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Research Paper

How is self-management perceived by community living people after a stroke? A focus group study

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Pages 223-230 | Received 22 Apr 2013, Accepted 22 Apr 2014, Published online: 14 May 2014

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Read on this site (11)

Md. Sazedur Rahman, Wenbo Peng, Jon Adams & David Sibbritt. (2023) The use of self-management strategies for stroke rehabilitation: a scoping review. Topics in Stroke Rehabilitation 30:6, pages 552-567.
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Romana Heim, Ton Satink & Fenna van Nes. (2023) “Standing alone”: understanding the self-management of family caregivers of persons post-stroke at the time of acute care. Disability and Rehabilitation 0:0, pages 1-9.
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Alyson Norman, Valentina Curro, Mark Holloway, Nena Percuklievska & Hannah Ferrario. (2023) Experiences of individuals with acquired brain injury and their families interacting with community services: a systematic scoping review. Disability and Rehabilitation 45:4, pages 739-751.
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Stephanie Kılınç, Hannah Erdem, Rebecca Healey & Joanne Cole. (2022) Finding meaning and purpose: a framework for the self-management of neurological conditions. Disability and Rehabilitation 44:2, pages 219-230.
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Hans C. J. W. Kerstens, Ton Satink, Maarten J. Nijkrake, Bert J. M. De Swart, Bas J. H. Van Lith, Alexander C. H. Geurts & Maria W. G. Nijhuis-van der Sanden. (2020) Stumbling, struggling, and shame due to spasticity: a qualitative study of adult persons with hereditary spastic paraplegia. Disability and Rehabilitation 42:26, pages 3744-3751.
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Mary Y. Egan, Debbie Laliberté-Rudman, Nicole Rutkowski, Monique Lanoix, Matthew Meyer, Sara McEwen, Margo Collver, Elizabeth Linkewich, Phyllis Montgomery, Sylvia Quant, Beth Donnelly & Jennifer Fearn. (2020) The implications of the Canadian Stroke Best Practice Recommendations for design and allocation of rehabilitation after hospital discharge: a problematization. Disability and Rehabilitation 42:23, pages 3403-3415.
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Alexandra Olofsson, Maria Larsson Lund & Anneli Nyman. (2020) Everyday activities outside the home are a struggle: Narratives from two persons with acquired brain injury. Scandinavian Journal of Occupational Therapy 27:3, pages 194-203.
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Ella Clark, Kate Bennett, Nick Ward & Fiona Jones. (2018) One size does not fit all – Stroke survivor’s views on group self-management interventions. Disability and Rehabilitation 40:5, pages 569-576.
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Ton Satink, Edith H.C. Cup, Bert J.M. de Swart & Maria W.G. Nijhuis-van der Sanden. (2018) The perspectives of spouses of stroke survivors on self-management – a focus group study. Disability and Rehabilitation 40:2, pages 176-184.
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Stina Lou, Kathrine Carstensen, Carina Rumpelthiin Jørgensen & Camilla Palmhøj Nielsen. (2017) Stroke patients’ and informal carers’ experiences with life after stroke: an overview of qualitative systematic reviews. Disability and Rehabilitation 39:3, pages 301-313.
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Ton Satink, Staffan Josephsson, Jana Zajec, Edith H. C. Cup, Bert J. M. de Swart & Maria W. G. Nijhuis-van der Sanden. (2016) Negotiating role management through everyday activities: narratives in action of two stroke survivors and their spouses. Disability and Rehabilitation 38:24, pages 2354-2364.
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Articles from other publishers (24)

