Citations (125)
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Jennifer S. Shafer, Katarina L. Haley & Adam Jacks. (2023) Accessing information and adapting to the role of care partner for stroke survivors with aphasia during the early Covid-19 pandemic. Aphasiology 37:6, pages 907-928.
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Jennifer S. Shafer, Katarina L. Haley & Adam Jacks. (2023) How ten speech-language pathologists provide informational counseling across the rehabilitation continuum for care partners of stroke survivors with aphasia. Aphasiology 37:5, pages 735-760.
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Katrine Sauvé-Schenk, Patrick Duong, Samantha Samonte-Brown, Lisa Sheehy, Martine Trudelle & Jacinthe Savard. (2023) Supporting post-stroke access to services and resources for individuals with low income: understanding usual care practices in acute care and rehabilitation settings. Disability and Rehabilitation 0:0, pages 1-9.
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Valeria Chiu, Beth E. Fields, Yen-Nung Lin, Jiunn-Horng Kang, Der-Sheng Han, Yi-Hsuan Wu, Yu Su, Elizabeth R. Skidmore & Feng-Hang Chang. (2023) Implementing strategy training in Taiwan: perspectives of individuals with Acquired brain injury. Disability and Rehabilitation 0:0, pages 1-9.
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Katrine Sauvé-Schenk, Patrick Duong, Jacinthe Savard & François Durand. (2022) A systematic review of social service and community resource interventions following stroke. Disability and Rehabilitation 44:13, pages 2948-2957.
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Kristina M. Kokorelias, Monique A. M. Gignac, Gary Naglie, Nira Rittenberg, Jennifer MacKenzie, Samantha D’Souza & Jill I. Cameron. (2022) A grounded theory study to identify caregiving phases and support needs across the Alzheimer’s disease trajectory. Disability and Rehabilitation 44:7, pages 1050-1059.
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Christyn S. Davidson & Sarah E. Wallace. (2022) Information needs for carers following a family member’s right hemisphere stroke. Aphasiology 36:3, pages 291-316.
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Suzanne Perea Burns, Barabara J. Lutz & Gayenell S. Magwood. (2022) ‘Timing it Right’: needs of African American adults with stroke and their caregivers across the care continuum. Ethnicity & Health 27:2, pages 420-434.
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Alexandra M. J. Denham, Olivia Wynne, Amanda L. Baker, Neil J. Spratt, Madeleine Loh, Alyna Turner, Parker Magin & Billie Bonevski. (2022) The long-term unmet needs of informal carers of stroke survivors at home: a systematic review of qualitative and quantitative studies. Disability and Rehabilitation 44:1, pages 1-12.
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Jill I. Cameron. (2021) Family caregiving research: Reflecting on the past to inform the future. The Journal of Spinal Cord Medicine 44:sup1, pages S19-S22.
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Giovanna Girardi, Maria Luisa Farnese, Federico Scarponi, Antonio De Tanti, Michelangelo Bartolo, Domenico Intiso, Rita Formisano & Gabriella Antonucci. (2021) User-centered practices in the eyes of informal caregivers of in-patients with severe acquired brain injury: needs, caring experience, and satisfaction. Brain Injury 35:11, pages 1402-1412.
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Victrine Tseung, Susan B. Jaglal, Nancy M. Salbach, Karen Yoshida & Jill I. Cameron. (2021) Key informants' perspectives on implementing caregiver programs in an organized system of stroke care. Disability and Rehabilitation 43:8, pages 1145-1152.
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Annie Rochette, Ariane Dugas & Anne-Sophie Morissette-Gravel. (2021) Inclusion of relatives in stroke rehabilitation: Perception of quality of services they received in the context of early supported discharged (ESD), in- and out-patient services. Topics in Stroke Rehabilitation 28:2, pages 142-152.
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Theresia Krieger, Miriam Floren, Frans Feron & Elisabeth Dorant. (2021) Optimising a complex stroke caregiver support programme in practice: a participatory action research study. Educational Action Research 29:1, pages 37-59.
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Duygu Kes & Tugba Aydin Yildirim. (2020) The relationship of religious coping strategies and family harmony with caregiver burden for family members of patients with stroke. Brain Injury 34:11, pages 1461-1466.
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Brittany D. Korotkin, Michael Hoerger, Sara Voorhees, Chynna O. Allen, William R. Robinson & Paul R. Duberstein. (2019) Social support in cancer: How do patients want us to help?. Journal of Psychosocial Oncology 37:6, pages 699-712.
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Jennifer LeLaurin, Magda Schmitzberger, Nathaniel Eliazar-Macke, I. Magaly Freytes, Stuti Dang & Constance Uphold. (2019) A commentary on methodological issues in stroke caregiver research: lessons learned from three RESCUE intervention studies. Topics in Stroke Rehabilitation 26:5, pages 399-404.
