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Research Article

“Tell me what you want, what you really really want….”: asking people with multiple sclerosis about enhancing their participation in physical activity

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Pages 1887-1893 | Received 21 Mar 2012, Accepted 21 Mar 2012, Published online: 05 Apr 2012

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Rebecca D. Russell, Lucinda J. Black, Justine Purdue, Alison Daly & Andrea Begley. (2023) A collaborative approach to designing an online nutrition education program for people with multiple sclerosis. Disability and Rehabilitation 0:0, pages 1-10.
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Andrea Stennett, Lorraine De Souza & Meriel Norris. (2020) The meaning of exercise and physical activity in community dwelling people with multiple sclerosis. Disability and Rehabilitation 42:3, pages 317-323.
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Leonie A. Krops, Nienke Folkertsma, Doortje H. J. Hols, Jan H. B. Geertzen, Pieter U. Dijkstra & Rienk Dekker. (2019) Target population’s requirements on a community-based intervention for stimulating physical activity in hard-to-reach physically disabled people: an interview study. Disability and Rehabilitation 41:19, pages 2272-2279.
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Hilary Gunn, Ruth Endacott, Bernhard Haas, Jonathan Marsden & Jennifer Freeman. (2018) Development of a balance, safe mobility and falls management programme for people with multiple sclerosis. Disability and Rehabilitation 40:24, pages 2857-2866.
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Yvonne C. Learmonth, Brynn C. Adamson, Julia M. Balto, Chung-Yi Chiu, Isabel M. Molina-Guzman, Marcia Finlayson, Elizabeth A. Barstow & Robert W. Motl. (2018) Investigating the needs and wants of healthcare providers for promoting exercise in persons with multiple sclerosis: a qualitative study. Disability and Rehabilitation 40:18, pages 2172-2180.
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Bahram Sangelaji, Catherine Smith, Lorna Paul, Gareth Treharne & Leigh Hale. (2017) Promoting physical activity engagement for people with multiple sclerosis living in rural settings: a proof-of-concept case study. European Journal of Physiotherapy 19:sup1, pages 17-21.
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Bláthín Casey, Sara Hayes, Catherine Browne & Susan Coote. (2016) What do people with MS want from a web-based resource to encourage increased physical activity behaviour?. Disability and Rehabilitation 38:16, pages 1557-1566.
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Marie Ernst Christensen, John Brincks, Anette Schnieber & Dorthe Soerensen. (2016) The intention to exercise and the execution of exercise among persons with multiple sclerosis – a qualitative metasynthesis. Disability and Rehabilitation 38:11, pages 1023-1033.
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Leigh Anne Hale, Brigit F. Mirfin-Veitch & Gareth J. Treharne. (2016) Prevention of falls for adults with intellectual disability (PROFAID): a feasibility study. Disability and Rehabilitation 38:1, pages 36-44.
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Joeri Calsius, Imke Courtois, Peter Feys, Paul Van Asch, Jozef De Bie & Marie D’hooghe. (2015) “How to conquer a mountain with multiple sclerosis”. How a climbing expedition to Machu Picchu affects the way people with multiple sclerosis experience their body and identity: a phenomenological analysis. Disability and Rehabilitation 37:26, pages 2393-2399.
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Robert W. Motl, Yvonne C. Learmonth, Lara A. Pilutti, Eduard Gappmaier & Susan Coote. (2015) Top 10 Research Questions Related to Physical Activity and Multiple Sclerosis. Research Quarterly for Exercise and Sport 86:2, pages 117-129.
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Ludovico Pedullà, Carme Santoyo-Medina, Klara Novotna, Lousin Moumdjian, Tori Smedal, Ellen Christin Arntzen, Marietta L. van der Linden, Yvonne Learmonth, Alon Kalron, Feray Güngör, Una Nedeljkovic, Daphne Kos, Johanna Jonsdottir, Susan Coote & Andrea Tacchino. (2023) Physical Activity in Multiple Sclerosis: Meeting the Guidelines at the Time of the COVID-19 Pandemic. Journal of Neurologic Physical Therapy 47:2, pages 112-121.
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Julie Louie, Katherine Baquie, Justin Offerman, Catherine L. Granger, Fary Khan & Kelly J. Bower. (2021) Maximising Abilities, Negotiating and Generating Exercise options (MANAGE) in people with multiple sclerosis: A feasibility randomised controlled trial. Clinical Rehabilitation 36:4, pages 498-510.
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Julie Latchem-Hastings, Elizabeth Randell, Kate Button, Fiona Jones, Rachel Lowe, Helen Dawes, Fiona Wood, Freya Davies, Vincent Poile, Rhian O’Halloran, Barbara Stensland, Emma Tallantyre, Rebecca Playle, Adrian Edwards & Monica Busse. (2021) Lifestyle, exercise and activity package for people living with progressive multiple sclerosis (LEAP-MS): protocol for a single-arm feasibility study. Pilot and Feasibility Studies 7:1.
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Andrea Marjorie Stennett, Lorraine H. De Souza & Meriel Norris. (2021) Flipping the ICF: Exploring the Interplay of Theory and the Lived Experience to Reconsider Physical Activity in Community-Dwelling People With Multiple Sclerosis. Frontiers in Rehabilitation Sciences 2.
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Moira Smith, Bridee Neibling, Gavin Williams, Melanie Birks & Ruth Barker. (2021) Consumer experience of a flexible exercise participation program (FEPP) for individuals with multiple sclerosis: A mixed‐methods study. Physiotherapy Research International 26:4.
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Afolasade O. Fakolade, Amy E. Latimer-Cheung & Celina H. Shirazipour. (2021) Quality participation: Perspectives of physical activity service providers for veterans with disabilities. Disability and Health Journal 14:3, pages 101094.
