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Research papers

Health-related quality of life among informal caregivers assisting people with multiple sclerosis

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Pages 113-121 | Published online: 07 May 2010

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Kerry Mutch, Abigail Methley, Shahd Hamid, Perry Moore & Anu Jacob. (2017) If they are OK, we are OK: the experience of partners living with neuromyelitis optica. Disability and Rehabilitation 39:13, pages 1279-1286.
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Lauren Penwell-Waines, Marie-Christine Rutter Goodworth, Rhonda S. Casillas, Rebecca Rahn & Lara Stepleman. (2016) Perceptions of caregiver distress, health behaviors, and provider health-promoting communication and their relationship to stress management in MS caregivers. Health Communication 31:4, pages 478-484.
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Niklas Bergvall, Magnus Tambour, Freddie Henriksson & Sten Fredrikson. (2013) Cost-minimization analysis of fingolimod compared with natalizumab for the treatment of relapsing–remitting multiple sclerosis in Sweden. Journal of Medical Economics 16:3, pages 349-357.
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Herbert R Henney$suffix/text()$suffix/text() & Andrew R Blight. (2012) Walking impairment in patients with multiple sclerosis – a new therapeutic approach and clinical potential of dalfampridine extended release tablets. Degenerative Neurological and Neuromuscular Disease 2, pages 53-64.
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Robert F. Pangalila, Geertrudis A.M. van den Bos, Henk J. Stam, N. Job A. van Exel, Werner B.F. Brouwer & Marij E. Roebroeck. (2012) Subjective caregiver burden of parents of adults with Duchenne muscular dystrophy. Disability and Rehabilitation 34:12, pages 988-996.
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Articles from other publishers (22)