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Charlotte Ytterberg, Lena von Koch & Anette Erikson. (2019) Abandoned to the strains of daily life: a qualitative study of the long-term experiences in partners to persons after a mild to moderate stroke. Disability and Rehabilitation 41:6, pages 649-655.
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Rachel Graf, Jennifer LeLaurin, Magda Schmitzberger, I. Magaly Freytes, Tatiana Orozco, Stuti Dang & Constance R. Uphold. (2017) The stroke caregiving trajectory in relation to caregiver depressive symptoms, burden, and intervention outcomes. Topics in Stroke Rehabilitation 24:7, pages 488-495.
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Ann Wigginton Steber, Camille Skubik-Peplaski, Renee Causey-Upton & Melba Custer. (2017) The Impact of Caring for Persons with Stroke on the Leisure Occupations of Female Caregivers. Physical & Occupational Therapy In Geriatrics 35:3-4, pages 169-181.
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Phyllis Liang, Jennifer Fleming, Louise Gustafsson, Janelle Griffin & Jacki Liddle. (2017) Family members’ experiences of driving disruption after acquired brain injury. Brain Injury 31:4, pages 517-525.
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Tamilyn Bakas, Nenette M. Jessup, Susan M. McLennon, Barbara Habermann, Michael T. Weaver & Gwendolyn Morrison. (2016) Tracking patterns of needs during a telephone follow-up programme for family caregivers of persons with stroke. Disability and Rehabilitation 38:18, pages 1780-1790.
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Sonia Lawson, Anjoli Rowe & Yael Yeheskeli Meredith. (2015) Survey of Stroke Caregiver Training provided by OT, PT, and SLP across Practice Settings. Physical & Occupational Therapy In Geriatrics 33:4, pages 320-335.
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Naoki Saji, Kazumi Kimura, Goro Ohsaka, Yasuto Higashi, Yoichi Teramoto, Masanobu Usui & Yasushi Kita. (2015) Functional independence measure scores predict level of long-term care required by patients after stroke: a multicenter retrospective cohort study. Disability and Rehabilitation 37:4, pages 331-337.
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Marie-Christine Hallé & Guylaine Le Dorze. (2014) Understanding significant others’ experience of aphasia and rehabilitation following stroke. Disability and Rehabilitation 36:21, pages 1774-1782.
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Casey L. O’Brien, Gaye Moore, John X. Rolley, Chantal F. Ski, David R. Thompson, Nicola T. Lautenschlager, Graeme Gonzales, Ya-seng (Arthur) Hsueh & David Castle. (2014) Exploring Health Care Providers’ Perceptions of the Needs of Stroke Carers: Informing Development of an Optimal Health Program. Topics in Stroke Rehabilitation 21:5, pages 421-431.
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Amy Shapiro-Rosenbaum & Michelle P. Jaffe. (2024) Education, Training, and Support Across the Continuum of Recovery for Caregivers of Persons with Disorders of Consciousness. Physical Medicine and Rehabilitation Clinics of North America 35:1, pages 193-208.
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Panpan Yang, Mengzhen Ma, Qingyi Guan, Xingbin Du & Yanyan Fan. (2023) Assessing the needs of informal caregivers of patients with chronic non‐communicable diseases: A systematic review of self‐assessment tools. Nursing Open 10:12, pages 7467-7486.
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Jennifer S. Shafer, Katarina L. Haley & Adam Jacks. (2023) Barriers to Informational Support for Care Partners of People With Aphasia After Stroke. American Journal of Speech-Language Pathology 32:5, pages 2211-2231.
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Zhuo Wang, Xiaoping Dai & Chao Wu. (2022) Effect of an individualized digital coaching program on swallowing function in stroke patients. Acta Neurologica Belgica 123:3, pages 963-969.
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Nina R Sperber, Nathan Boucher, Jaime M Hughes, Rebecca Bruening, Leah L Zullig, Kasey Decosimo, Matthew Tucker, Leah A Christensen, Kelli D Allen, Susan N Hastings & Courtney H Van Houtven. (2023) Mandated Caregiver Training in the Veterans Health Administration: Caregiver Inquiry Informs National Dissemination. The Gerontologist 63:3, pages 534-544.
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Anne Forster, Seline Ozer, Richard Brindle, Lorna Barnard, Natasha Hardicre, Thomas F. Crocker, Marie Chenery, Lauren Moreau, Alan Wright, Louisa-Jane Burton, Suzanne Hartley, Claire Hulme, Bryony Dawkins, Ivana Holloway, Allan House, Jenny Hewison, Amanda Farrin, Ross Atkinson, Arvin Prashar, Nicola Cornwall, David Clarke, David Meads, Laetitia Schmitt, John Young, Josie Dickerson, Rebecca Hawkins, Rosemary McEachan, Matthew Fay, Christopher McKevitt, Robbie Foy, Gillian Carter, Gillian Richardson & Elaine Roberts. (2023) An intervention to support stroke survivors and their carers in the longer term: results of a cluster randomised controlled feasibility trial (LoTS2Care). Pilot and Feasibility Studies 9:1.
