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Research Papers

Becoming mothers. Multiple sclerosis and motherhood: A qualitative study

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Pages 629-638 | Accepted 01 Jul 2009, Published online: 08 Oct 2009

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Read on this site (10)

Maja Liković & Marko Buljevac. (2023) ‶You look really good, I don’t know why you came here″: persons with multiple sclerosis´ perspectives on social support. Home Health Care Services Quarterly 42:3, pages 243-264.
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Marjorie Aunos, Margaret Spencer, Laura Pacheco & Evelina Pituch. (2022) This changes everything: a critical reflection on the impact of internalized ableist constructs on becoming a disabled mother. Disability & Society 0:0, pages 1-23.
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Evelina Pituch, Anna Maria Bindiu, Myrian Grondin & Carolina Bottari. (2022) Parenting with a physical disability and cognitive impairments: a scoping review of the needs expressed by parents. Disability and Rehabilitation 44:13, pages 3285-3300.
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Federica Graziano, Emanuela Calandri, Martina Borghi & Silvia Bonino. (2020) Adjustment to multiple sclerosis and identity satisfaction among newly diagnosed women: what role does motherhood play?. Women & Health 60:3, pages 271-283.
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Jen Slater, Charlotte Jones & Lisa Procter. (2019) Troubling school toilets: resisting discourses of ‘development’ through a critical disability studies and critical psychology lens. Discourse: Studies in the Cultural Politics of Education 40:3, pages 412-423.
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Catherine Louise Willson, Josie Tetley, Cathy Lloyd, Michele Messmer Uccelli & Sara MacKian. (2018) The impact of multiple sclerosis on the identity of mothers in Italy. Disability and Rehabilitation 40:12, pages 1456-1467.
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Geraldine Foley, Virpi Timonen & Orla Hardiman. (2016) “I hate being a burden”: The patient perspective on carer burden in amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 17:5-6, pages 351-357.
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Joanna Kosmala-Anderson & Louise M. Wallace. (2013) A qualitative study of the childbearing experience of women living with multiple sclerosis. Disability and Rehabilitation 35:12, pages 976-981.
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Louise Mozo-Dutton, Jane Simpson & Julia Boot. (2012) MS and me: exploring the impact of multiple sclerosis on perceptions of self. Disability and Rehabilitation 34:14, pages 1208-1217.
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Lauren J. Breen, Helen Wildy, Sherry Saggers, Jeannine Millsteed & Parimala Raghavendra. (2011) In search of wellness: allied health professionals' understandings of wellness in childhood disability services. Disability and Rehabilitation 33:10, pages 862-871.
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Articles from other publishers (45)

Charlotte Schubert, Lea Steinberg, Julia Peper, Caren Ramien, Kerstin Hellwig, Sascha Köpke, Alessandra Solari, Andrea Giordano, Stefan M Gold, Tim Friede, Christoph Heesen & Anne Christin Rahn. (2023) Postpartum relapse risk in multiple sclerosis: a systematic review and meta-analysis. Journal of Neurology, Neurosurgery & Psychiatry 94:9, pages 718-725.
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Natalie V. Scime, Meredith L. Brockway, Amy Metcalfe, Alberto Nettel-Aguirre, Suzanne C. Tough & Kathleen H. Chaput. (2023) Association of illness perceptions and exclusive breastfeeding intentions among pregnant women with chronic conditions: A community-based pregnancy cohort study. Journal of Psychosomatic Research 172, pages 111418.
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İlknur Özkan & Cansu Polat Dünya. (2023) Motherhood Experiences of Women With Multiple Sclerosis: A Thematic Meta-Synthesis. Clinical Nursing Research, pages 105477382311774.
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Raquel Vaquero-Cristóbal, María J. Maciá-Andreu, Álvaro Díaz-Aroca, Lourdes Meroño, Juan Alfonso García-Roca, Lucía Abenza-Cano, Francisco J. Cánovas-Álvarez, Antonio Sánchez-Pato & Alejandro Leiva-Arcas. (2023) Exploring the perception of barriers to a dual career by student-athletes with/out disabilities. PLOS ONE 18:5, pages e0286152.
