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Hemoglobin
international journal for hemoglobin research
Volume 33, 2009 - Issue sup1
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PROCEEDINGS OF THE 1ST PAN-MIDDLE EASTERN CONFERENCE ON HAEMOGLOBINOPATHIES DAMASCUS (SYRIA), 1–2 MAY, 2009 GUEST EDITORS: MICHAEL ANGASTINIOTIS AND ANDROULLA ELEFTHERIOUThe Second Section: Blood Transfusion and Iron Overload

Update on Survival in Thalassemia Major

Pages S76-S80 | Published online: 13 Dec 2009

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Fedele Bonifazi, Rosa Conte, Paola Baiardi, Donato Bonifazi, Mariagrazia Felisi, Paola Giordano, Viviana Giannuzzi, Angela Iacono, Rosa Padula, Alessia Pepe, Maria Caterina Putti, Lucia Ruggieri, Giovanni Carlo Del Vecchio, Aldo Filosa, Aurelio Maggio & Adriana Ceci. (2017) Pattern of complications and burden of disease in patients affected by beta thalassemia major. Current Medical Research and Opinion 33:8, pages 1525-1533.
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Giorgia Gollo, Gaia Savioli, Manuela Balocco, Cristina Venturino, Elio Boeri, Massimo Costantini & Gian Luca Forni. (2013) Changes in the quality of life of people with thalassemia major between 2001 and 2009. Patient Preference and Adherence 7, pages 231-236.
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Ho-Wan Ip & Chi-Chiu So. (2013) Diagnosis and prevention of thalassemia. Critical Reviews in Clinical Laboratory Sciences 50:6, pages 125-141.
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Lu-Hong Xu & Jian-Pei Fang. (2013) The Current Status of β-Thalassemia Major in Mainland China. Hemoglobin 37:4, pages 307-314.
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Lu-Hong Xu, Jian-Pei Fang, Hong-Gui Xu & Wen-Jun Weng. (2011) Evaluation of Hepatic Iron Overload in Chinese Children With β-Thalassemia Major. Pediatric Hematology and Oncology 28:8, pages 702-707.
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Radhika N. Sawh. (2023) The patient perspective: The struggles of living with thalassemia as an adult. Annals of the New York Academy of Sciences 1527:1, pages 20-24.
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Yen-Chien Lee, Chi-Tai Yen, Yen-Ling Lee & Rong-Jane Chen. (2022) Thalassemia Intermedia: Chelator or Not?. International Journal of Molecular Sciences 23:17, pages 10189.
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Alexis Leonard, Alice Bertaina, Carmem Bonfim, Sandra Cohen, Susan Prockop, Duncan Purtill, Athena Russell, Jaap Jan Boelens, Robert Wynn, Annalisa Ruggeri & Allistair Abraham. (2022) Curative therapy for hemoglobinopathies: an International Society for Cell & Gene Therapy Stem Cell Engineering Committee review comparing outcomes, accessibility and cost of ex vivo stem cell gene therapy versus allogeneic hematopoietic stem cell transplantation. Cytotherapy 24:3, pages 249-261.
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Mehdi Pishgahi, Mahtab Niroomand, Rama Bozorgmehr, Shirin Ghane-Fard, Farideh Mousavi, Mohammadreza Tabary & Isa Khaheshi. (2020) Association between Serum Vitamin D Level and Echocardiographic Abnormalities in Patients with Thalassemia Major. Cardiovascular & Hematological Disorders-Drug Targets 20:3, pages 214-220.
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Martijn P.T. Ernst, Mike Broeders, Pablo Herrero-Hernandez, Esmee Oussoren, Ans T. van der Ploeg & W.W.M. Pim Pijnappel. (2020) Ready for Repair? Gene Editing Enters the Clinic for the Treatment of Human Disease. Molecular Therapy - Methods & Clinical Development 18, pages 532-557.
