythematosus. Patient Preference and Adherence 12, pages 1007-1014.
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S Pettersson, E Svenungsson, J Gustafsson, S Möller, I Gunnarsson & E Welin Henriksson. (2017) A comparison of patients’ and physicians’ assessments of disease activity using the Swedish version of the Systemic Lupus Activity Questionnaire. Scandinavian Journal of Rheumatology 46:6, pages 474-483.
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Neelufar Mozaffarian, Steve Lobosco, Peng Lu, Adam Roughley & Gabriela Alperovich. (2016) Satisfaction with control of systemic lupus erythematosus and lupus nephritis: physician and patient perspectives. Patient Preference and Adherence 10, pages 2051-2061.
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S Pettersson, IE Lundberg, MH Liang, J Pouchot & E Welin Henriksson. (2015) Determination of the minimal clinically important difference for seven measures of fatigue in Swedish patients with systemic lupus erythematosus. Scandinavian Journal of Rheumatology 44:3, pages 206-210.
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Hon K Yuen & Melissa A Cunningham. (2014) Optimal management of fatigue in patients with systemic lupus erythematosus: a systematic review. Therapeutics and Clinical Risk Management 10, pages 775-786.
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Anastasiia Shumilova & Edward M. Vital. (2023) Musculoskeletal manifestations of systemic lupus erythematosus. Best Practice & Research Clinical Rheumatology, pages 101859.
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Robert D Sandler, Edward M Vital, Khaled Mahmoud, Athiveeraramapandian Prabu, Claire Riddell, Lee-Suan Teh, Christopher J Edwards & Chee-Seng Yee. (2023) Revision to the musculoskeletal domain of the BILAG-2004 index to incorporate ultrasound findings. Rheumatology.
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Mallet R Reid, Ashley N Danguecan, Isabella Colindres, Denasja Witherspoon, Tamar B Rubinstein, Cristina Drenkard, Andrea M Knight & Natoshia R Cunningham. (2023) An ecological approach to understanding and addressing health inequities of systemic lupus erythematosus. Lupus 32:5, pages 612-624.
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Katarzyna Warchoł-Biedermann, Ewa Mojs, Dorota Sikorska, Przemysław Kotyla, Grażyna Teusz & Włodzimierz Samborski. (2022) Psychological Implications to the Therapy of Systemic Lupus Erythematosus. International Journal of Environmental Research and Public Health 19:23, pages 16021.
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Amanda M Eudy, Jennifer L Rogers, Amy Corneli, Kevin McKenna, Mithu Maheswaranathan, David S Pisetsky, Lisa G Criscione-Schreiber, Jayanth Doss, Rebecca E Sadun, Kai Sun & Megan E B Clowse. (2022) Intermittent and Persistent Type 2 lupus: patient perspectives on two distinct patterns of Type 2 SLE symptoms. Lupus Science & Medicine 9:1, pages e000705.
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Emily M. McCormick, Tessa R. Englund, Rebecca J. Cleveland, Teresa A. Dickson, Crystal E. Schiller & Saira Z. Sheikh. (2022) ACT for Lupus: Pilot Feasibility and Acceptability Study of a Novel Web‐Based Acceptance and Commitment Therapy Program for Patients With Lupus . ACR Open Rheumatology 4:7, pages 574-580.
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Nathalie E. Chalhoub & Michael E. Luggen. (2022) Depression-, Pain-, and Health-Related Quality of Life in Patients with Systemic Lupus Erythematosus. International Journal of Rheumatology 2022, pages 1-8.
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Amanda M Eudy, Bryce B Reeve, Theresa Coles, Li Lin, Jennifer L Rogers, David S Pisetsky, Lisa G Criscione-Schreiber, Jayanth Doss, Rebecca Sadun, Kai Sun & Megan EB Clowse. (2022) The use of patient-reported outcome measures to classify type 1 and 2 systemic lupus erythematosus activity. Lupus 31:6, pages 697-705.
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Adam Hamdy & Anthony Leonardi. (2022) Superantigens and SARS-CoV-2. Pathogens 11:4, pages 390.
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Vibeke Strand, Sean O’Quinn, Richard A Furie, Eric F Morand, Kenneth C Kalunian, Erik G Schwetje, Gabriel Abreu & Raj Tummala. (2022) Clinical meaningfulness of a British Isles Lupus Assessment Group-based Composite Lupus Assessment response in terms of patient-reported outcomes in moderate to severe systemic lupus erythematosus: a post-hoc analysis of the phase 3 TULIP-1 and TULIP-2 trials of anifrolumab. The Lancet Rheumatology 4:3, pages e198-e207.
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Cristina Drenkard, Kirk Easley, Gaobin Bao, Charmayne Dunlop-Thomas, S Sam Lim & Teresa Brady. (2022) Cross-sectional study of the effects of self-efficacy on fatigue and pain interference in black women with systemic lupus erythematosus: the role of depression, age and education. Lupus Science & Medicine 9:1, pages e000566.