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Nadielda Pastor‐Bédard, Evelina Pituch, Estelle Lamata, Myrian Grondin & Carolina Bottari. (2022) Parenting with a physical disability: A scoping review of assessment methods. Australian Occupational Therapy Journal 70:2, pages 257-300.
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Celia Oreja-Guevara, Aintzane Rabanal, Corazón Hernández Rodríguez, Yolanda Aladro Benito, Mar Mendibe Bilbao, Inés Gónzalez-Suarez & José Luis Gómez-Palomares. (2023) Assisted Reproductive Techniques in Multiple Sclerosis: Recommendations from an Expert Panel. Neurology and Therapy 12:2, pages 427-439.
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Natalie V. Scime, Amy Metcalfe, Alberto Nettel‐Aguirre, Suzanne C. Tough & Kathleen H. Chaput. (2023) Association of postpartum medication practices with early breastfeeding cessation among mothers with chronic conditions: A prospective cohort study. Acta Obstetricia et Gynecologica Scandinavica.
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Eva Neely, Ying Jin, Chloe Parton & Felicity Ware. 2023. Handbook of Social Sciences and Global Public Health. Handbook of Social Sciences and Global Public Health 1535 1557 .
Eva Neely, Ying Jin, Chloe Parton & Felicity Ware. 2023. Handbook of Social Sciences and Global Public Health. Handbook of Social Sciences and Global Public Health 1 23 .
Tabassum Firoz, Beth Pineles, Nishika Navrange, Alyssa Grimshaw, Olufemi Oladapo & Doris Chou. (2022) Non-communicable diseases and maternal health: a scoping review. BMC Pregnancy and Childbirth 22:1.
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Lea Steinberg, Julia Peper, Sascha Köpke, Alessandra Solari, Andrea Giordano, Stefan M Gold, Kerstin Hellwig, Christoph Heesen & Anne Christin Rahn. (2022) Motherhood choice in multiple sclerosis (MoMS) development and piloting of patient-reported outcome measures. Multiple Sclerosis and Related Disorders 63, pages 103831.
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Emanuela Calandri, Federica Graziano, Martina Borghi & Silvia Bonino. (2021) The future between difficulties and resources: Exploring parents' perspective on young adults with multiple sclerosis. Family Relations 71:2, pages 686-706.
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Marc Dommergues, Drina Candilis, Ludivine Becerra, Edith Thoueille, David Cohen & Sylvie Viaux-Savelon. (2021) Childbirth and motherhood in women with motor disability due to a rare condition: an exploratory study. Orphanet Journal of Rare Diseases 16:1.
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Natalie V. Scime, Sangmin LeeMandakini JainAmy MetcalfeKathleen H. Chaput. (2021) A Scoping Review of Breastfeeding in Women with Chronic Diseases. Breastfeeding Medicine 16:11, pages 851-862.
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Meng‐Mei Yuan, Xi Peng, Tie‐Ying Zeng, Mei‐Li‐Yang Wu, Ye Chen, Ke Zhang & Xue‐Jun Wang. (2021) The illness experience for people with amyotrophic lateral sclerosis: A qualitative study. Journal of Clinical Nursing 30:9-10, pages 1455-1463.
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Kristen M. Krysko, Riley Bove, Ruth Dobson, Vilija Jokubaitis & Kerstin Hellwig. (2021) Treatment of Women with Multiple Sclerosis Planning Pregnancy. Current Treatment Options in Neurology 23:4.
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Jane Desborough, Crystal Brunoro, Anne Parkinson, Katrina Chisholm, Mark Elisha, Janet Drew, Vanessa Fanning, Christian Lueck, Anne Bruestle, Matthew Cook, Hanna Suominen, Antonio Tricoli, Adam Henschke & Christine Phillips. (2020) ‘It struck at the heart of who I thought I was’: A meta‐synthesis of the qualitative literature examining the experiences of people with multiple sclerosis. Health Expectations 23:5, pages 1007-1027.
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Edward J. D. Webb, David Meads, Ieva Eskytė, Helen L. Ford, Hilary L. Bekker, Jeremy Chataway, George Pepper, Joachim Marti, Yasmina Okan, Sue H. Pavitt, Klaus Schmierer & Ana Manzano. (2020) The Impact of Reproductive Issues on Preferences of Women with Relapsing Multiple Sclerosis for Disease-Modifying Treatments. The Patient - Patient-Centered Outcomes Research 13:5, pages 583-597.