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Valeria Maria Pinto, Maurizio Poggi, Rodolfo Russo, Andrea Giusti & Gian Luca Forni. (2019) Management of the aging beta-thalassemia transfusion-dependent population – The Italian experience. Blood Reviews 38, pages 100594.
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Martin Pinquart. (2019) Featured Article: Depressive Symptoms in Parents of Children With Chronic Health Conditions: A Meta-Analysis. Journal of Pediatric Psychology 44:2, pages 139-149.
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Felicity K. Boardman & Rachel Hale. (2019) “I didn’t take it too seriously because I’d just never heard of it”: Experiential knowledge and genetic screening for thalassaemia in the UK . Journal of Genetic Counseling 28:1, pages 141-154.
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Tehreem Tanveer, Haleema Masud & Zahid Ahmed Butt. (2018) Are people getting quality thalassemia care in twin cities of Pakistan? A comparison with international standards. International Journal for Quality in Health Care 30:3, pages 200-207.
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Sophie Mavrogeni, Genovefa Kolovou, Boris Bigalke, Angelos Rigopoulos, Michel Noutsias & Stamatis Adamopoulos. (2018) Transplantation in patients with iron overload: is there a place for magnetic resonance imaging?. Heart Failure Reviews 23:2, pages 173-180.
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Angela Vitrano, Giuseppina Calvaruso, Eliana Lai, Grazia Colletta, Alessandra Quota, Calogera Gerardi, Luciana Concetta Rigoli, Lorella Pitrolo, Liana Cuccia, Francesco Gagliardotto, Aldo Filosa, Vincenzo Caruso, Crocetta Argento, Saveria Campisi, Michele Rizzo, Luciano Prossomariti, Carmelo Fidone, Maria Fustaneo, Rosario Di Maggio & Aurelio Maggio. (2017) The era of comparable life expectancy between thalassaemia major and intermedia: Is it time to revisit the major-intermedia dichotomy?. British Journal of Haematology 176:1, pages 124-130.
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Aliki Liaska, Petros Petrou, Constantinos D. Georgakopoulos, Ramza Diamanti, Dimitris Papaconstantinou, Menelaos G. Kanakis & Ilias Georgalas. (2016) β-Thalassemia and ocular implications: a systematic review. BMC Ophthalmology 16:1.
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Paranee Yatmark, Noppawan Phumala Morales, Urai Chaisri, Surasak Wichaiyo, Warinkarn Hemstapat, Somdet Srichairatanakool, Saovaros Svasti & Suthat Fucharoen. (2016) Iron distribution and histopathological study of the effects of deferoxamine and deferiprone in the kidneys of iron overloaded ?-thalassemic mice. Experimental and Toxicologic Pathology 68:8, pages 427-434.
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Nivan Hany Khater, Hazem Mohamed El Shahat, Hadeer Safwat Fahmy & Samah Saleh El Hadidy. (2016) Comparative study between black blood T2? and conventional bright GRE sequences in assessment of myocardial iron concentration. The Egyptian Journal of Radiology and Nuclear Medicine 47:2, pages 407-412.
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John B. Porter, Theo de Witte, M. Domenica Cappellini & Norbert Gattermann. (2016) New insights into transfusion-related iron toxicity: Implications for the oncologist. Critical Reviews in Oncology/Hematology 99, pages 261-271.
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Deborah Rund. (2016) Thalassemia 2016: Modern medicine battles an ancient disease. American Journal of Hematology 91:1, pages 15-21.
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Sophie Mavrogeni, George Markousis-Mavrogenis & Genovefa Kolovou. (2014) The Role of Magnetic Resonance Imaging in the Evaluation of Thalassemic Syndromes: Current Practice and Future Perspectives. Thalassemia Reports 4:2, pages 1859.
