1,908
Views
45
CrossRef citations to date
0
Altmetric
Research Papers

Sorrow, coping and resiliency: parents of children with cerebral palsy share their experiences

, , &
Pages 1447-1452 | Received 24 Apr 2012, Accepted 01 Oct 2012, Published online: 20 Nov 2012

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (7)

Corrine Dickinson, Jeanie Sheffield, Catherine Mak, Roslyn N. Boyd & Koa Whittingham. (2023) When a baby is diagnosed at high risk of cerebral palsy: understanding and meeting parent need. Disability and Rehabilitation 45:24, pages 4016-4024.
Read now
Nataya Branjerdporn, Katherine Benfer, Emma Crawford, Jenny Ziviani, Roslyn N. Boyd & Leanne Sakzewski. (2022) Efficacy of early interventions with active parent implementation in low-and-Middle income countries for young children with cerebral palsy to improve child development and parent mental health outcomes: a systematic review. Disability and Rehabilitation 44:23, pages 6969-6983.
Read now
Laura J. McMillan, Maria C. McCarthy, Frank Muscara, Vicki A. Anderson, Robyn D. Walser, Jenny O’Neill, Anica Dimovski, Meredith Rayner, J. M. Nicholson, S. J. C. Hearps, Paul A. Read, Elle Morrison, Kaitlyn McCabe & Katrina Williams. (2022) Feasibility and acceptability of an online acceptance and commitment therapy group for parents caring for a child with cerebral palsy. Journal of Family Studies 28:4, pages 1338-1354.
Read now
Alison Moorcroft, Nerina Scarinci & Carly Meyer. (2019) Speech pathologist perspectives on the acceptance versus rejection or abandonment of AAC systems for children with complex communication needs. Augmentative and Alternative Communication 35:3, pages 193-204.
Read now
Marilyn Ballantyne, Stephanie Bernardo, Aubrey Sozer, Taryn Orava, Amy C McPherson, Paige Church & Darcy Fehlings. (2019) A whole new world: a qualitative investigation of parents’ experiences in transitioning their preterm child with cerebral palsy to developmental/rehabilitation services. Developmental Neurorehabilitation 22:2, pages 87-97.
Read now
Chrisma Pretorius & Jacqui Steadman. (2018) Barriers and Facilitators to Caring for a Child with Cerebral Palsy in Rural Communities of the Western Cape, South Africa. Child Care in Practice 24:4, pages 413-430.
Read now
E. Björquist, E. Nordmark & I. Hallström. (2016) Parents’ Experiences of Health and Needs When Supporting Their Adolescents With Cerebral Palsy During Transition to Adulthood. Physical & Occupational Therapy In Pediatrics 36:2, pages 204-216.
Read now

Articles from other publishers (38)