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Emmie Malewezi, Mary R. O’Brien, Katherine Knighting, Juliet Thomas & Barbara Jack. (2023) Development of the Carers’ Alert Thermometer for Stroke Family Caregivers (CAT-S): A Multiphase Action Research Study. Health & Social Care in the Community 2023, pages 1-14.
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Rachelle A. Martin, Julianne K. Johns, Jonathan J. Hackney, John A. Bourke, Timothy J. Young, Joanne L. Nunnerley, Deborah L. Snell, Sarah Derrett & Jennifer A. Dunn. (2023) Early Opportunities to Explore Occupational Identity Change: Qualitative Study of Return-To-Work Experiences After Stroke. Journal of Rehabilitation Medicine 55, pages jrm00363.
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Anu Berg, Tero Tapiola & Maija Hujala. (2023) Spouses’ need for information and satisfaction with the patient’s care and rehabilitation after stroke. Importance of depression and prescheduled follow-up. Patient Education and Counseling 107, pages 107589.
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Elton H. Lobo, Anne Frølich, Mohamed Abdelrazek, Lene J. Rasmussen, John Grundy, Patricia M. Livingston, Sheikh Mohammed Shariful Islam & Finn Kensing. (2023) Information, involvement, self-care and support—The needs of caregivers of people with stroke: A grounded theory approach. PLOS ONE 18:1, pages e0281198.
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Jiaqin Pei, Jingyu Meng, Yajuan Xue & Li Zhang. (2023) Disease Experience of Patients With Differentiated Thyroid Cancer at Different Phases Based on Timing It Right Framework. Cancer Nursing Publish Ahead of Print.
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Marijn Mulder, Corien Nikamp, Rinske Nijland, Erwin van Wegen, Erik Prinsen, Judith Vloothuis, Jaap Buurke & Gert Kwakkel. (2022) Can telerehabilitation services combined with caregiver-mediated exercises improve early supported discharge services poststroke? A study protocol for a multicentre, observer-blinded, randomized controlled trial. BMC Neurology 22:1.
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Amir Hosseini, Nasrin Sharifi, Fereshteh Dehghanrad & Ehsan Sharifipour. (2022) Effect of Telenursing on Caregiver Burden of Care and Incidence of some Complications in Patients with Acute Stroke Discharged from Neurological Wards: A Randomized Control Trial. Shiraz E-Medical Journal 23:8.
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Jamie Enoch, Christine Dickinson, Judith Potts & Ahalya Subramanian. (2022)
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Surabhi Sahay & Wan Wei. (2022) “Everything Is Changing, but I Am Not Alone”: Nurses’ Perceptions of Social Support during COVID-19. Sustainability 14:6, pages 3262.
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Mahmoud Ahmed Elsheikh, Michiko Moriyama, Md Moshiur Rahman, Mayumi Kako, Ahmed Hashem EL-Monshed, Mohamed Zoromba, Hamada Zehry, Maha Hazem Khalil, Abdel-Hady El-Gilany & Mostafa Amr. (2022) Effect of a tailored multidimensional intervention on the care burden among family caregivers of stroke survivors: a randomised controlled trial. BMJ Open 12:2, pages e049741.
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Wayne F.W. Chong, Leong Hwee Ng, Ringo M-H Ho, Gerald C.H. Koh, Helen Hoenig, David B. Matchar, Philip Yap, Narayanaswamy Venketasubramanian, Kelvin B. Tan, Chou Ning, Edward Menon, Hui Meng Chang, Deidre A. De Silva, Kim En Lee, Boon Yeow Tan, Sherry H.Y. Young, Yee Sien Ng, Tian Ming Tu, Yan Hoon Ang, Tseng Tsai Yeo, Reshma A. Merchant, Keng He Kong, Rajinder Singh, Yu Li Ng & Angela Cheong. (2021) Stroke Rehabilitation Use and Caregiver Psychosocial Health Profiles in Singapore: A Latent Profile Transition Analysis. Journal of the American Medical Directors Association 22:11, pages 2350-2357.e2.
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Sharad Tiwari, Ankur Joshi, Nirendra Rai & Parmeshwar Satpathy. (2021) Impact of Stroke on Quality of Life of Stroke Survivors and Their Caregivers: A Qualitative Study from India. Journal of Neurosciences in Rural Practice 12, pages 680-688.
