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Research Article

Strategies that facilitate participation in family activities of children and adolescents with profound intellectual and multiple disabilities: parents’ and personal assistants’ experiences

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Pages 2169-2177 | Received 01 Apr 2013, Accepted 12 Feb 2014, Published online: 04 Mar 2014

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Read on this site (5)

Torsten Hammann, Jakob Valič, Gašper Slapničar & Mitja Luštrek. (2022) The missing piece. Physiological data as a factor for identifying emotions of people with profound intellectual and multiple disabilities. International Journal of Developmental Disabilities 0:0, pages 1-17.
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Kasper Kruithof, Erik Olsman, Appolonia Nieuwenhuijse & Dick Willems. (2022) “I hope I’ll outlive him”: A qualitative study of parents’ concerns about being outlived by their child with profound intellectual and multiple disabilities. Journal of Intellectual & Developmental Disability 47:2, pages 107-117.
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A.M. Nieuwenhuijse, D.L. Willems, J.B. van Goudoever & E. Olsman. (2022) The perspectives of professional caregivers on quality of life of persons with profound intellectual and multiple disabilities: a qualitative study. International Journal of Developmental Disabilities 68:2, pages 190-197.
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Lill Hultman, Ulla Forinder & Pernilla Pergert. (2016) Assisted normality – a grounded theory of adolescent’s experiences of living with personal assistance. Disability and Rehabilitation 38:11, pages 1053-1062.
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Articles from other publishers (18)

Maria Fernanda Pauletti Oliveira, Camila Resende Gâmbaro Lima, Silvia Letícia Pavão, Gisele Moreira Pena, Bruna Romão da Silva, Ana Carolina de Campos & Nelci Adriana Cicuto Ferreira Rocha. (2022) Biopsychosocial Factors Related to Postural Sway During Sit-to-Stand Movement in Children and Adolescents With Down Syndrome: A Cross-Sectional Study. Perceptual and Motor Skills 130:1, pages 386-402.
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Natasha Bruno, Alanna Richardson, Kaitlyn D. Kauffeldt, Jennifer R. Tomasone, Kelly Arbour‐Nicitopoulos & Amy E. Latimer‐Cheung. (2022) Exploring experiential elements, strategies and outcomes of quality participation for children with intellectual and developmental disabilities: A systematic scoping review. Journal of Applied Research in Intellectual Disabilities 35:3, pages 691-718.
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Adile Emel SARDOHAN YILDIRIM & Müzeyyen ELDENİZ ÇETİN. (2022) Özel Eğitim Öğretmenlerinin Çoklu Yetersizliği Olan Öğrencilere Yönelik Metaforik AlgılarıSpecial Education Teachers’ Metaphorical Perceptions Regarding The Students With Multiple Disabilities. Gazi Üniversitesi Gazi Eğitim Fakültesi Dergisi 42:1, pages 749-786.
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Rosie Rushton & Lila Kossyvaki. (2021) The role of music within the home‐lives of young people with profound and multiple learning disabilities: Parental perspectives. British Journal of Learning Disabilities 50:1, pages 29-40.
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Samantha Noyek, Theresa C. Davies, Beata Batorowicz, Elizabeth Delarosa & Nora Fayed. (2022) The “Recreated Experiences” Approach: Exploring the Experiences of Persons Previously Excluded in Research. International Journal of Qualitative Methods 21, pages 160940692210867.
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Anna Rensfeldt Flink, Petra Boström, Christopher Gillberg, Paul Lichtenstein, Sebastian Lundström & Jakob Åsberg Johnels. (2021) Exploring co-occurrence of sensory, motor and neurodevelopmental problems and epilepsy in children with severe-profound intellectual disability. Research in Developmental Disabilities 119, pages 104114.
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Gineke Hanzen, Aly Waninge, Ruth M. A. Nispen, Carla Vlaskamp, Wendy J. Post & Annette A. J. Putten. (2020) Intervention effects on professionals’ attitudes towards the participation of adults with visual and severe or profound intellectual disabilities. Journal of Applied Research in Intellectual Disabilities 34:1, pages 129-139.
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Gineke Hanzen, Ruth M. A. van Nispen, Carla Vlaskamp, Eliza L. Korevaar, Aly Waninge & Annette A. J. van der Putten. (2020) Improving the participation of adults with visual and severe or profound intellectual disabilities: a process evaluation of a new intervention. BMC Health Services Research 20:1.
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Kasper Kruithof, Dick Willems, Faridi Etten‐Jamaludin & Erik Olsman. (2020) Parents' knowledge of their child with profound intellectual and multiple disabilities: An interpretative synthesis. Journal of Applied Research in Intellectual Disabilities 33:6, pages 1141-1150.
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Geneviève Petitpierre & Myriam Squillaci. (2020) Pédagogie et polyhandicap : quels enjeux et conditions pour l’apprentissage de la personne polyhandicapée ?. La nouvelle revue - Éducation et société inclusives N° 88:1, pages 51-64.
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Meike Engelhardt, Michał Kosiedowski & Irena Duszyńska. (2020) Assistive technology for people with PIMD in challenging scenarios. Journal of Enabling Technologies 14:2, pages 87-97.
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Herawati I Nowak, Malin Broberg & Mikaela Starke. (2018) Opportunity to participate in planning and evaluation of support for children with disabilities: Parents’ and professionals’ perspectives. Journal of Intellectual Disabilities 24:1, pages 5-20.
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Ines Van keer, Noor Seghers, Karla Van Leeuwen & Bea Maes. (2019) Family Activities in Families Including a Young Child with a Significant Cognitive and Motor Developmental Delay: an Ecocultural Perspective. Journal of Developmental and Physical Disabilities 32:1, pages 155-185.
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Ryan Cummins, Sabrina Gretkierewicz, Adrienne Anderson, Jennifer Piscitello & Mary Lou Kelley. 2020. Handbook of Dual Diagnosis. Handbook of Dual Diagnosis 531 548 .
Giulio E. Lancioni, Mark F. O’Reilly, Jeff Sigafoos, Lorenzo Desideri, Gloria Alberti, Francesca Campodonico & Valeria Chiariello. (2019) Smartphone-Based Technology to Support Functional Occupation and Mobility in People with Intellectual Disability and Visual Impairment. Advances in Neurodevelopmental Disorders 3:3, pages 334-342.
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Ines Van keer, Karla Van Leeuwen & Bea Maes. (2019) Exploring family activities and child engagement: A study on children with a significant cognitive and motor developmental delay. Journal of Applied Research in Intellectual Disabilities 32:4, pages 779-791.
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Gineke Hanzen, Aly Waninge, Carla Vlaskamp, Ruth M.A. van Nispen & Annette A.J. van der Putten. (2018) Participation of adults with visual and severe or profound intellectual disabilities: Analysis of individual support plans. Research in Developmental Disabilities 83, pages 132-141.
Crossref
Anna Karin Axelsson. (2015) The Role of the External Personal Assistants for Children with Profound Intellectual and Multiple Disabilities Working in the Children's Home. Journal of Applied Research in Intellectual Disabilities 28:3, pages 201-211.
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