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Britt-Marie Eriksson, Marie Peny-Dahlstrand, Birgitha Archenholtz, Johanna Weichbrodt & Git Lidman. (2023) Intervention with hand orthosis: experience from boys with Duchenne muscular dystrophy and their parents. Disability and Rehabilitation 0:0, pages 1-8.
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Matthew F. Jacques, Gladys L. Onambele-Pearson, Neil D. Reeves, Georgina K. Stebbings, Ellen A. Dawson, Rachel C. Stockley, Bryn Edwards & Christopher I. Morse. (2022) 12-Month changes of muscle strength, body composition and physical activity in adults with dystrophinopathies. Disability and Rehabilitation 44:10, pages 1847-1854.
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Camila Miliani Capelini, Talita Dias da Silva, James Tonks, Suzanna Watson, Mayra Priscila Boscolo Alvarez, Lilian Del Ciello de Menezes, Francis Meire Favero, Fátima Aparecida Caromano, Thais Massetti & Carlos Bandeira de Mello Monteiro. (2017) Improvements in motor tasks through the use of smartphone technology for individuals with Duchenne muscular dystrophy. Neuropsychiatric Disease and Treatment 13, pages 2209-2217.
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Joyce Martini, Michele Emy Hukuda, Fátima Aparecida Caromano, Francis Meire Favero, Carolina Fu & Mariana Callil Voos. (2015) The clinical relevance of timed motor performance in children with Duchenne muscular dystrophy. Physiotherapy Theory and Practice 31:3, pages 173-181.
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Keysy K. S. Andrade, Luana A. Soares, Caik C. Macedo, Nelcilaine R. Bispo, Ricardo R. Sousa Junior, Vinícius C. Oliveira, Hércules R. Leite & Thaís P. Gaiad. (2022) Qualidade dos instrumentos que avaliam Atividade e Participação de pessoas com distrofia muscular: uma revisão sistemática de medidas de resultado relatadas pelos pacientes. Developmental Medicine & Child Neurology 64:12.
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Keysy K. S. Andrade, Luana A. Soares, Caik C. Macedo, Nelcilaine R. Bispo, Ricardo R. Sousa Junior, Vinícius C. Oliveira, Hércules R. Leite & Thaís P. Gaiad. (2022) Quality of instruments assessing activity and participation of people with muscular dystrophy: A systematic review of participant‐reported outcome measures. Developmental Medicine & Child Neurology 64:12, pages 1453-1461.
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Dominik Gaser, Christiane Peters, Renate Oberhoffer-Fritz, Miriam Götte, Tobias Feuchtinger, Irene Schmid, Bernhard Haller, Irene von Luettichau & Sabine Kesting. (2022) Effects of strength exercise interventions on activities of daily living, motor performance, and physical activity in children and adolescents with leukemia or non-Hodgkin lymphoma: Results from the randomized controlled ActiveADL Study. Frontiers in Pediatrics 10.
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Rebecca Kern, Kimberly Carvell, Apeksha Gupta & Sumit Verma. (2022) Seated Outcome Measures in Children With Duchenne Muscular Dystrophy. Pediatric Physical Therapy 34:3, pages 375-380.
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Maya C. Ayoub, Julianna Rava, Ashley Lewis Hunter & Alice A. Kuo. (2022) Facilitators and Barriers to Care for Patients with Disabilities in Primary Pediatrics. Pediatric Annals 51:6.
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Milica LAZOVIC, Dejan NIKOLIC, François C. BOYER, Kristian BORG, Maria G. CERAVOLO, Mauro ZAMPOLINI & Carlotte KIEKENS. (2021) Evidence based position paper on Physical and Rehabilitation Medicine practice for people with muscular dystrophies. European Journal of Physical and Rehabilitation Medicine 57:6.
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Valeria Longatelli, Alberto Antonietti, Emilia Biffi, Eleonora Diella, Maria Grazia D’Angelo, Mauro Rossini, Franco Molteni, Marco Bocciolone, Alessandra Pedrocchi & Marta Gandolla. (2021) User-centred assistive SystEm for arm Functions in neUromuscuLar subjects (USEFUL): a randomized controlled study. Journal of NeuroEngineering and Rehabilitation 18:1.
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Saskia L. S. Houwen‐van Opstal, Lotte Heutinck, Merel Jansen, Yvonne D. Krom, Edith H. C. Cup, Jos G. M. Hendriksen, Michel A. A. P. Willemsen, Jan J. G. M. Verschuuren, Erik H. Niks & Imelda J. M. de Groot. (2021)
Occurrence of symptoms in different stages of
Duchenne
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Helena Young, Paula Bray, Kausik McKinnon, Joshua Burns & Anita Bundy. (2021) Everyday Life Participation Using Powered Wheelchair Standing Devices by Boys With DMD. OTJR: Occupation, Participation and Health 41:3, pages 175-184.
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Patrizio Ripari, Gabriella Di GiacintoGianluca di Sante & Giovanni Barassi. (2021) Sports medicine in disabilities. Journal of Advanced Health Care, pages 66-68.