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Antonio Piga, Filomena Longo, Khaled M. Musallam, Maria Domenica Cappellini, Gian Luca Forni, Giovanni Quarta, Francesco Chiavilli, Francesca Commendatore, Sergio Mulas, Vincenzo Caruso & Renzo Galanello. (2013) Assessment and management of iron overload in β‐thalassaemia major patients during the 21st century: a real‐life experience from the I talian W ebthal project . British Journal of Haematology 161:6, pages 872-883.
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Aurelio Maggio, Angela Vitrano, Giuseppina Calvaruso, Rita Barone, Paolo Rigano, Luigi Mancuso, Liana Cuccia, Marcello Capra, Lorella Pitrolo, Luciano Prossomariti, Aldo Filosa, Vincenzo Caruso, Calogera Gerardi, Saveria Campisi, Paolo Cianciulli, Androulla Elefteriou, Michel Angastiniotis, Hala Hamza, Paul Telfer, John Malcolm Walker, Arintaya Phrommintikul & Nipon Chattipakorn. (2013) Serial echocardiographic left ventricular ejection fraction measurements: A tool for detecting thalassemia major patients at risk of cardiac death. Blood Cells, Molecules, and Diseases 50:4, pages 241-246.
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Dimitrios Kountouras, Nikolaos J. Tsagarakis, Evangelia Fatourou, Efthimios Dalagiorgos, Nikolaos Chrysanthos, Helen Berdoussi, Niki Vgontza, Markissia Karagiorga, Athanasios Lagiandreou, Konstantinos Kaligeros, Ersi Voskaridou, Paraskevi Roussou, Evanthia Diamanti‐Kandarakis & John Koskinas. (2013) Liver disease in adult transfusion‐dependent beta‐thalassaemic patients: investigating the role of iron overload and chronic HCV infection. Liver International 33:3, pages 420-427.
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Samin AlaviAlieh SafariElham SadeghiSomayeh Amiri. (2013) Hematological malignancies complicating β-thalassemia syndromes: a single center experience. Blood Research 48:2, pages 149.
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S. Fucharoen & P. Winichagoon. (2012) New updating into hemoglobinopathies. International Journal of Laboratory Hematology 34:6, pages 559-565.
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Juliano Lara Fernandes. (2012) Iron chelation therapy in the management of transfusion-related cardiac iron overload. Transfusion 52:10, pages 2256-2268.
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John Porter, Donald K. Bowden, Marina Economou, Jacques Troncy, Arnold Ganser, Dany Habr, Nicolas Martin, Adam Gater, Diana Rofail, Linda Abetz-Webb, Helen Lau & Maria Domenica Cappellini. (2012) Health-Related Quality of Life, Treatment Satisfaction, Adherence and Persistence in β -Thalassemia and Myelodysplastic Syndrome Patients with Iron Overload Receiving Deferasirox: Results from the EPIC Clinical Trial . Anemia 2012, pages 1-10.
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R.H.B. Meyboom. 2012. A worldwide yearly survey of new data in adverse drug reactions and interactions. A worldwide yearly survey of new data in adverse drug reactions and interactions 367 375 .
Gillian C Smith, John Paul Carpenter, Taigang He, Mohammed H Alam, David N Firmin & Dudley J Pennell. (2011) Value of black blood T2* cardiovascular magnetic resonance. Journal of Cardiovascular Magnetic Resonance 13:1.
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Sylvia T. Singer, Elliott P. Vichinsky, Ginny GildengorinJereon van Disseldorp, Mitchell Rosen & Marcelle I. Cedars. (2011) Reproductive capacity in iron overloaded women with thalassemia major. Blood 118:10, pages 2878-2881.
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Marta Claudia FrittoliErika BiralBarbara CappelliMatilde ZambelliMaria Grazia RoncaroloGiuliana FerrariFabio CiceriSarah Marktel. (2011) Bone Marrow as a Source of Hematopoietic Stem Cells for Human Gene Therapy of β-Thalassemia. Human Gene Therapy 22:4, pages 507-513.
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