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Rachel Dennett, Wendy Hendrie, Louise Jarrett, Siobhan Creanor, Andrew Barton, Annie Hawton & Jennifer A Freeman. (2020) “I’m in a very good frame of mind”: a qualitative exploration of the experience of standing frame use in people with progressive multiple sclerosis. BMJ Open 10:10, pages e037680.
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Sarah J. Donkers, Darren Nickel, Lorna Paul, Shyane R. Wiegers & Katherine B. Knox. (2020) Adherence to Physiotherapy-Guided Web-Based Exercise for Persons with Moderate-to-Severe Multiple Sclerosis. International Journal of MS Care 22:5, pages 208-214.
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Julia R Kibblewhite, Gareth J Treharne, Simon Stebbings & Roisin SM Hegarty. (2017) Enjoyment of exercise among people with arthritis: An inductive thematic analysis. Journal of Health Psychology 25:6, pages 766-779.
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Farren L. Goulding, Charity D. Evans, Katherine B. Knox, Hyun J. Lim, Michael C. Levin & Sarah J. Donkers. (2019) Individualised behaviour change strategies for physical activity in multiple sclerosis (IPAC-MS): protocol for a randomised controlled trial. Trials 20:1.
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Robert W. Motl, Deborah Backus, Whitney N. Neal, Gary Cutter, Louise Palmer, Robert McBurney, Hollie Schmidt, Francois Bethoux, Jeffrey Hebert, Alexander Ng, Kevin K. McCully & Prudence Plummer. (2019) Rationale and design of the STEP for MS Trial: Comparative effectiveness of Supervised versus Telerehabilitation Exercise Programs for Multiple Sclerosis. Contemporary Clinical Trials 81, pages 110-122.
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Megan Elizabeth Ware, Kathleen B deMarrais & Kevin K McCully. (2019) Adherence and Continued Participation in a Wellness Class for Individuals with Disabilities. Rehabilitation Process and Outcome 8, pages 117957271984325.
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H. Gunn, J. Andrade, L. Paul, L. Miller, S. Creanor, C. Green, J. Marsden, P. Ewings, M. Berrow, J. Vickery, A. Barton, B. Marshall, J. Zajicek & J. A. Freeman. (2017) Balance Right in Multiple Sclerosis (BRiMS): a guided self-management programme to reduce falls and improve quality of life, balance and mobility in people with secondary progressive multiple sclerosis: a protocol for a feasibility randomised controlled trial. Pilot and Feasibility Studies 4:1.
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Rachel Dennett, Hilary Gunn & Jennifer A Freeman. (2018) Effectiveness of and User Experience With Web-Based Interventions in Increasing Physical Activity Levels in People With Multiple Sclerosis: A Systematic Review. Physical Therapy 98:8, pages 679-690.
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Leigh A Hale, Catherine M Smith, Hilda F Mulligan, Divya Adhia, Bryan Siew & Gareth J Treharne. (2018) Exploring the Blue Prescription intervention to promote physical activity in people with long-term conditions. International Journal of Therapy and Rehabilitation 25:7, pages 365-376.
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Afolasade Fakolade, Julie Lamarre, Amy Latimer-Cheung, Trisha Parsons, Sarah A. Morrow & Marcia Finlayson. (2018) Understanding leisure-time physical activity: Voices of people with MS who have moderate-to-severe disability and their family caregivers. Health Expectations 21:1, pages 181-191.
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Yvonne C. Learmonth, Brynn C. Adamson, Julia M. Balto, Chung-yi Chiu, Isabel Molina-Guzman, Marcia Finlayson, Barry J. Riskin & Robert W. Motl. (2017) Multiple sclerosis patients need and want information on exercise promotion from healthcare providers: a qualitative study. Health Expectations 20:4, pages 574-583.
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Lori Quinn & Don Morgan. (2017) From Disease to Health: Physical Therapy Health Promotion Practices for Secondary Prevention in Adult and Pediatric Neurologic Populations. Journal of Neurologic Physical Therapy 41, pages S46-S54.
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Yvonne C. Learmonth, Brynn C. Adamson, Julia M. Balto, Chung-yi Chiu, Isabel M. Molina-Guzman, Marcia Finlayson, Barry J. Riskin & Robert W. Motl. (2017) Identifying preferred format and source of exercise information in persons with multiple sclerosis that can be delivered by health-care providers. Health Expectations.
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Cheryl Anderson, Robert L. Grant & Michael V. Hurley. (2017) Exercise facilities for neurologically disabled populations ? Perceptions from the fitness industry. Disability and Health Journal 10:1, pages 157-162.
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Samuel M Hall-McMaster, Gareth J Treharne & Catherine M Smith. (2016) ‘The positive feel’: Unpacking the role of positive thinking in people with multiple sclerosis’s thinking aloud about staying physically active. Journal of Health Psychology 21:12, pages 3026-3036.
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Anne Brédart, Aurélie Untas, Laure Copel, Mylène Leufroy, Jean-Christophe Mino, Claude Boiron, Sylvie Dolbeault & Jean-Luc Kop. (2016) Breast Cancer Survivors' Supportive Care Needs, Posttraumatic Growth and Satisfaction with Doctors' Interpersonal Skills in Relation to Physical Activity 8 Months after the End of Treatment: A Prospective Exploratory Study. Oncology 90:3, pages 151-159.
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Tayler Walter, Leigh Hale & Cath Smith. (2015) Blue Prescription: A single-subject design intervention to enable physical activity for people with stroke. International Journal of Therapy and Rehabilitation 22:2, pages 87-95.
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