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Research Papers

Multiple sclerosis patient caregivers: the relationship between their psychological and social needs and burden levels

Pages 326-333 | Accepted 01 Apr 2010, Published online: 04 Jun 2010

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Andrea Carboni-Jiménez, Danielle B. Rice, Brooke Levis, Mara Cañedo-Ayala, Mahrukh Imran, Matthew Chiovitti, Andrea Benedetti & Brett D. Thombs. (2022) Intensity of care and perceived burden among informal caregivers to persons with chronic medical conditions: a systematic review and meta-analysis. Disability and Rehabilitation 44:21, pages 6230-6246.
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Sibel Öztürk & Nuray Dayapoğlu. (2019) Women with Multiple Sclerosis and Marital Adjustment: A Sample from Turkey. The American Journal of Family Therapy 47:3, pages 137-147.
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Kerry Mutch, Abigail Methley, Shahd Hamid, Perry Moore & Anu Jacob. (2017) If they are OK, we are OK: the experience of partners living with neuromyelitis optica. Disability and Rehabilitation 39:13, pages 1279-1286.
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Daniel R. du Plooy & Chrisma Pretorius. (2014) The caregiver experience: a South African perspective on caring for people with multiple sclerosis. Journal of Psychology in Africa 24:4, pages 361-369.
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Pauline Boland, William M. M. Levack, Sheena Hudson & Elliot M. Bell. (2012) Coping with multiple sclerosis as a couple: ‘peaks and troughs’ – an interpretative phenomenological exploration. Disability and Rehabilitation 34:16, pages 1367-1375.
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Robert F. Pangalila, Geertrudis A.M. van den Bos, Henk J. Stam, N. Job A. van Exel, Werner B.F. Brouwer & Marij E. Roebroeck. (2012) Subjective caregiver burden of parents of adults with Duchenne muscular dystrophy. Disability and Rehabilitation 34:12, pages 988-996.
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Articles from other publishers (28)

