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Research Papers

The paradox of normalization through rehabilitation: growing up and growing older with cerebral palsy

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Pages 1276-1283 | Received 02 Apr 2012, Accepted 01 Aug 2012, Published online: 15 Oct 2012

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Read on this site (12)

Hilde Aven Lillehaug, Gunvor Lilleholt Klevberg & Kristine Stadskleiv. (2023) Provision of augmentative and alternative communication interventions to Norwegian preschool children with cerebral palsy: are the right children receiving interventions?. Augmentative and Alternative Communication 39:4, pages 219-229.
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Manjula Manikandan, Elizabeth Cassidy, Gemma Cook, Cherry Kilbride, Claire Kerr, Aisling Walsh, Michael Walsh & Jennifer M. Ryan. (2023) Access, use and satisfaction with physiotherapy services among adults with cerebral palsy living in the United Kingdom and Ireland. Disability and Rehabilitation 45:13, pages 2160-2168.
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Jacinta R. Quartermaine, Tanya A. Rose, Megan L. Auld & Leanne M. Johnston. (2023) Factors impacting positive and negative participation of young people with cerebral palsy: a Delphi study of consumers and health professionals. Disability and Rehabilitation 0:0, pages 1-9.
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Sonali Shah, Julie Taylor & Caroline Bradbury-Jones. (2022) Access to and utilisation of sexual and reproductive healthcare for women and girls with cerebral palsy: a scoping review. Disability & Society 0:0, pages 1-21.
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Catharina Sjödahl Hammarlund, Jan Lexell & Christina Brogårdh. (2021) Growing up with a disability following paralytic poliomyelitis: experiences from persons with late effects of polio. Disability and Rehabilitation 43:7, pages 960-966.
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Dara V. Chan, Deborah E. Thorpe, Stewart G. Trost, Roslyn N. Boyd, Richard A. Faldowski, Lee Barber, Ilana Levin, Amanda Carroll & Nancy Bagatell. (2020) Novel approaches to measuring community integration in adults with cerebral palsy. Disability and Rehabilitation 42:18, pages 2653-2664.
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Beate Eltarvåg Gjesdal, Reidun Jahnsen, Prue Morgan, Arve Opheim & Silje Mæland. (2020) Walking through life with cerebral palsy: reflections on daily walking by adults with cerebral palsy. International Journal of Qualitative Studies on Health and Well-being 15:1.
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Gerasimos Taflampas, Cherry Kilbride, Wendy Levin, Grace Lavelle & Jennifer M. Ryan. (2018) Interventions to Improve or Maintain Lower-Limb Function Among Ambulatory Adolescents with Cerebral Palsy: A Cross-Sectional Survey of Current Practice in the UK. Physical & Occupational Therapy In Pediatrics 38:4, pages 355-369.
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Stella L. Ng, Lorelei Lingard, Kathryn Hibbert, Sandra Regan, Shanon Phelan, Rosamund Stooke, Christine Meston, Catherine Schryer, Madhushani Manamperi & Farah Friesen. (2015) Supporting children with disabilities at school: implications for the advocate role in professional practice and education. Disability and Rehabilitation 37:24, pages 2282-2290.
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Shanon K. Phelan, Barbara E. Gibson & F. Virginia Wright. (2015) What is it like to walk with the help of a robot? Children’s perspectives on robotic gait training technology. Disability and Rehabilitation 37:24, pages 2272-2281.
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Yani Hamdani, Bhavnita Mistry & Barbara E. Gibson. (2015) Transitioning to adulthood with a progressive condition: best practice assumptions and individual experiences of young men with Duchenne muscular dystrophy. Disability and Rehabilitation 37:13, pages 1144-1151.
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Shanon K. Phelan, Virginia Wright & Barbara E. Gibson. (2014) Representations of disability and normality in rehabilitation technology promotional materials. Disability and Rehabilitation 36:24, pages 2072-2079.
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Articles from other publishers (21)