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Khaled Mahmoud, Ahmed S Zayat, Md Yuzaiful Md Yusof, Katherine Dutton, Lee Suan Teh, Chee-Seng Yee, David D’Cruz, Nora Ng, David Isenberg, Coziana Ciurtin, Philip G Conaghan, Paul Emery, Christopher J Edwards, Elizabeth M A Hensor & Edward M Vital. (2021) Ultrasound to identify systemic lupus erythematosus patients with musculoskeletal symptoms who respond best to therapy: the US Evaluation For mUsculoskeletal Lupus longitudinal multicentre study. Rheumatology 60:11, pages 5194-5204.
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Johan Law-Wan, Marc-Antoine Sparfel, Sophie Derolez, Nicolas Azzopardi, Philippe Goupille, Jacqueline Detert, Denis Mulleman & Theodora Bejan-Angoulvant. (2021) Predictors of response to TNF inhibitors in rheumatoid arthritis: an individual patient data pooled analysis of randomised controlled trials. RMD Open 7:3, pages e001882.
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Anitha Roy, Royapuram Veeraragavan Geetha, Anitha Magesh, Rajagopalan Vijayaraghavan & Veerasamy Ravichandran. (2021) Autoinjector – A smart device for emergency cum personal therapy. Saudi Pharmaceutical Journal 29:10, pages 1205-1215.
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Ming-Chi Lu & Malcolm Koo. (2021) Effects of Exercise Intervention on Health-Related Quality of Life in Patients with Systemic Lupus Erythematosus: A Systematic Review and Meta-Analysis of Controlled Trials. Healthcare 9:9, pages 1215.
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Anisur Rahman. (2021) Why Do Patients With Systemic Lupus Erythematosus Suffer Pain?. The Journal of Rheumatology 48:8, pages 1195-1197.
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Ning-Sheng Lai, Ming-Chi Lu, Hsiu-Hua Chang, Hui-Chin Lo, Chia-Wen Hsu, Kuang-Yung Huang, Chien-Hsueh Tung, Bao-Bao Hsu, Cheng-Han Wu & Malcolm Koo. (2021) A Comparison of the Correlation of Systemic Lupus Erythematosus Disease Activity Index 2000 (SLEDAI-2K) and Systemic Lupus Erythematosus Disease Activity Score (SLE-DAS) with Health-Related Quality of Life. Journal of Clinical Medicine 10:10, pages 2137.
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Alvaro Gomez, Fawz Hani Butrus, Petter Johansson, Emil Åkerström, Sofia Soukka, Sharzad Emamikia, Yvonne Enman, Susanne Pettersson & Ioannis Parodis. (2021) Impact of overweight and obesity on patient-reported health-related quality of life in systemic lupus erythematosus. Rheumatology 60:3, pages 1260-1272.
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Jennifer L. Rogers, Amanda M. Eudy, David Pisetsky, Lisa G. Criscione-Schreiber, Kai Sun, Jayanth Doss & Megan E. B. Clowse. (2021) Using Clinical Characteristics and Patient‐Reported Outcome Measures to Categorize Systemic Lupus Erythematosus Subtypes. Arthritis Care & Research 73:3, pages 386-393.
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Andrew Kwan, Kathleen Bingham, Christine Peschken, Patricia P. Katz & Zahi Touma. 2021. Outcome Measures and Metrics in Systemic Lupus Erythematosus. Outcome Measures and Metrics in Systemic Lupus Erythematosus 287 301 .
Alice Horisberger, Delphine Courvoisier & Camillo Ribi. (2019) The Fatigue Assessment Scale as a simple and reliable tool in systemic lupus erythematosus: a cross-sectional study. Arthritis Research & Therapy 21:1.
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Rudra Prosad Goswami, Rudrani Chatterjee, Parasar Ghosh, Geetabali Sircar & Alakendu Ghosh. (2019) Quality of life among female patients with systemic lupus erythematosus in remission. Rheumatology International 39:8, pages 1351-1358.
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Ioannis Parodis, Angie H. Lopez Benavides, Agneta Zickert, Susanne Pettersson, Sonia Möller, Elisabet Welin Henriksson, Anne Voss & Iva Gunnarsson. (2019) The Impact of Belimumab and Rituximab on Health‐Related Quality of Life in Patients With Systemic Lupus Erythematosus. Arthritis Care & Research 71:6, pages 811-821.
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S Z Sheikh, K Kaufman, B -B Gordon, S Hicks, A Love, J Walker, L F Callahan & R J Cleveland. (2019) Evaluation of the self-directed format of Walk With Ease in patients with systemic lupus erythematosus: the Walk-SLE Pilot Study. Lupus 28:6, pages 764-770.
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Andrew Kwan, Patricia Katz & Zahi Touma. (2019) The Assessment of Anxiety and Depression and its Associated Factors in SLE. Current Rheumatology Reviews 15:2, pages 90-98.