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Moa Wahlqvist, Maria Björk, Agneta Anderzén-Carlsson & Karina Huus. (2020) Health-Related Quality of Life, Family Climate and Sense of Coherence of Families in Which a Parent Has Deafblindness. Frontiers in Education 5.
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Nora Fernández Liguori, Ricardo Alonso, Amelia Alves Pinheiro, María E Balbuena, Andrés Barboza, Santiago Bestoso, Marcos Burgos, Fernando Cáceres, Edgar Carnero Contentti, Adriana Carrá, Edgardo Cristiano, María C Curbelo, Norma Deri, Marcela Fiol, María I Gaitán, Orlando Garcea, Mario Halfon, Javier Hryb, Miguel Jacobo, Gustavo José, Eduardo Knorre, Pablo López, Geraldine Luetic, Carolina Mainella, Alejandra Martínez, Jimena Miguez, Pedro Nofal, Fátima Pagani Cassará, Marcela Parada Marcilla, Raúl Piedrabuena, Cecilia Pita, Cecilia Quarracino, Juan I Rojas, Berenice Silva, Vladimiro Sinay, Judith Steinberg, Adriana Tarulla, Darío Tavolini, Verónica Tkachuk, Santiago Tizio, Andrés Villa, Carlos Vrech, Célica Ysrraelit & Liliana Patrucco. (2020) Consensus recommendations for family planning and pregnancy in multiple sclerosis in argentina. Multiple Sclerosis and Related Disorders 43, pages 102147.
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Denitza Williams, Jessica Webber, Bethan Pell, Aimee Grant, Julia Sanders, Ernest Choy, Adrian Edwards, Ann Taylor, Meng-Chieh Wu & Rhiannon Phillips. (2019) “Nobody knows, or seems to know how rheumatology and breastfeeding works”: Women's experiences of breastfeeding whilst managing a long-term limiting condition – A qualitative visual methods study. Midwifery 78, pages 91-96.
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Chloe Parton, Terri Katz & Jane M Ussher. (2017) ‘Normal’ and ‘failing’ mothers: Women’s constructions of maternal subjectivity while living with multiple sclerosis. Health: An Interdisciplinary Journal for the Social Study of Health, Illness and Medicine 23:5, pages 516-532.
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Robyn M. Powell, Monika Mitra, Suzanne C. Smeltzer, Linda M. Long‐Bellil, Lauren D. Smith, Eliana Rosenthal & Lisa I. Iezzoni. (2018) Adaptive parenting strategies used by mothers with physical disabilities caring for infants and toddlers. Health & Social Care in the Community 27:4, pages 889-898.
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Ieva Eskyte, Ana Manzano, George Pepper, Sue Pavitt, Helen Ford, Hilary Bekker, Jeremy Chataway, Klaus Schmierer, David Meads, Edward Webb & Barbara Potrata. (2019) Understanding treatment decisions from the perspective of people with relapsing remitting multiple Sclerosis: A critical interpretive synthesis. Multiple Sclerosis and Related Disorders 27, pages 370-377.
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Ute Lange & Fabian van Essen. 2019. Gesundheit inklusive. Gesundheit inklusive 159 176 .
J. Frau, G. Coghe, P. Casanova, C. Sardu, L. Lorefice, G. Fenu, M. G. Marrosu & E. Cocco. (2018) Pregnancy planning and outcomes in patients with multiple sclerosis after mitoxantrone therapy: a monocentre assessment. European Journal of Neurology 25:8, pages 1063-1068.
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Edward J. D. Webb, David Meads, Ieva Eskyte, Natalie King, Naila Dracup, Jeremy Chataway, Helen L. Ford, Joachim Marti, Sue H. Pavitt, Klaus Schmierer & Ana Manzano. (2018) A Systematic Review of Discrete-Choice Experiments and Conjoint Analysis Studies in People with Multiple Sclerosis. The Patient - Patient-Centered Outcomes Research 11:4, pages 391-402.
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Chloe Parton, Jane M Ussher, Simone Natoli & Janette Perz. (2017) Being a mother with multiple sclerosis: Negotiating cultural ideals of mother and child. Feminism & Psychology 28:2, pages 212-230.
