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Disability and Rehabilitation Volume 35, 2013 - Issue 3
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Research Papers

Living with hereditary haemorrhagic telangiectasia: Coping and psychological distress – A cross-sectional study

Amy Østertun GeirdalCorrespondence[email protected]
,
Sinan DheyauldeenDepartment of Otorhinolaryngology Head and Neck Surgery, Oslo University Hospital, Rikshospitalet, Oslo, Norway
,
Gregor Bachmann-HarildstadDepartment of Otorhinolaryngology, Akershus University Hospital and Oslo University Lørenskog, Lørenskog, Norway
&
Ketil HeimdalDepartment of Medical Genetics, Oslo University Hospital, Rikshospitalet, Oslo, Norway
Pages 206-213 | Received 12 Oct 2011, Accepted 01 Apr 2012, Published online: 07 Jun 2012

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Adrienne Sexton, Bridget Gargan, Jessica Taylor, Michael Bogwitz & Ingrid Winship. (2019) Living with Hereditary Haemorrhagic Telangiectasia: stigma, coping with unpredictable symptoms, and self-advocacy. Psychology & Health 34:10, pages 1141-1160.
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Articles from other publishers (11)

Anna J. Gong, Tushar Garg, Adham Khalil, Prateek C. Gowda, Stephen C. Mathai, Nicholas R. Rowan, Christian A. Merlo & Clifford R. Weiss. (2023) Health-Related Quality of Life Outcome Measures in Individuals With Hereditary Hemorrhagic Telangiectasia: A Scoping Review. American Journal of Rhinology & Allergy 38:1, pages 60-76.
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Alasdair P. J. Parker, Frederick J. Wilkinson, Finbar J. O’Callaghan & Sam Amin. 2022. Neurocutaneous Disorders. Neurocutaneous Disorders 539 550 .
Emma Yun‐zhi Huang & Simon Ching Lam. (2021) Review of frailty measurement of older people: Evaluation of the conceptualization, included domains, psychometric properties, and applicability. AGING MEDICINE 4:4, pages 272-291.
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Guillaume Martinent, Manon Carrot, Anne Chirac, Sophie Dupuis-Girod, Anne-Emmanuelle Fargeton, Stéphanie Blois Da Conceição & Sylvie Fourdrinoy. (2020) Hereditary hemorrhagic telangiectasia and health-related quality of life: a qualitative investigation. Quality of Life Research 29:5, pages 1291-1299.
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Kristin Iversen, Lill Monica Drivdal, Kristin J. Billaud Feragen & Amy Østertun Geirdal. (2018) Quality of life in adults with lymphedema cholestasis syndrome 1. Health and Quality of Life Outcomes 16:1.
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Laura Geerts, Carole Fantini-Hauwel, Elodie Brugallé, Odile Boute, Frédéric Frénois, Lydie Defrance, Sylvie Manouvrier-Hanu, Florence Petit & Pascal Antoine. (2016) The Subjective Experience of Patients Diagnosed with Hereditary Hemorrhagic Telangiectasia: a Qualitative Study. Journal of Genetic Counseling 26:3, pages 612-619.
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Edward C. Kuan, Kevin A. Peng, Christopher F. Thompson, Jeffrey D. Suh & Marilene B. Wang. (2017) Sinonasal quality of life outcomes following laser treatment of epistaxis related to hereditary hemorrhagic telangiectasia. Lasers in Medical Science 32:3, pages 527-531.
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Roberto Zarrabeitia, Concepción Fariñas-Álvarez, Miguel Santibáñez, Blanca Señaris, Ana Fontalba, Luisa María Botella & José Antonio Parra. (2017) Quality of life in patients with hereditary haemorrhagic telangiectasia (HHT). Health and Quality of Life Outcomes 15:1.
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Waleed Brinjikji, Christopher P. Wood, Giuseppe Lanzino, Harry J. Cloft, Sanjay Misra, David F. Kallmes, Patrick Kamath, Rajiv K. Pruthi, Michael J. Krowka, Karen L. Swanson & Vivek N. Iyer. (2016) High Rates of Bleeding Complications among Hospitalized Patients with Hereditary Hemorrhagic Telangiectasia in the United States. Annals of the American Thoracic Society 13:9, pages 1505-1511.
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Kathleen M. SaccoThomas W. BarkleyJrJr. (2016) Hereditary Hemorrhagic Telangiectasia: A Primer for Critical Care Nurses. Critical Care Nurse 36:3, pages 36-48.
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Leigh Ann Higa, Jamie McDonald, Deborah O. Himes & Erin Rothwell. (2015) Life experiences of individuals with hereditary hemorrhagic telangiectasia and disclosing outside the family: a qualitative analysis. Journal of Community Genetics 7:1, pages 81-89.
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