Katherine L. Cardwell, Laura Koch, Odessa J. McKenna, Lara A. Pilutti & Afolasade Fakolade. (2023) Mapping Resilience: Structural Equation Modeling of Psychological Resilience in Multiple Sclerosis Care Partners. International Journal of MS Care 25:6, pages 245-251.
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Stefano Benini, Erika Pellegrini, Carlo Descovich & Alessandra Lugaresi. (2023) Burden and resources in caregivers of people with multiple sclerosis: A qualitative study. PLOS ONE 18:4, pages e0265297.
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Penelope Smyth, Kaitlyn E. Watson, Yazid N. Al Hamarneh & Ross T. Tsuyuki. (2022) The effect of nurse practitioner (NP-led) care on health-related quality of life in people with multiple sclerosis – a randomized trial. BMC Neurology 22:1.
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Julie Mcmullan, Lynne Lohfeld & Amy Jayne McKnight. (2022) Needs of informal caregivers of people with a rare disease: a rapid review of the literature. BMJ Open 12:12, pages e063263.
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Roshanth Rajachandrakumar & Marcia Finlayson. (2021) Multiple sclerosis caregiving: A systematic scoping review to map current state of knowledge. Health & Social Care in the Community 30:4.
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Penelope Smyth, Kaitlyn E. Watson & Ross T. Tsuyuki. (2021) Measuring the effects of nurse practitioner (NP)-led care on depression and anxiety levels in people with multiple sclerosis: a study protocol for a randomized controlled trial. Trials 22:1.
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Gogem Topcu, Heather Buchanan, Aimee Aubeeluck & Hatice Ülsever. (2020) Informal carers’ experiences of caring for someone with Multiple Sclerosis: A photovoice investigation. British Journal of Health Psychology 26:2, pages 360-384.
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Łukasz Lewandowski, Iwona Smotryś, Angelika Puls, Anita Radziejewska, Magdalena Płocharczyk, Aldona Reczek-Chachulska & Sylwia Wieder-Huszla. (2020) Quality of life of blind people’s carers. Pomeranian Journal of Life Sciences 66:3, pages 43-48.
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Julia Strupp, Bernadette Groebe, Raymond Voltz & Heidrun Golla. (2020) Follow-Ups with callers of a palliative and hospice care hotline for severely affected multiple sclerosis patients: Evaluation of its impact. Multiple Sclerosis and Related Disorders 42, pages 102079.
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Samuel Lichtman-Mikol, Sara Razmjou, Kalyan Yarraguntla, Fen Bao, Carla Santiago-Martinez, Navid Seraji-Bozorgzad & Evanthia Bernitsas. (2019) Racial differences in retinal neurodegeneration as a surrogate marker for cortical atrophy in multiple sclerosis. Multiple Sclerosis and Related Disorders 31, pages 141-147.
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Petros PetrikisAnastasia BaldoumaAristeidis H. KatsanosSpyridon KonitsiotisSotirios Giannopoulos. (2019) Quality of Life and Emotional Strain in Caregivers of Patients with Multiple Sclerosis. Journal of Clinical Neurology 15:1, pages 77.
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Mitra Sadigh, Faith Nawagi & Majid Sadigh. (2017) The Economic and Social Impact of Informal Caregivers at Mulago National Referral Hospital, Kampala, Uganda. Annals of Global Health 82:5, pages 866.
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José Meca-Lallana, Mar Mendibe, Rocío Hernández-Clares, Ana Belén Caminero, Javier Mallada-Frechin, Pablo Dávila-Gonzalez, Moisés Garcés-Redondo, Montserrat Gómez, Jorge Millán-Pascual, Gerardo Soriano-Hernández & María del Campo Amigo-Jorrín. (2016) Predictors of burden and depression among caregivers of relapsing-remitting MS patients in Spain: MS Feeling study. Neurodegenerative Disease Management 6:4, pages 277-287.
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Gillian G. Leibach, Marilyn Stern, Adriana Aguayo Arelis, Miguel Angel Macias Islas & Brenda Viridiana Rábago Barajas. (2016) Mental Health and Health-Related Quality of Life in Multiple Sclerosis Caregivers in Mexico. International Journal of MS Care 18:1, pages 19-26.
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Heidrun Golla, Stephanie Mammeas, Maren Galushko, Holger Pfaff & Raymond Voltz. (2015) Unmet needs of caregivers of severely affected multiple sclerosis patients: A qualitative study. Palliative and Supportive Care 13:6, pages 1685-1693.
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Eun-Jeong Lee, Jessica Pieczynski, Samantha DeDios-Stern, Camille Simonetti & Gloria K. Lee. (2015) Gender differences in caregiver strain, needs for support, social support, and quality of life among spousal caregivers of persons with multiple sclerosis. Work 52:4, pages 777-787.
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Omar KhanMitzi J. WilliamsLilyana AmezcuaAdil JavedKristin E. LarsenJennifer M. Smrtka. (2015) Multiple sclerosis in US minority populations. Neurology Clinical Practice 5:2, pages 132-142.
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Soodeh Razeghi Jahromi, Mohammad Ali Sahraian, Fereshteh Ashtari, Hormoz Ayromlou, Massoud Etemadifar, Majid Ghaffarpour, Ehsan Mohammadianinejad, Shahriar Nafissi, Alireza Nickseresht, Vahid Shaygannejad, Mansoreh Togha, Hamid Reza Torabi & Shadi Ziaie. (2014) Islamic fasting and multiple sclerosis. BMC Neurology 14:1.
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Michele Messmer Uccelli. (2014) The impact of multiple sclerosis on family members: a review of the literature. Neurodegenerative Disease Management 4:2, pages 177-185.
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Sarah Acaster, Rodolphe Perard, Deven Chauhan & Andrew J Lloyd. (2013) A forgotten aspect of the NICE reference case: an observational study of the health related quality of life impact on caregivers of people with multiple sclerosis. BMC Health Services Research 13:1.
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James Pike, Edward Jones, Krithika Rajagopalan, James Piercy & Peter Anderson. (2012) Social and economic burden of walking and mobility problems in multiple sclerosis. BMC Neurology 12:1.
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A. Giordano, G. Ferrari, D. Radice, G. Randi, L. Bisanti & A. Solari. (2012) Health‐related quality of life and depressive symptoms in significant others of people with multiple sclerosis: a community study. European Journal of Neurology 19:6, pages 847-854.
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