Eline N. Desimpelaere, Bart Soenens, Peter Prinzie, Joachim Waterschoot, Maarten Vansteenkiste, Sofie Morbée, Charlotte Schrooyen & Sarah S. W. De Pauw. (2023) Parents’ Stress, Parental Burnout, and Parenting Behavior during the COVID-19 Pandemic: Comparing Parents of Children with and without Complex Care Needs. Journal of Child and Family Studies 32:12, pages 3681-3696.
Crossref
Maggie Dumsile Dlamini, Ying-Ju Chang & Tram Thi Bich Nguyen. (2023) Caregivers' experiences of having a child with cerebral palsy. A meta-synthesis. Journal of Pediatric Nursing 73, pages 157-168.
Crossref
Christina Engel Hoei-Hansen, Lene Weber, Mette Johansen, Rebecca Fabricius, Jonas Kjeldbjerg Hansen, Anne-Cathrine F. Viuff, Gitte Rønde, Gitte Holst Hahn, Elsebet Østergaard, Morten Duno, Vibeke Andrée Larsen, Camilla Gøbel Madsen, Katrine Røhder, Ann-Kristin Gunnes Elvrum, Britt Laugesen, Melanie Ganz, Kathrine Skak Madsen, Maria Willerslev-Olsen, Nanette Mol Debes, Jan Christensen, Robin Christensen & Gija Rackauskaite. (2023) Cerebral Palsy – Early Diagnosis and Intervention Trial: protocol for the prospective multicentre CP-EDIT study with focus on diagnosis, prognostic factors, and intervention. BMC Pediatrics 23:1.
Crossref
Ana Guimarães, Armanda Pereira, André Oliveira, Sílvia Lopes, Ana Rita Nunes, Cleia Zanatta & Pedro Rosário. (2023) Parenting in Cerebral Palsy: Understanding the Perceived Challenges and Needs Faced by Parents of Elementary School Children. International Journal of Environmental Research and Public Health 20:5, pages 3811.
Crossref
Catherine Morgan, Nadia Badawi & Iona Novak. (2023) “A Different Ride”: A Qualitative Interview Study of Parents’ Experience with Early Diagnosis and Goals, Activity, Motor Enrichment (GAME) Intervention for Infants with Cerebral Palsy. Journal of Clinical Medicine 12:2, pages 583.
Crossref
Lauren Treat, David Flemig & Lindsay Ragsdale. 2023. Evidence-Based Practice of Palliative Medicine. Evidence-Based Practice of Palliative Medicine 494 506 .
Fabrizia Festante, Camilla Antonelli, Sara Mazzotti & Andrea Guzzetta. 2023. Family-Centered Care in Childhood Disability. Family-Centered Care in Childhood Disability 149 192 .
Silja Berg Kårstad, Åse Bjørseth, Johanna Lindstedt, Anne Synnøve Brenne, Helene Steihaug & Ann-Kristin Gunnes Elvrum. (2022) Parental Coping, Representations, and Interactions with Their Infants at High Risk of Cerebral Palsy. Journal of Clinical Medicine 12:1, pages 277.
Crossref
Nancy J. Wise & Patricia A. Gellasch. (2022) Identification to Intervention. Nursing Research 71:6, pages 441-449.
Crossref
Kimberly Aguillard, Gretchen Gemeinhardt, Sheryl McCurdy, Vanessa Schick & Rosemary Hughes. (2021) “Helping Somebody Else Has Helped Me Too”: Resilience in Rural Women With Disabilities With Experiences of Interpersonal Violence. Journal of Interpersonal Violence 37:17-18, pages NP15594-NP15619.
Crossref
Ashley Harry, Catherine Johnston, Sarah Twomey & Luke Wakely. (2022) A Survey of Parents' and Carers' Perceptions of Parenting a Child With Developmental Dysplasia of the Hip. Pediatric Physical Therapy 34:3, pages 328-333.
Crossref
Umme Khan, Rose Watson, Janice Elizabeth Pearse, Louise Irwin, Tim Rapley & Anna Purna Basu. (2022) Grappling with uncertainty – Experiences of parents of infants following perinatal stroke. Research in Developmental Disabilities 124, pages 104201.
Crossref
Meg Smith & Julie Blamires. (2022) Mothers' experience of having a child with cerebral palsy. A systematic review. Journal of Pediatric Nursing 64, pages 64-73.
Crossref
Laura Miller, Grace Nickson, Kinga Pozniak, Debra Khan, Christine Imms, Jenny Ziviani, Andrea Cross, Rachel Martens, Vicki Cavalieros & Peter Rosenbaum. (2022) ENabling VISions and Growing Expectations (ENVISAGE): Parent reviewers’ perspectives of a co-designed program to support parents raising a child with an early-onset neurodevelopmental disability. Research in Developmental Disabilities 121, pages 104150.
Crossref
K.A. Kim & R.V. Kadirov. (2022) Parental Stress and Bringing up a Child with Cerebral Palsy: A Foreign Studies Review. Clinical Psychology and Special Education Клиническая и специальная психология 11:4, pages 1-29.
Crossref
Assimina Tsibidaki. (2020) Children with cerebral palsy: Family and parent demographic characteristics and family strengths in Greece and Italy. Journal of Health Psychology 26:12, pages 2071-2083.
Crossref
A.A. BRUYKOV. (2021) Exercise-related changes of the physiological indicators in children with different forms of spastic cerebral palsy. AVICENNA BULLETIN 23:2, pages 201-207.
Crossref