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Carla M. SevinLeanne M. BoehmElizabeth HibbertAnthony J. BastinJames C. JacksonJoel MeyerTara QuasimRita N. BakhruAshley Montgomery-YatesAndrew SlackMary StillGiora NetzerMark E. MikkelsenTheodore J. IwashynaKimberley J. HainesJoanne McPeake. (2021) Optimizing Critical Illness Recovery: Perspectives and Solutions From the Caregivers of ICU Survivors. Critical Care Explorations 3:5, pages e0420.
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Elton H. Lobo, Anne Frølich, Lene J. Rasmussen, Patricia M. Livingston, John Grundy, Mohamed Abdelrazek & Finn Kensing. (2021) Understanding the Methodological Issues and Solutions in the Research Design of Stroke Caregiving Technology. Frontiers in Public Health 9.
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Anne Forster, Seline Ozer, Thomas F Crocker, Allan House, Jenny Hewison, Elaine Roberts, Josie Dickerson, Gill Carter, Claire Hulme, Matthew Fay, Gillian Richardson, Alan Wright, Christopher McKevitt, Rosemary McEachan, Robbie Foy, Lorna Barnard, Lauren Moreau, Arvin Prashar, David Clarke, Natasha Hardicre, Ivana Holloway, Richard Brindle, Jessica Hall, Louisa-Jane Burton, Ross Atkinson, Rebecca J Hawkins, Lesley Brown, Nicola Cornwall, Bryony Dawkins, David Meads, Laetitia Schmitt, Marie Fletcher, Michael Speed, Katie Grenfell, Suzanne Hartley, John Young & Amanda Farrin. (2021) Longer-term health and social care strategies for stroke survivors and their carers: the LoTS2Care research programme including cluster feasibility RCT. Programme Grants for Applied Research 9:3, pages 1-268.
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Tatiana Ferreira da Costa, Cláudia Jeane Lopes Pimenta, Maria Miriam Lima da Nóbrega, Maria das Graças Melo Fernandes, Inácia Sátiro Xavier de França, Maria de Lourdes de Farias Pontes & Kátia Neyla de Freitas Macedo Costa. (2020) Burden on caregivers of patients with sequelae of cerebrovascular accident. Revista Brasileira de Enfermagem 73:6.
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Alexandra M. J. Denham, Olivia Wynne, Amanda L. Baker, Neil J. Spratt, Alyna Turner, Parker Magin, Heidi Janssen, Coralie English, Madeleine Loh & Billie Bonevski. (2019) “This is our life now. Our new normal”: A qualitative study of the unmet needs of carers of stroke survivors. PLOS ONE 14:5, pages e0216682.
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Elizabeth Mary Heyworth-Thomas & Rosalind Jones. (2019) Social enterprise: Bridging the gap between the statutory and third sector. The International Journal of Entrepreneurship and Innovation 20:2, pages 80-89.
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Maureen Markle-Reid, Ruta Valaitis, Amy Bartholomew, Kathryn Fisher, Rebecca Fleck, Jenny Ploeg, Jennifer Salerno & Lehana Thabane. (2019) Feasibility and preliminary effects of an integrated hospital-to-home transitional care intervention for older adults with stroke and multimorbidity: A study protocol. Journal of Comorbidity 9, pages 2235042X1982824.
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Christopher Olusanjo Akosile, Tosin Olamilekan Banjo, Emmanuel Chiebuka Okoye, Peter Olanrewaju Ibikunle & Adesola Christiana Odole. (2018) Informal caregiving burden and perceived social support in an acute stroke care facility. Health and Quality of Life Outcomes 16:1.
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Marivic B. Torregosa, Rosemary Sada & Ilse Perez. (2018) Dealing with stroke: Perspectives from stroke survivors and stroke caregivers from an underserved Hispanic community. Nursing & Health Sciences 20:3, pages 361-369.
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Margaretha Norell Pejner & Elisabeth Brobeck. (2018) Couples in Need of Home Care Services: Experiences With Support From Care Professionals. Home Health Care Management & Practice 30:3, pages 116-121.
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Eline W. M. Scholten, Maria E. H. Tromp, Chantal F. Hillebregt, Sonja de Groot, Marjolijn Ketelaar, Johanna M. A. Visser-Meily & Marcel W. M. Post. (2018) Mental health and life satisfaction of individuals with spinal cord injury and their partners 5 years after discharge from first inpatient rehabilitation. Spinal Cord 56:6, pages 598-606.
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Samia Jardelle Costa de Freitas Maniva, Zuila Maria de Figueiredo Carvalho, Regina Kelly Guimarães Gomes, Rhanna Emanuela Fontenele Lima de Carvalho, Lorena Barbosa Ximenes & Consuelo Helena Aires de Freitas. (2018) Educational technologies for health education on stroke: an integrative review. Revista Brasileira de Enfermagem 71:suppl 4, pages 1724-1731.
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