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A Di Matteo, M Isidori, D Corradini, E Cipolletta, A McShane, R De Angelis, E Filippucci & W Grassi. (2019) Ultrasound in the assessment of musculoskeletal involvement in systemic lupus erythematosus: state of the art and perspectives. Lupus 28:5, pages 583-590.
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A. Dima, S. Caraiola, C. Delcea, R. A. Ionescu, C. Jurcut & C. Badea. (2018) Self-reported disease severity in women with systemic lupus erythematosus. Rheumatology International 39:3, pages 533-539.
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Teresa A. Lillis, Vanessa Tirone, Nisarg Gandhi, Stacy Weinberg, Ailda Nika, Winston Sequeira, Stevan E. Hobfoll, Joel A. Block & Meenakshi Jolly. (2019) Sleep Disturbance and Depression Symptoms Mediate Relationship Between Pain and Cognitive Dysfunction in Lupus. Arthritis Care & Research 71:3, pages 406-412.
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D R Azizoddin, N Gandhi, S Weinberg, M Sengupta, P M Nicassio & M Jolly. (2018) Fatigue in systemic lupus: the role of disease activity and its correlates. Lupus 28:2, pages 163-173.
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Ahmed S Zayat, Khaled Mahmoud, Md Yuzaiful Md Yusof, Sandeep Mukherjee, Maria-Antoinetta D’Agostino, Elizabeth M A Hensor, Richard J Wakefield, Philip G Conaghan, Christopher J Edwards, Paul Emery & Edward M Vital. (2019) Defining inflammatory musculoskeletal manifestations in systemic lupus erythematosus. Rheumatology 58:2, pages 304-312.
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Yi‐Chien Chiang, Jing‐Long Huang, Chao‐Hui Wang, Hsiang‐Chun Lee, Ming‐Ying Lee & Ya‐Chu Hsiao. (2018) Symptom clustering in patients with childhood‐onset systemic lupus erythematosus. Journal of Advanced Nursing 75:1, pages 54-62.
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Sue-Ching Yeoh, Hong Hua, Juan Fernando Yepes & Douglas E. Peterson. 2019. Contemporary Oral Medicine. Contemporary Oral Medicine 1523 1639 .
Sarah L. Patterson, Gabriela Schmajuk, Kashif Jafri, Jinoos Yazdany & Patricia Katz. (2018) Obesity is Independently Associated With Worse Patient‐Reported Outcomes in Women with Systemic Lupus Erythematosus. Arthritis Care & Research 71:1, pages 126-133.
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S. D. Mathias, P. Berry, J. De Vries, K. Pascoe, H. H. Colwell, D. J. Chang & A. D. Askanase. (2018) Patient experience in systemic lupus erythematosus: development of novel patient-reported symptom and patient-reported impact measures. Journal of Patient-Reported Outcomes 2:1.
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Jyoti Bakshi, Beatriz Tejera Segura, Christopher Wincup & Anisur Rahman. (2017) Unmet Needs in the Pathogenesis and Treatment of Systemic Lupus Erythematosus. Clinical Reviews in Allergy & Immunology 55:3, pages 352-367.
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Eva Waldheim, Sofia Ajeganova, Stefan Bergman, Johan Frostegård & Elisabet Welin. (2018) Variation in pain related to systemic lupus erythematosus (SLE): a 7-year follow-up study. Clinical Rheumatology 37:7, pages 1825-1834.
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E A Macêdo, S Appenzeller & L T L Costallat. (2017) Depression in systemic lupus erythematosus: gender differences in the performance of the Beck Depression Inventory (BDI), Center for Epidemiologic Studies Depression Scale (CES-D), and Hospital Anxiety and Depression Scale (HADS). Lupus 27:2, pages 179-189.
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Vera Golder, Rangi Kandane-Rathnayake, Alberta Yik-Bun Hoi, Molla Huq, Worawit Louthrenoo, Yuan An, Zhan Guo Li, Shue Fen Luo, Sargunan Sockalingam, Chak Sing Lau, Mo Yin Mok, Aisha Lateef, Kate Franklyn, Susan Morton, Sandra Teresa V. Navarra, Leonid Zamora, Yeong-Jian Wu, Laniyati Hamijoyo, Madelynn Chan, Sean O’Neill, Fiona Goldblatt, Mandana Nikpour & Eric Francis Morand. (2017) Association of the lupus low disease activity state (LLDAS) with health-related quality of life in a multinational prospective study. Arthritis Research & Therapy 19:1.
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Khaled Mahmoud, Ahmed Zayat & Edward M. Vital. (2017) Musculoskeletal manifestations of systemic lupus erythmatosus. Current Opinion in Rheumatology 29:5, pages 486-492.
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E A Macêdo, S Appenzeller & L T L Costallat. (2016) Gender differences in systemic lupus erythematosus concerning anxiety, depression and quality of life. Lupus 25:12, pages 1315-1327.
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