Kim‐Michelle Gilson, Elise Davis, Joan Gains, Susan Brunton, Katrina Williams & Dinah Reddihough. (2021) Experiences and barriers to accessing mental health support in mothers of children with a disability. Child: Care, Health and Development 47:5, pages 697-704.
Crossref
Lisa M. Dieleman, Bart Soenens, Peter Prinzie, Lana De Clercq, Els Ortibus & Sarah S.W. De Pauw. (2020) Daily parenting of children with cerebral palsy: The role of daily child behavior, parents’ daily psychological needs, and mindful parenting. Development and Psychopathology 33:1, pages 184-200.
Crossref
Ian Thiruchelvam ElangkovanShefaly Shorey. (2020) Experiences and Needs of Parents Caring for Children with Cerebral Palsy: A Systematic Review. Journal of Developmental & Behavioral Pediatrics 41:9, pages 730-739.
Crossref
Koa Whittingham, Jeanie Sheffield, Catherine Mak, Corrine Dickinson & Roslyn N Boyd. (2020) Early Parenting Acceptance and Commitment Therapy ‘Early PACT’ for parents of infants with cerebral palsy: a study protocol of a randomised controlled trial. BMJ Open 10:10, pages e037033.
Crossref
Corrine Dickinson, Koa Whittingham, Jeanie Sheffield, Jane Wotherspoon & Roslyn N Boyd. (2020) Efficacy of interventions to improve psychological adjustment for parents of infants with or at risk of neurodevelopmental disability: A systematic review. Infant Mental Health Journal 41:5, pages 697-722.
Crossref
Amy Turriff, Rosalie Nolen, Celeste D'Amanda, Barbara Biesecker, Catherine Cukras & Paul A. Sieving. (2020) “There Are Hills and Valleys”: Experiences of Parenting a Son With X-Linked Retinoschisis. American Journal of Ophthalmology 212, pages 98-104.
Crossref
Yongli Wang, Zhaoming Huang & Feng Kong. (2017) Parenting stress and life satisfaction in mothers of children with cerebral palsy: The mediating effect of social support. Journal of Health Psychology 25:3, pages 416-425.
Crossref
Heidi Fritz & Carrie Sewell-Roberts. 2020. Cerebral Palsy. Cerebral Palsy 515 545 .
Joana D.A. Kyeremateng, Anthony Edusei, Joslin A. Dogbe, Maxwell P. Opoku, William Nketsia, Charles Hammond & Sally A. Afriyie. (2019) Experiences of primary caregivers of children with cerebral palsy across the trajectory of diagnoses in Ghana. African Journal of Disability 8.
Crossref
Lisa M. Dieleman, Roos Van Vlaenderen, Peter Prinzie & Sarah S.W. De Pauw. (2019) Parents’ Need-Related Experiences When Raising an Adolescent with Cerebral Palsy. Advances in Neurodevelopmental Disorders 3:2, pages 204-219.
Crossref
Koa Whittingham & Lisa W. Coyne. 2019. Acceptance and Commitment Therapy. Acceptance and Commitment Therapy 187 219 .
Claudia Corti, Francesca Pergolizzi, Laura Vanzin, Giulia Cargasacchi, Laura Villa, Marco Pozzi & Massimo Molteni. (2018) Acceptance and Commitment Therapy-Oriented Parent-Training for Parents of Children with Autism. Journal of Child and Family Studies 27:9, pages 2887-2900.
Crossref
Anna McCormick. 2018. Cerebral Palsy. Cerebral Palsy 335 341 .
Heidi Fritz & Carrie Sewell-Roberts. 2018. Cerebral Palsy. Cerebral Palsy 1 31 .
Hila Avieli & Tova Band-Winterstein. (2017) “What Didn’t I Do for this Child?”: Parents’ Retrospective Construction of their Child’s CP Diagnostic Process. Journal of Developmental and Physical Disabilities 29:3, pages 385-405.
Crossref
Koa Whittingham, Matthew R. Sanders, Lynne McKinlay & Roslyn N. Boyd. (2016) Parenting Intervention Combined With Acceptance and Commitment Therapy: A Trial With Families of Children With Cerebral Palsy. Journal of Pediatric Psychology 41:5, pages 531-542.
Crossref
Liora Findler & Orit Taubman – Ben-AriLiora Findler. 2016. Grandparents of Children with Disabilities. Grandparents of Children with Disabilities 39 67 .
Tjhin Wiguna, Raden Irawati Ismail, Setyawati R. Noorhana, Fransiska Kaligis, Arundhati Nugrahaning Aji & Myron L. Belfer. (2015) Family responses to a child with schizophrenia: An Indonesian experience. Asian Journal of Psychiatry 18, pages 66-69.
Crossref
Yoon-Joo Lee, Hye Jun Park & Susan L. Recchia. (2015) Embracing Each Other and Growing Together: Redefining the Meaning of Caregiving a Child with Disabilities. Journal of Child and Family Studies 24:12, pages 3662-3675.
Crossref
Manuel Fernández-Alcántara, M. Paz García-Caro, Carolina Laynez-Rubio, M. Nieves Pérez-Marfil, Celia Martí-García, Ángela Benítez-Feliponi, Marta Berrocal-Castellano & Francisco Cruz-Quintana. (2015) Feelings of loss in parents of children with infantile cerebral palsy. Disability and Health Journal 8:1, pages 93-101.
Crossref
Taryn B Bemister, Brian L Brooks, Richard H Dyck & Adam Kirton. (2014) Parent and family impact of raising a child with perinatal stroke. BMC Pediatrics 14:1.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.