Fabian Moll, Axel Kessel, Anna Bonetto, Johanna Stresow, Monika Herten, Marcel Dudda & Jens Adermann. (2023) Safety and Feasibility of Robot-assisted Gait Training in Adults with Cerebral Palsy in an Inpatient Setting – an Observational Study. Journal of Developmental and Physical Disabilities 35:6, pages 1091-1106.
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Louise Abildgaard Møller, Bente Martinsen, Ulla Werlauff & Pia Dreyer. (2021) Participation amongst people ageing with neuromuscular disease: a qualitative study of lived experiences. Nursing Open 9:6, pages 2675-2682.
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Manjula Manikandan, Claire Casey, Anne Doyle, Claire Kerr, Michael Walsh, Aisling Walsh & Jennifer M Ryan. (2022) Use of health services and unmet needs among adults with cerebral palsy in Ireland. Developmental Medicine & Child Neurology 64:10, pages 1270-1280.
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Corinne Ammann-Reiffer, Andrina Kläy & Urs Keller. (2022) Virtual Reality as a Therapy Tool for Walking Activities in Pediatric Neurorehabilitation: Usability and User Experience Evaluation. JMIR Serious Games 10:3, pages e38509.
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Corinne Ammann-Reiffer & Judith V. Graser. (2022) Walking activities beyond gait training: Priorities in everyday life for parents and adolescents in pediatric neurorehabilitation. Journal of Pediatric Rehabilitation Medicine 15:2, pages 311-321.
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Manjula Manikandan, Claire Kerr, Grace Lavelle, Michael Walsh, Aisling Walsh & Jennifer M Ryan. (2021) Health service use among adults with cerebral palsy: a mixed‐methods systematic review. Developmental Medicine & Child Neurology 64:4, pages 429-446.
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Kristine Stadskleiv, Marleen R. van Walsem, Guro L. Andersen, Lena Bergqvist, Louise Bøttcher, Klaus Christensen, David Heyerdahl, Sandra Julsen Hollung, Helene Høye, Reidun Jahnsen, Gunvor L. Klevberg, Barbro Lindquist, Henrik Passmark, Per-Ola Rike, Elisabet Rodby-Bousquet & Ann I. Alriksson-Schmidt. (2021) Systematic Monitoring of Cognition for Adults With Cerebral Palsy—The Rationale Behind the Development of the CPCog-Adult Follow-Up Protocol. Frontiers in Neurology 12.
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Helene Høye, Reidun Birgitta Jahnsen, Marianne Løvstad, Jeanette Folkvord Hartveit, Hilde Sørli, Sveinung Tornås & Grethe Månum. (2020) A Mindfulness-Based Stress Reduction Program via Group Video Conferencing for Adults With Cerebral Palsy – A Pilot Study. Frontiers in Neurology 11.
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Delphine Labbé, W. Ben Mortenson, Paula W. Rushton, Louise Demers & William C. Miller. (2018) Mobility and participation among ageing powered wheelchair users: using a lifecourse approach. Ageing and Society 40:3, pages 626-642.
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Jennifer M Ryan, Mark D Peterson, Nicola Ryan, Kimberley J Smith, Neil E O'connell, Silvia Liverani, Nana Anokye, Christina Victor & Elizabeth Allen. (2019) Mortality due to cardiovascular disease, respiratory disease, and cancer in adults with cerebral palsy. Developmental Medicine & Child Neurology 61:8, pages 924-928.
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You Gyoung Yi, Se Hee Jung & Moon Suk Bang. (2019) Emerging Issues in Cerebral Palsy Associated With Aging: A Physiatrist Perspective. Annals of Rehabilitation Medicine 43:3, pages 241-249.
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Kendra Liljenquist, Margaret E O’Neil & Kristie F Bjornson. (2018) Utilization of Physical Therapy Services During Transition for 
Young People With Cerebral Palsy: A Call for Improved Care Into Adulthood. Physical Therapy 98:9, pages 796-803.
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Jennifer M Ryan, Elizabeth Allen, John Gormley, Edward A Hurvitz & Mark D Peterson. (2018) The risk, burden, and management of non-communicable diseases in cerebral palsy: a scoping review. Developmental Medicine & Child Neurology 60:8, pages 753-764.
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Elizabeth Newbronner & Karl Atkin. (2018) The changing health of Thalidomide survivors as they age: A scoping review. Disability and Health Journal 11:2, pages 184-191.
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Bente Martinsen & Pia Dreyer. (2016) Ageing with Muscular Disease. The Open Nursing Journal 10:1, pages 131-138.
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Jonathan Tolentino & Gregg Talente. 2016. Care of Adults with Chronic Childhood Conditions. Care of Adults with Chronic Childhood Conditions 67 85 .
Sarah Winter. 2016. Health Care for People with Intellectual and Developmental Disabilities across the Lifespan. Health Care for People with Intellectual and Developmental Disabilities across the Lifespan 931 948 .
Laura R. Moll, Cheryl A. Cott & Stephanie Nixon. 2016. Handbook of Qualitative Health Research for Evidence-Based Practice. Handbook of Qualitative Health Research for Evidence-Based Practice 411 425 .
Jennifer M. RyanCuisle FordeJuliette M. HusseyJohn Gormley. (2015) Comparison of Patterns of Physical Activity and Sedentary Behavior Between Children With Cerebral Palsy and Children With Typical Development. Physical Therapy 95:12, pages 1609-1616.
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Yiouli P. Ktena, Scott M. Paul, Natalie S. Hauser, Jennifer L. Sloan, Andrea Gropman, Irini Manoli & Charles P. Venditti. (2015) Delineating the spectrum of impairments, disabilities, and rehabilitation needs in methylmalonic acidemia (MMA). American Journal of Medical Genetics Part A 167:9, pages 2075-2084.
Crossref
Allan Colver, Charles Fairhurst & Peter O D Pharoah. (2014) Cerebral palsy. The Lancet 383:9924, pages 1240-1249.
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