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Drina Candilis-Huisman, Marc Dommergues, Ludivine Becerra & Sylvie Viaux-Savelon. (2017) Handicap moteur, maladies rares et maternalité : une revue de la littérature. Devenir Vol. 29:4, pages 307-325.
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Anna Wessberg, Ingela Lundgren & Helen Elden. (2017) Being in limbo: Women’s lived experiences of pregnancy at 41 weeks of gestation and beyond – A phenomenological study. BMC Pregnancy and Childbirth 17:1.
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Joanna Blundell Jones, Sue Walsh & Claire Isaac. (2017) The Relational Impact of Multiple Sclerosis: An Integrative Review of the Literature Using a Cognitive Analytic Framework. Journal of Clinical Psychology in Medical Settings 24:3-4, pages 316-340.
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Maria Pia Amato, Antonio Bertolotto, Roberto Brunelli, Paola Cavalla, Benedetta Goretti, Maria Giovanna Marrosu, Francesco Patti, Carlo Pozzilli, Leandro Provinciali, Nicola Rizzo, Nicola Strobelt, Gioacchino Tedeschi, Maria Trojano & Giancarlo Comi. (2017) Management of pregnancy-related issues in multiple sclerosis patients: the need for an interdisciplinary approach. Neurological Sciences 38:10, pages 1849-1858.
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Carrie L. Shandra & Anna Penner. (2017) Benefactors and Beneficiaries? Disability and Care to Others. Journal of Marriage and Family 79:4, pages 1160-1185.
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Stijn De Baets, Marieke Vanhalst, Marieke Coussens, Lies Rombaut, Fransiska Malfait, Geert Van Hove, Patrick Calders, Guy Vanderstraeten & Dominique van de Velde. (2017) The influence of Ehlers-Danlos syndrome – hypermobility type, on motherhood: A phenomenological, hermeneutical study. Research in Developmental Disabilities 60, pages 135-144.
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Halina L. Haag, Michiko Caringal, Sandra Sokoloff, Pia Kontos, Karen Yoshida & Angela Colantonio. (2016) Being a Woman With Acquired Brain Injury: Challenges and Implications for Practice. Archives of Physical Medicine and Rehabilitation 97:2, pages S64-S70.
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Sophie L. Cammidge, Alistair J. A. Duff, Gary J. Latchford & Christine Etherington. (2016) When Women with Cystic Fibrosis Become Mothers: Psychosocial Impact and Adjustments. Pulmonary Medicine 2016, pages 1-11.
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T. Meade, E. Dowswell, N. Manolios & L. Sharpe. (2015) The motherhood choices decision aid for women with rheumatoid arthritis increases knowledge and reduces decisional conflict: a randomized controlled trial. BMC Musculoskeletal Disorders 16:1.
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Darbi J. Haynes-Lawrence & Adam R. West. 2014. Family Relationships and Familial Responses to Health Issues. Family Relationships and Familial Responses to Health Issues 75 101 .
Chrisma Pretorius & Ninon Joubert. (2014) The experiences of individuals with Multiple Sclerosis in the Western Cape, South Africa. Health SA Gesondheid 19:1.
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Sura Alwan, Magdalena Dybalski, Irene M. Yee, Talitha M. Greenwood, Elaine Roger, Nancy Nadeau, Pierre Duquette & A. Dessa Sadovnick. (2014) Multiple Sclerosis and Pregnancy: A Comparison Study. Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques 40:4, pages 590-596.
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Hanna Bertilsdotter Rosqvist & Veronica Lövgren. (2013) Doing adulthood through parenthood: Notions of parenthood among people with cognitive disabilities. Alter 7:1, pages 56-68.
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Nadja Borisow, Andrea Döring, Caspar F Pfueller, Friedemann Paul, Jan Dörr & Kerstin Hellwig. (2012) Expert recommendations to personalization of medical approaches in treatment of multiple sclerosis: an overview of family planning and pregnancy. EPMA Journal 3:1.
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Brenda L. Janotha. (2011) Apoyar a los padres con enfermedades cr?nicas. Nursing (Ed. espa?ola) 29:4, pages 29-32.
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Brenda L. Janotha. (2011) Supporting parents with chronic illnesses. Nursing 41:1, pages 59-62.
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