Joan Costa-Font, Francesco D’Amico & Cristina Vilaplana-Prieto. (2023) Caring For Carers?. American Journal of Health Economics 9:4, pages 487-522.
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Yunfei Chen & Hong Zhao. (2023) Long-term care insurance, mental health of the elderly and its spillovers. Frontiers in Public Health 11.
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Joan Costa-Font & Cristina Vilaplana-Prieto. (2022) Mental health effects of caregivers respite: Subsidies or Supports?. The Journal of the Economics of Ageing 23, pages 100398.
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Roshanth Rajachandrakumar & Marcia Finlayson. (2021) Multiple sclerosis caregiving: A systematic scoping review to map current state of knowledge. Health & Social Care in the Community 30:4.
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Gogem Topcu, Heather Buchanan, Aimee Aubeeluck & Hatice Ülsever. (2020) Informal carers’ experiences of caring for someone with Multiple Sclerosis: A photovoice investigation. British Journal of Health Psychology 26:2, pages 360-384.
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Khrisha B. Alphonsus & Carl D’Arcy. (2021) Is There an Association Between Social Support and Pain Among Individuals Living With Multiple Sclerosis?. Journal of Evidence-Based Integrative Medicine 26, pages 2515690X2199199.
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Sunita Ghosh, Won Yong Choi, Allison Williams, Wendy Duggleby, Jenny Ploeg, Maureen Markle-Reid & Shelley Peacock. (2019) Burden on Caregivers of Adults with Multiple Chronic Conditions: Intersectionality of Age, Gender, Education level, Employment Status, and Impact on Social Life. Canadian Journal on Aging / La Revue canadienne du vieillissement 39:3, pages 456-467.
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Moira Tzitzika, Efthymios Lampridis & Dimitris Kalamaras. (2020) Relational Satisfaction of Spousal/Partner Informal Caregivers of People with Multiple Sclerosis. International Journal of MS Care 22:2, pages 60-66.
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Sandra L. Neate, Keryn L. Taylor, George A. Jelinek, Alysha M. De Livera, Chelsea R. Brown & Tracey J. Weiland. (2019) Taking active steps: Changes made by partners of people with multiple sclerosis who undertake lifestyle modification. PLOS ONE 14:2, pages e0212422.
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Saba Yaseen Hyarat, Maha Subih, Ahmad Rayan, Ibrahim Salami & Alaa Harb. (2019) Health Related Quality of Life Among Patients With Multiple Sclerosis: The Role of Psychosocial Adjustment to Illness. Archives of Psychiatric Nursing 33:1, pages 11-16.
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marzieah panahi, zahra Tazakori & Mansooreh Karimollahi. (2018) Challenges of Parents of Daughters with Multiple Sclerosis: A Phenomenological Study. Journal of Health and Care 20:2, pages 165-176.
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Józef Opara & W. Brola. (2018) Quality of Life and Burden in caregivers of Multiple Sclerosis patients. Physiotherapy and Health Activity 25:1, pages 9-16.
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Melody N. Mickens, Paul B. Perrin, Adriana Aguayo, Brenda Rabago, Miguel A. Macías-Islas & Juan Carlos Arango-Lasprilla. (2018) Mediational Model of Multiple Sclerosis Impairments, Family Needs, and Caregiver Mental Health in Guadalajara, Mexico. Behavioural Neurology 2018, pages 1-11.
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Nuray Dayapoğlu & Mehtap Tan. (2017) The care burden and social support levels of caregivers of patients with multiple sclerosis. Kontakt 19:1, pages e17-e23.
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José Meca-Lallana, Mar Mendibe, Rocío Hernández-Clares, Ana Belén Caminero, Javier Mallada-Frechin, Pablo Dávila-Gonzalez, Moisés Garcés-Redondo, Montserrat Gómez, Jorge Millán-Pascual, Gerardo Soriano-Hernández & María del Campo Amigo-Jorrín. (2016) Predictors of burden and depression among caregivers of relapsing-remitting MS patients in Spain: MS Feeling study. Neurodegenerative Disease Management 6:4, pages 277-287.
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Gillian G. Leibach, Marilyn Stern, Adriana Aguayo Arelis, Miguel Angel Macias Islas & Brenda Viridiana Rábago Barajas. (2016) Mental Health and Health-Related Quality of Life in Multiple Sclerosis Caregivers in Mexico. International Journal of MS Care 18:1, pages 19-26.
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Heidrun Golla, Stephanie Mammeas, Maren Galushko, Holger Pfaff & Raymond Voltz. (2015) Unmet needs of caregivers of severely affected multiple sclerosis patients: A qualitative study. Palliative and Supportive Care 13:6, pages 1685-1693.
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Eun-Jeong Lee, Jessica Pieczynski, Samantha DeDios-Stern, Camille Simonetti & Gloria K. Lee. (2015) Gender differences in caregiver strain, needs for support, social support, and quality of life among spousal caregivers of persons with multiple sclerosis. Work 52:4, pages 777-787.
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Lorenza Magliano, Melania Patalano, Alessandra Sagliocchi, Marianna Scutifero, Antonella Zaccaro, Maria Grazia D'angelo, Federica Civati, Erika Brighina, Giuseppe Vita, Gian Luca Vita, Sonia Messina, Maria Sframeli, Marika Pane, Maria Elena Lombardo, Roberta Scalise, Adele D'amico, Giulia Colia, Michela Catteruccia, Umberto Balottin, Angela Berardinelli, Maria Chiara Motta, Corrado Angelini, Alessandra Gaiani, Claudio Semplicini, Luca Bello, Roberta Battini, Guja Astrea & Luisa Politano. (2015) Burden, professional support, and social network in families of children and young adults with muscular dystrophies. Muscle & Nerve 52:1, pages 13-21.
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Michele Messmer Uccelli. (2014) The impact of multiple sclerosis on family members: a review of the literature. Neurodegenerative Disease Management 4:2, pages 177-185.
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Ayse Cil Akinci & Rukiye Pinar. (2014) Validity and reliability of Turkish Caregiver Burden Scale among family caregivers of haemodialysis patients. Journal of Clinical Nursing 23:3-4, pages 352-360.
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Mukadder Mollaoğlu, Mansur Kayataş & Birsen Yürügen. (2012) Effects on caregiver burden of education related to home care in patients undergoing hemodialysis. Hemodialysis International 17:3, pages 413-420.
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R. Litta. 2013. Aspetti psicologici nella sclerosi multipla. Aspetti psicologici nella sclerosi multipla 165 172 .
Sanober Nusrat, Elsie Gulick, David Levinthal & Klaus Bielefeldt. (2012) Anorectal Dysfunction in Multiple Sclerosis: A Systematic Review. ISRN Neurology 2012, pages 1-9.
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Józef Opara, Krystyna Jaracz & Waldemar Brola. (2012) Burden and quality of life in caregivers of persons with multiple sclerosis. Neurologia i Neurochirurgia Polska 46:5, pages 472-479.
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Nadiye Özer, Afife Yurttaş & Rahşan Çevik Akyıl. (2012) Psychometric Evaluation of the Turkish Version of the Zarit Burden Interview in Family Caregivers of Inpatients in Medical and Surgical Clinics. Journal of Transcultural Nursing 23:1, pages 65-71.
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Bridget Whitehead. (2011) Contributing factors to burden in Turkish MS caregivers. British Journal of Neuroscience Nursing 7:1, pages 455-455.
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Joan Costa-i-Font, Francesco D'Amico & Cristina Vilaplana-Prieto. (2022) Caring for Carers? The Effect of Public Subsidies on the Wellbeing of Unpaid Carers. SSRN Electronic Journal.
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