Citations (25)
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Read on this site (6)
David R. Young, Bernhard Suter, Jackson T. Levine, Daniel G. Glaze & Charles S. Layne. (2022) Characteristic behaviors associated with gait of individuals with Rett syndrome. Disability and Rehabilitation 44:8, pages 1508-1515.
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Charles S. Layne, David R. Young, Beom-Chan Lee, Daniel G. Glaze, Aloysia Schwabe & Bernhard Suter. (2021) Kinematics associated with treadmill walking in Rett syndrome. Disability and Rehabilitation 43:11, pages 1585-1593.
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Alberto Romano, Tindara Caprì, Martina Semino, Ilaria Bizzego, Gabriella Di Rosa & Rosa Angela Fabio. (2020) Gross Motor, Physical Activity and Musculoskeletal Disorder Evaluation Tools for Rett Syndrome: A Systematic Review. Developmental Neurorehabilitation 23:8, pages 485-501.
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Michelle Stahlhut, Jenny Downs, Mette Aadahl, Helen Leonard, Anne-Marie Bisgaard & Eva Nordmark. (2019) Patterns of sedentary time and ambulatory physical activity in a Danish population of girls and women with Rett syndrome. Disability and Rehabilitation 41:2, pages 133-141.
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Åsa-Sara Sernheim, Helena Hemmingsson, Ingegerd Witt Engerström & Gunilla Liedberg. (2018) Activities that girls and women with Rett syndrome liked or did not like to do. Scandinavian Journal of Occupational Therapy 25:4, pages 267-277.
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Michelle Stahlhut, Jenny Downs, Helen Leonard, Anne-Marie Bisgaard & Eva Nordmark. (2017) Building the repertoire of measures of walking in Rett syndrome. Disability and Rehabilitation 39:19, pages 1926-1931.
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Articles from other publishers (19)
Margaux Poleur, Theodora Markati & Laurent Servais. (2023) The use of digital outcome measures in clinical trials in rare neurological diseases: a systematic literature review. Orphanet Journal of Rare Diseases 18:1.
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Meir Lotan, Jenny Downs, Michelle Stahlhut & Alberto Romano. (2023) Evaluation Tools Developed for Rett Syndrome. Diagnostics 13:10, pages 1708.
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Jenny Downs, A. Marie Blackmore, Kingsley Wong, Nicholas Buckley, Meir Lotan, Cochavit Elefant, Helen Leonard & Michelle Stahlhut. (2022) Can telehealth increase physical activity in individuals with Rett syndrome? A multicentre randomized controlled trial. Developmental Medicine & Child Neurology 65:4, pages 489-497.
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R.P. Romero-Galisteo, M. González-Sánchez, L. Costa, R. Brandão, C. Ramalhete, C. Leão & L. Jacobsohn. (2022) Outcome measurement instruments in Rett syndrome: A systematic review. European Journal of Paediatric Neurology 39, pages 79-87.
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Pierre Jéhannin, Alexis Le Faucheur, Ségolène Chaudru, Aline Taoum, Guillaume Mahé & Pierre-Yves de Müllenheim. (2022) Agreement Between StepWatch3 and ActiGraph wGT3X+ for Measuring Step-Based Metrics in People With Peripheral Artery Disease. Journal of Aging and Physical Activity 30:2, pages 225-236.
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Dylan C. Brock, Scott Demarest & Tim A. Benke. (2021) Clinical Trial Design for Disease-Modifying Therapies for Genetic Epilepsies. Neurotherapeutics 18:3, pages 1445-1457.