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Philip A. Powell, Jill Carlton, Helen Buckley Woods & Paolo Mazzone. (2020) Measuring quality of life in Duchenne muscular dystrophy: a systematic review of the content and structural validity of commonly used instruments. Health and Quality of Life Outcomes 18:1.
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Matthew F. Jacques, Rachel C. Stockley, Gladys L. Onambele-Pearson, Neil D. Reeves, Georgina K. Stebbings, Ellen A. Dawson, Lynne Groves & Christopher I. Morse. (2019) Quality of life in adults with muscular dystrophy. Health and Quality of Life Outcomes 17:1.
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Jasmine Hoskens, Nathalie Goemans, Hilde Feys, Liesbeth De Waele, Marleen Van den Hauwe & Katrijn Klingels. (2019) Normative data and percentile curves for the three-minute walk test and timed function tests in healthy Caucasian boys from 2.5 up to 6 years old. Neuromuscular Disorders 29:8, pages 585-600.
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Liang Yin, Zhi-ying Xie, Hai-yan Xu, Sui-sheng Zheng, Zhao-xia Wang, Jiang-xi Xiao & Yun Yuan. (2019) T2 Mapping and Fat Quantification of Thigh Muscles in Children with Duchenne Muscular Dystrophy. Current Medical Science 39:1, pages 138-145.
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Lesley Uttley, Jill Carlton, Helen Buckley Woods & John Brazier. (2018) A review of quality of life themes in Duchenne muscular dystrophy for patients and carers. Health and Quality of Life Outcomes 16:1.
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Laura E. CaseSusan D. ApkonMichelle EagleAnn GulyasLaura JuelDennis Matthews, Robbin A. NewtonHelen F. Posselt. (2018) Rehabilitation Management of the Patient With Duchenne Muscular Dystrophy. Pediatrics 142:Supplement_2, pages S17-S33.
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Alexandra P. Q. C. Araujo, Flavia Nardes, Clarisse P. D. D. Fortes, Jaqueline A. Pereira, Marcos F. Rebel, Cristina M. Dias, Rita de Cassia G. A. Barbosa, Mauro V. R. Lopes, Ana Lucia Langer, Flavio R. Neves & Edna Fátima Reis. (2018) Brazilian consensus on Duchenne muscular dystrophy. Part 2: rehabilitation and systemic care. Arquivos de Neuro-Psiquiatria 76:7, pages 481-489.
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Joyce Martini, Fátima Aparecida Caromano, Eduardo Vital Carvalho, Priscila Albuquerque Goya, Rosana Massae Hayasaka, Silvia Nakazune, Francis Meire Fávero & Mariana Callil Voos. (2017) Boys With Duchenne Muscular Dystrophy: 1-Year Locomotor Changes in Relation to a Control Group. Perceptual and Motor Skills 125:1, pages 40-56.
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S. Ryder, R. M. Leadley, N. Armstrong, M. Westwood, S. de Kock, T. Butt, M. Jain & J. Kleijnen. (2017) The burden, epidemiology, costs and treatment for Duchenne muscular dystrophy: an evidence review. Orphanet Journal of Rare Diseases 12:1.
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Hiroyuki Awano, Masaaki Matsumoto, Masashi Nagai, Taku Shirakawa, Nobuhiro Maruyama, Kazumoto Iijima, Yo-ichi Nabeshima & Masafumi Matsuo. (2017) Diagnostic and clinical significance of the titin fragment in urine of Duchenne muscular dystrophy patients. Clinica Chimica Acta.
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A. Fink, B. Gebhard, S. Erdwiens, L. Haddenhorst & S. Nowak. (2016) Reliability of the German version of the Children's Assessment of Participation and Enjoyment (CAPE) and Preferences for Activities of Children (PAC). Child: Care, Health and Development 42:5, pages 683-691.
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Consuelo M. Kreider, Roxanna M. Bendixen, Mary Ellen Young, Stephanie M. Prudencio, Christopher McCarty & William C. Mann. (2015) Social networks and participation with others for youth with learning, attention, and autism spectrum disorders. Canadian Journal of Occupational Therapy 83:1, pages 14-26.
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C. Boulay & G. Finidori. (2015) Aspects fonctionnels et orthop?diques des dystrophinopathies. Archives de P?diatrie 22:12, pages 12S42-12S50.
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Ipek Alemdaroğlu, Ayşe Karaduman, Öznur Tunca Yilmaz & Haluk Topaloğlu. (2015) Different types of upper extremity exercise training in Duchenne muscular dystrophy: Effects on functional performance, strength, endurance, and ambulation. Muscle & Nerve 51:5, pages 697-705.
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Melissa A. Goddard, Emily Burlingame, Alan H. Beggs, Anna Buj-Bello, Martin K. Childers, Anthony P. Marsh & Valerie E. Kelly. (2014) Gait characteristics in a canine model of X-linked myotubular myopathy. Journal of the Neurological Sciences 346:1-2, pages 221-226.
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