Erika Klockar, Maya Kylén, Catharina Gustavsson, Tracy Finch, Fiona Jones & Marie Elf. (2023) Self-management from the perspective of people with stroke – An interview study. Patient Education and Counseling 112, pages 107740.
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Jiaqi Yu, Yaru Jin, Huaxin Si, Yanhui Bian, Qinqin Liu, Xiaoxia Qiao, Lili Ji, Wenyu Wang & Cuili Wang. (2023) How does social support interact with intrinsic capacity to affect the trajectory of functional ability among older adults? Findings of a population-based longitudinal study. Maturitas 171, pages 33-39.
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Qinqin Liu, Yaru Jin, Ying Wang, Jingjun Feng, Xiaoxia Qiao, Lili Ji, Huaxin Si, Yanhui Bian, Wenyu Wang, Jiaqi Yu & Cuili Wang. (2022) Association between self‐efficacy and self‐management behaviours among individuals at high risk for stroke: Social support acting as a mediator. Journal of Clinical Nursing 32:1-2, pages 71-82.
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George Kephart, Tanya Packer, Åsa Audulv, Yu-Ting Chen, Alysia Robinson, Ingrid Olsson & Grace Warner. (2022) Item selection, scaling and construct validation of the Patient-Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC) measurement tool in adults. Quality of Life Research 31:9, pages 2867-2880.
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Salma Begum, Yeasir A. Alve & Peter Bontje. (2022) Self-Management Embedded in Daily Activities: A Photoelicitation Focus Group Study among Persons with Spinal Cord Injury and Their Primary Caregivers in Bangladesh. Occupational Therapy International 2022, pages 1-15.
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Kaori Uchida & Kiyoko Aoki. (2022) Verification of Reliability and Validity of a Self-evaluation Scale for Self-management of Middle-aged Mild Stroke Survivors壮年期にある軽症脳卒中患者のセルフマネジメント自己評価尺度の信頼性・妥当性の検討. Journal of Japan Academy of Nursing Science 42:0, pages 271-280.
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Eiji Kose, Hidetatsu Endo, Hiroko Hori, Shingo Hosono, Chiaki Kawamura, Yuta Kodama, Takashi Yamazaki & Nobuhiro Yasuno. (2021) Pharmacist medication instructions are associated with continued medication self-management in older adults: a retrospective observational study. Journal of Pharmaceutical Health Care and Sciences 7:1.
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Umair Majid & Sujane Kandasamy. (2021) The rationales for and challenges with employing arts-based health services research (ABHSR): a qualitative systematic review of primary studies. Medical Humanities 47:3, pages 266-273.
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Milou Baumgartner-Dupuits, Simone J. S. Sep, Jeanine Verbunt, Hans Bosma & Jacques van Eijk. (2021) Peer Support to Enhance Social and Emotional Self-Management Following Acquired Brain Injury Rehabilitation: Design of a Pre–post Study With Process Evaluation. Frontiers in Neurology 12.
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Stefanie Schnabel, Frederike van Wijck, Brenda Bain, Mark Barber, Philippa Dall, Alexander Fleming, Andrew Kerr, Peter Langhorne, Alex McConnachie, Kathleen Molloy, Bethany Stanley, Heather Jane Young & Lisa Kidd. (2020) Experiences of augmented arm rehabilitation including supported self-management after stroke: a qualitative investigation. Clinical Rehabilitation 35:2, pages 288-301.
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Suzanne Hoi Shan Lo & Janita Pak Chun Chau. (2021) Exploring community-dwelling stroke survivors’ experiences of receiving a nurse-led theory-based stroke self-management programme. Medicine 100:37, pages e27256.
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Tanya Packer, George Kephart, Åsa Audulv, America Keddy, Grace Warner, Kylie Peacock & Tara Sampalli. (2020) Protocol for development, calibration and validation of the Patient-Reported Inventory of Self-Management of Chronic Conditions (PRISM-CC). BMJ Open 10:9, pages e036776.
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Gerardo Luis Dimaguila, Frances Batchelor, Mark Merolli & Kathleen Gray. (2020) ‘We are very individual’: anticipated effects on stroke survivors of using their person-generated health data. BMJ Health & Care Informatics 27:3, pages e100149.
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Susanne Lillelund Sørensen, Sedsel Kristine Stage Pedersen & Hanne Pallesen. (2019) Social psychological mechanisms and processes in a novel, health professional-led, self-management intervention for older stroke individuals: a synthesis and phenomenological study. BMC Health Services Research 19:1.
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Faye Wray, David Clarke & Anne Forster. (2019) How do stroke survivors with communication difficulties manage life after stroke in the first year? A qualitative study. International Journal of Language & Communication Disorders 54:5, pages 814-827.
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Simon Fletcher, Stefan Tino Kulnik, Sara Demain & Fiona Jones. (2019) The problem with self-management: Problematising self-management and power using a Foucauldian lens in the context of stroke care and rehabilitation. PLOS ONE 14:6, pages e0218517.
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Hanne Pallesen, Erhard Trillingsgaard Næss-Schmidt, Simon Svanborg Kjeldsen, Sedsel Kristine Stage Pedersen, Susanne Lillelund Sørensen, Iris Brunner & Jørgen Feldbæk Nielsen. (2018) “Stroke - 65 Plus. Continued Active Life”: a study protocol for a randomized controlled cross-sectoral trial of the effect of a novel self-management intervention to support elderly people after stroke. Trials 19:1.
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Barbara Singer, Fiona Jones & Sheila Lennon. (2018) Adapting the Bridges stroke self-management programme for use in Australia. International Journal of Therapy and Rehabilitation 25:8, pages 414-423.
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Tanya L. Packer, America Fracini, Åsa Audulv, Neda Alizadeh, Betsie G.I. van Gaal, Grace Warner & George Kephart. (2018) What we know about the purpose, theoretical foundation, scope and dimensionality of existing self-management measurement tools: A scoping review. Patient Education and Counseling 101:4, pages 579-595.
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Stina Lou, Kathrine Carstensen, Marie Møldrup, Seham Shahla, Elias Zakharia & Camilla Palmhøj Nielsen. (2017) Early supported discharge following mild stroke: a qualitative study of patients' and their partners' experiences of rehabilitation at home. Scandinavian Journal of Caring Sciences 31:2, pages 302-311.
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Karen E Atler, Marieke Van Puymbroeck, Jennifer D Portz & Arlene A Schmid. (2017) Participant-perceived outcomes of merging yoga and occupational therapy: Self-management intervention for people post stroke. British Journal of Occupational Therapy 80:5, pages 294-301.
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Fiona Jones, Christopher McKevitt, Afsane Riazi & Matthew Liston. (2017) How is rehabilitation with and without an integrated self-management approach perceived by UK community-dwelling stroke survivors? A qualitative process evaluation to explore implementation and contextual variations. BMJ Open 7:4, pages e014109.
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Catherine Brasier, Chantal F. Ski, David R. Thompson, Jan Cameron, Casey L. O’Brien, Nicola T. Lautenschlager, Graeme Gonzales, Ya-seng Arthur Hsueh, Gaye Moore, Simon R. Knowles, Susan L. Rossell, Rachel Haselden & David J. Castle. (2016) The Stroke and Carer Optimal Health Program (SCOHP) to enhance psychosocial health: study protocol for a randomized controlled trial. Trials 17:1.
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Ton Satink, Staffan Josephsson, Jana Zajec, Edith H. C. Cup, Bert J. M. de Swart & Maria W. G. Nijhuis-van der Sanden. (2016) Self-management develops through doing of everyday activities—a longitudinal qualitative study of stroke survivors during two years post-stroke. BMC Neurology 16:1.
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