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Jenny Downs, Meir Lotan, Cochavit Elefant, Helen Leonard, Kingsley Wong, Nicholas Buckley & Michelle Stahlhut. (2020)
Implementing telehealth support to increase physical activity in girls and women with Rett syndrome
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ActivRett: protocol for a waitlist randomised controlled trial
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Melissa Raspa, Carla M. Bann, Angela Gwaltney, Timothy A. Benke, Cary Fu, Daniel G. Glaze, Richard Haas, Peter Heydemann, Mary Jones, Walter E. Kaufmann, David Lieberman, Eric Marsh, Sarika Peters, Robin Ryther, Shannon Standridge, Steven A. Skinner, Alan K. Percy & Jeffrey L. Neul. (2020) A Psychometric Evaluation of the Motor-Behavioral Assessment Scale for Use as an Outcome Measure in Rett Syndrome Clinical Trials. American Journal on Intellectual and Developmental Disabilities 125:6, pages 493-509.
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Wei Hou & Daniel C. Tarquinio. (2020) Reply to Oberman et al.. Pediatric Neurology 111, pages 88.
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Colleen Pawliuk, Kim Widger, Tammie Dewan, Gina Brander, Helen L Brown, Anne-Mette Hermansen, Marie-Claude Grégoire, Rose Steele & Harold (Hal) Siden. (2020) Scoping review of symptoms in children with rare, progressive, life-threatening disorders. BMJ Supportive & Palliative Care 10:1, pages 91-104.
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Michelle Stahlhut, Jenny Downs, Kingsley Wong, Anne-Marie Bisgaard & Eva Nordmark. (2020) Feasibility and Effectiveness of an Individualized 12-Week “Uptime” Participation (U-PART) Intervention in Girls and Women With Rett Syndrome. Physical Therapy 100:1, pages 168-179.
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Carmen Ridao-Fernández, Elena Pinero-Pinto & Gema Chamorro-Moriana. (2019) Observational Gait Assessment Scales in Patients with Walking Disorders: Systematic Review. BioMed Research International 2019, pages 1-12.
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A. Romano, M. Armando, M. Favetta, S. Minosse, S. Summa, T. Schirinzi, E. Castelli & M. Petrarca. (2019) Gait control in Rett Syndrome: an explorative study. Gait & Posture 74, pages 33.
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Charles Shannon Layne, Beom-Chan Lee, David Ryan Young, Daniel Gordon Glaze, Aloysia Schwabe & Bernhard Suter. (2018) Temporal Gait Measures Associated With Overground and Treadmill Walking in Rett Syndrome. Journal of Child Neurology 33:10, pages 667-674.
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Hanneke E. Borst, Gillian S. Townend, Mirjam van Eck, Eric Smeets, Mariëlle van den Berg, Aleid Laan & Leopold M. G. Curfs. (2018) Abnormal Foot Position and Standing and Walking Ability in Rett Syndrome: an Exploratory Study. Journal of Developmental and Physical Disabilities 30:2, pages 281-295.
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Eileen G. Fowler, Loretta A. Staudt, Kent R. Heberer, Susan E. Sienko, Cathleen E. Buckon, Anita M. Bagley, Michael D. Sussman & Craig M. McDonald. (2018) Longitudinal community walking activity in Duchenne muscular dystrophy. Muscle & Nerve 57:3, pages 401-406.
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Michelle Stahlhut, Kylie Hill, Anne-Marie Bisgaard, Anne Kjersgaard Jensen, Michaela Andersen, Helen Leonard & Jenny Downs. (2017) Measurement of Sedentary Behaviors or “Downtime” in Rett Syndrome. Journal of Child Neurology 32:12, pages 1009-1013.
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Jenny Downs, Helen Leonard, Kingsley Wong, Nikki Newton & Kylie Hill. (2017) Quantification of walking-based physical activity and sedentary time in individuals with Rett syndrome. Developmental Medicine & Child Neurology 59:6, pages 605-611.
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Leon Lor, Kylie Hill, Peter Jacoby, Helen Leonard & Jenny Downs. (2015) A validation study of a modified Bouchard activity record that extends the concept of ‘uptime’ to Rett syndrome. Developmental Medicine & Child Neurology 57:12, pages 1137-1142.
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