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Disability and Rehabilitation Volume 36, 2014 - Issue 11
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Research Article

Community participation for girls and women living with Rett syndrome

Jaimi AndrewsSchool of Exercise, Biomedical and Health Sciences, Edith Cowan University Perth, WesternAustraliaAustralia;Centre for Child Health Research, Telethon Institute for Child Health Research, The University of Western Australia Western AustraliaAustralia
,
Helen LeonardCentre for Child Health Research, Telethon Institute for Child Health Research, The University of Western Australia Western AustraliaAustraliaCorrespondence[email protected]
,
Geoffrey C. HammondCentre for Child Health Research, Telethon Institute for Child Health Research, The University of Western Australia Western AustraliaAustralia
,
Sonya GirdlerSchool of Exercise, Biomedical and Health Sciences, Edith Cowan University Perth, WesternAustraliaAustralia;Centre for Child Health Research, Telethon Institute for Child Health Research, The University of Western Australia Western AustraliaAustralia
,
Ruwani RajapaksaCentre for Child Health Research, Telethon Institute for Child Health Research, The University of Western Australia Western AustraliaAustralia
,
Katherine BathgateCentre for Child Health Research, Telethon Institute for Child Health Research, The University of Western Australia Western AustraliaAustralia
&
Jenny DownsCentre for Child Health Research, Telethon Institute for Child Health Research, The University of Western Australia Western AustraliaAustralia;School of Physiotherapy and Curtin Health Innovation Research Institute, Curtin University of Technology PerthAustralia
 show all
Pages 894-899 | Received 24 Dec 2012, Accepted 05 Jun 2013, Published online: 25 Jul 2013

Citations (12)

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Ditte Kruse Gyldhof, Michelle Stahlhut & Eva Ejlersen Waehrens. (2022) Participation and engagement in family activities among girls and young women with Rett syndrome living at home with their parents – a cross-sectional study. Disability and Rehabilitation 44:14, pages 3650-3660.
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Nora Shields, Amy Epstein, Peter Jacoby, Rachel Kim, Helen Leonard, Dinah Reddihough, Andrew Whitehouse, Nada Murphy & Jenny Downs. (2022) Modifiable child and caregiver factors that influence community participation among children with Down syndrome. Disability and Rehabilitation 44:4, pages 600-607.
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Beate Krieger, Barbara Piškur, Christina Schulze, Anna Beurskens & Albine Moser. (2021) Environmental pre-requisites and social interchange: the participation experience of adolescents with autism spectrum disorder in Zurich. Disability and Rehabilitation 43:26, pages 3789-3802.
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Mari Wold Henriksen, Hilde Breck, Stephen von Tetzchner, Benedicte Paus & Ola H. Skjeldal. (2020) Medical Issues in Adults with Rett Syndrome – A National Survey. Developmental Neurorehabilitation 23:2, pages 106-112.
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Ellen M. Walker, Frances Crawford & Helen Leonard. (2014) Community participation: Conversations with parent-carers of young women with Rett syndrome. Journal of Intellectual & Developmental Disability 39:3, pages 243-252.
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Articles from other publishers (7)

Wanda J. Mahoney, Meghan G. Blaskowitz & Khalilah R. Johnson. (2021) Occupational Therapy–Related Assessments for Adults With Intellectual Disability: A Scoping Review. The American Journal of Occupational Therapy 75:3.
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Elisa Pari, Francesca Cozzi, Marina Luisa Rodocanachi Roidi, Francesca Grange, Kumiko Toshimori & Enrico Ripamonti. (2020) Parenting girls with Rett syndrome: An investigation on self‐perceived levels of stress. Journal of Applied Research in Intellectual Disabilities 33:6, pages 1348-1356.
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Eric S. Semmel, Michelle E. Fox, Sabrina D. Na, Rella Kautiainen, Robert D. Latzman & Tricia Z. King. (2019) Caregiver- and Clinician-Reported Adaptive Functioning in Rett Syndrome: a Systematic Review and Evaluation of Measurement Strategies. Neuropsychology Review 29:4, pages 465-483.
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Michelle Stahlhut, Bente Appel Esbensen, Jane Lunding Larsen, Anne-Marie Bisgaard, Jenny Downs & Eva Nordmark. (2018) Facilitators and Barriers of Participation in “Uptime” Activities in Girls and Women With Rett Syndrome: Perspectives From Parents and Professionals. Qualitative Health Research 29:4, pages 609-619.
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Beate Krieger, Barbara Piškur, Christina Schulze, Uta Jakobs, Anna Beurskens & Albine Moser. (2018) Supporting and hindering environments for participation of adolescents diagnosed with autism spectrum disorder: A scoping review. PLOS ONE 13:8, pages e0202071.
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Christine Bigby, Sian Anderson & Nadine Cameron. (2018) Identifying conceptualizations and theories of change embedded in interventions to facilitate community participation for people with intellectual disability: A scoping review. Journal of Applied Research in Intellectual Disabilities 31:2, pages 165-180.
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Gabriel M. Ronen & Peter L. Rosenbaum. (2016) Rett Syndrome Turns 50: Themes From a Chronicle. Pediatric Neurology 61, pages 3-10.
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