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Research Article

Communication Styles of Persons with ALS as Recounted by Surviving Partners

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Pages 232-242 | Received 25 Oct 2011, Accepted 13 Sep 2012, Published online: 21 Dec 2012

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C. Paynter, S. Mathers, H. Gregory, A. P. Vogel & M. Cruice. (2022) How people living with motor neurone disease and their carers experience healthcare decision making: a qualitative exploration. Disability and Rehabilitation 44:13, pages 3095-3103.
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Elizabeth Elliott, Judith Newton, Phillipa Rewaj, Jenna M. Gregory, Lynda Tomarelli, Shuna Colville, Siddharthan Chandran & Suvankar Pal. (2020) An epidemiological profile of dysarthria incidence and assistive technology use in the living population of people with MND in Scotland. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:1-2, pages 116-122.
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Simon Judge, Steven Bloch & Christopher J. McDermott. (2019) Communication change in ALS: engaging people living with ALS and their partners in future research. Disability and Rehabilitation: Assistive Technology 14:7, pages 675-681.
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Imke Oosthuizen, Shakila Dada, Juan Bornman & Rajinder Koul. (2018) Message banking: Perceptions of persons with motor neuron disease, significant others and clinicians. International Journal of Speech-Language Pathology 20:7, pages 756-765.
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Helen L. Paterson. (2017) The use of social media by adults with acquired conditions who use AAC: current gaps and considerations in research. Augmentative and Alternative Communication 33:1, pages 23-31.
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Yu Kageyama, Masayuki Hirata, Takufumi Yanagisawa, Toshio Shimokawa, Jinichi Sawada, Shayne Morris, Nozomi Mizushima, Haruhiko Kishima, Osamu Sakura & Toshiki Yoshimine. (2014) Severely affected ALS patients have broad and high expectations for brain-machine interfaces. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 15:7-8, pages 513-519.
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Stephen N. Calculator. (2013) Parents’ Reports of Patterns of Use and Exposure to Practices Associated with AAC Acceptance by Individuals with Angelman Syndrome. Augmentative and Alternative Communication 29:2, pages 146-158.
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Janice Light & David McNaughton. (2012) The Changing Face of Augmentative and Alternative Communication: Past, Present, and Future Challenges. Augmentative and Alternative Communication 28:4, pages 197-204.
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Articles from other publishers (18)

Betts Peters, Jack Wiedrick & Carolyn Baylor. (2023) Effects of Aided Communication on Communicative Participation for People With Amyotrophic Lateral Sclerosis. American Journal of Speech-Language Pathology 32:4, pages 1450-1465.
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Takemasa ISHIKAWA, Fumiya SANO, Yugo NARITA, Seiichi NAGANO, Hideki MOCHIZUKI, Hisatomo KOWA & Kaoru KONISHI. (2023) A Case Series Study of the Utilization of 50-letter and Flick Type Transparent Communication Boards in Patients with Amyotrophic Lateral Sclerosis. International Symposium on Affective Science and Engineering ISASE2023:0, pages 1-4.
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Juan Bornman. 2023. Handbook of Speech-Language Therapy in Sub-Saharan Africa. Handbook of Speech-Language Therapy in Sub-Saharan Africa 559 580 .
Camille Paynter, Susan Mathers, Heidi Gregory, Adam P. Vogel & Madeline Cruice. (2022) The impact of communication on healthcare involvement for people living with motor neurone disease and their carers: A longitudinal qualitative study. International Journal of Language & Communication Disorders 57:6, pages 1318-1333.
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Amy Roman, Carolyn Baylor, Lindsay Johnson & Maya Barton. (2021) Expanding Availability of Speech-Generating Device Evaluation and Treatment to People With Amyotrophic Lateral Sclerosis (pALS) Through Telepractice: Perspectives of pALS and Communication Partners. American Journal of Speech-Language Pathology 30:5, pages 2098-2114.
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Richard Cave & Steven Bloch. (2020) Voice banking for people living with motor neurone disease: Views and expectations. International Journal of Language & Communication Disorders 56:1, pages 116-129.
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Yu Kageyama, Xin He, Toshio Shimokawa, Jinichi Sawada, Takufumi Yanagisawa, Morris Shayne, Osamu Sakura, Haruhiko Kishima, Hideki Mochizuki, Toshiki Yoshimine & Masayuki Hirata. (2020) Nationwide survey of 780 Japanese patients with amyotrophic lateral sclerosis: their status and expectations from brain–machine interfaces. Journal of Neurology 267:10, pages 2932-2940.
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Anne Hogden, Camille Paynter & Karen Hutchinson. (2020) How can we improve patient-centered care of motor neuron disease?. Neurodegenerative Disease Management 10:2, pages 91-97.
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Birgit Hennig & Andrea Erdélyi. 2020. Neurologische Beatmungsmedizin. Neurologische Beatmungsmedizin 429 439 .
Camille Paynter, Madeline Cruice, Susan Mathers, Heidi Gregory & Adam P. Vogel. (2019) Communication and cognitive impairments and health care decision making in MND: A narrative review. Journal of Evaluation in Clinical Practice 25:6, pages 1182-1192.
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Yugo NARITA, Michiko NAKAI, Tamotsu IMURA, Yuji TANAKA, Takemasa ISHIKAWA & Keiko FUKUROKU. (2019) Education Program for Students in Multiple Health-care Fields to Support Communication with Patients with Amyotrophic Lateral Sclerosis. International Journal of Affective Engineering 18:3, pages 161-170.
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Amanda Holanda Severo, Zuila Maria de Figueiredo Carvalho, Marcos Venícios de Oliveira Lopes, Renata Sá Ferreira Brasileiro & Deyse Cardoso de Oliveira Braga. (2018) Impaired Verbal Communication: diagnosis review in patients with Amyotrophic Lateral Sclerosis. Revista Brasileira de Enfermagem 71:6, pages 3063-3073.
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Katharina Linse, Elisa Aust, Markus Joos & Andreas Hermann. (2018) Communication Matters—Pitfalls and Promise of Hightech Communication Devices in Palliative Care of Severely Physically Disabled Patients With Amyotrophic Lateral Sclerosis. Frontiers in Neurology 9.
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Susan Bergin & Carole Mockford. (2016) Recommendations to support informal carers of people living with motor neurone disease. British Journal of Community Nursing 21:10, pages 518-524.
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Chafic Y. Karam, Sabrina Paganoni, Nanette Joyce, Gregory T. Carter & Richard Bedlack. (2014) Palliative Care Issues in Amyotrophic Lateral Sclerosis. American Journal of Hospice and Palliative Medicine® 33:1, pages 84-92.
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Jessica Caron & Janice Light. (2015) “My World Has Expanded Even Though I'm Stuck at Home”: Experiences of Individuals With Amyotrophic Lateral Sclerosis Who Use Augmentative and Alternative Communication and Social Media. American Journal of Speech-Language Pathology 24:4, pages 680-695.
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Andrew Soundy & Nicola Condon. (2015) Patients experiences of maintaining mental well-being and hope within motor neuron disease: a thematic synthesis. Frontiers in Psychology 6.
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Jayanti Ray. (2014) Real-Life Challenges in Using Augmentative and Alternative Communication by Persons With Amyotrophic Lateral Sclerosis. Communication Disorders Quarterly 36:3, pages 187-192.
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