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Literature Reviews

Interaction between persons with profound intellectual and multiple disabilities and their partners: A literature review

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Pages 296-312 | Published online: 28 Oct 2009

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (15)

Anna Rensfeldt Flink, Malin Broberg, Karin Strid, Gunilla Thunberg & Jakob Åsberg Johnels. (2023) Following children with severe or profound intellectual and multiple disabilities and their mothers through a communication intervention: single-case mixed-methods findings. International Journal of Developmental Disabilities 69:6, pages 869-887.
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S. Nijs, M. Zijlmans, C. Schuengel & P. J. C. M. Embregts. (2023) Operationalisation of self-determination of persons with profound intellectual and multiple disabilities: A Delphi study. Journal of Intellectual & Developmental Disability 48:3, pages 300-312.
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Torsten Hammann, Jakob Valič, Gašper Slapničar & Mitja Luštrek. (2022) The missing piece. Physiological data as a factor for identifying emotions of people with profound intellectual and multiple disabilities. International Journal of Developmental Disabilities 0:0, pages 1-17.
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Anna Rensfeld Flink, Gunilla Thunberg, Anna Nyman, Malin Broberg & Jakob Åsberg Johnels. (2022) Augmentative and alternative communication with children with severe/profound intellectual and multiple disabilities: speech language pathologists’ clinical practices and reasoning. Disability and Rehabilitation: Assistive Technology 0:0, pages 1-13.
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Ines Van keer, Sien Vandesande, Ann Dhondt & Bea Maes. (2022) Changes in the social-emotional functioning of young children with a significant cognitive and motor developmental delay across a two-year period. International Journal of Developmental Disabilities 68:6, pages 867-879.
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Sien Vandesande, Guy Bosmans, Paula Sterkenburg, Carlo Schuengel & Bea Maes. (2022) The Attachment Strengths and Needs Interview for parents of children with severe or profound intellectual disabilities: An acceptability and feasibility study. Journal of Intellectual & Developmental Disability 47:2, pages 118-130.
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Anna Rensfeldt Flink, Jakob Åsberg Johnels, Malin Broberg & Gunilla Thunberg. (2022) Examining perceptions of a communication course for parents of children with profound intellectual and multiple disabilities. International Journal of Developmental Disabilities 68:2, pages 156-167.
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Ann Dhondt, Ines Van keer, Sara Nijs, Annette van der Putten & Bea Maes. (2021) In search of a novel way to analyze early communicative behavior. Augmentative and Alternative Communication 37:2, pages 87-101.
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Ineke Haakma, Anke A. De Boer, Sanne Van Esch, Alexander E. M. G. Minnaert & Annette A. J Van Der Putten. (2021) Inclusion moments for students with profound intellectual and multiple disabilities in mainstream schools: The teacher assistant’s role in supporting peer interactions. European Journal of Special Needs Education 36:2, pages 231-247.
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Sien Vandesande, Guy Bosmans, Paula Sterkenburg, Carlo Schuengel, Wim Van Den Noortgate & Bea Maes. (2020) Comfort provided by parents versus strangers after eliciting stress in children with severe or profound intellectual disabilities: does it make a difference?. Attachment & Human Development 22:4, pages 425-447.
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Karen Nankervis, Adrian Ashman, Alysia Weekes & Michael Carroll. (2020) Interactions of Residents Who Have Intellectual Disability and Challenging Behaviours. International Journal of Disability, Development and Education 67:1, pages 58-72.
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A. Kamstra, A. A. J. van der Putten, B. Maes & C. Vlaskamp. (2019) Exploring spontaneous interactions between people with profound intellectual and multiple disabilities and their peers. Journal of Intellectual & Developmental Disability 44:3, pages 282-291.
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Ine Hostyn & Bea Maes. (2013) Interaction with a person with profound intellectual and multiple disabilities: A case study in dialogue with an experienced staff member. Journal of Intellectual & Developmental Disability 38:3, pages 189-204.
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Gordon Stuart Lyons & Michael Arthur-Kelly. (2013) Collaborative stretching: A research agenda for enhancing the quality of lives of people with severe cognitive impairments. Journal of Care Services Management 7:3, pages 107-115.
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Articles from other publishers (59)

A. M. Nieuwenhuijse, D. L. Willems & K. Kruithof. (2023) Understanding quality of life of persons with profound intellectual and multiple disabilities. Journal of Policy and Practice in Intellectual Disabilities.
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Tanja W. M. Doodeman, Carlo Schuengel & Paula S. Sterkenburg. (2023) Effects of the Attune & Stimulate ‐checklist for caregivers of people with severe and profound intellectual disabilities: A randomised controlled trial . Journal of Applied Research in Intellectual Disabilities 36:5, pages 1136-1149.
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Maartje Hoogsteyns, Ilse Zaal‐Schuller, Sylvia Huisman, Appolonia Marga Nieuwenhuijse, Faridi van Etten‐Jamaludi, Dick Willems & Kasper Kruithof. (2023) Tacit knowledge in dyads of persons with profound intellectual and multiple disabilities and their caregivers: An interpretative literature study. Journal of Applied Research in Intellectual Disabilities 36:5, pages 966-977.
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P. B. Kuld, N. Frielink, M. Zijlmans, C. Schuengel & P. J. C. M. Embregts. (2023) Promoting self‐determination of persons with severe or profound intellectual disabilities: a systematic review and meta‐analysis. Journal of Intellectual Disability Research 67:7, pages 589-629.
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Virginia Barba-Sánchez, Yolanda Salinero, Pedro Jiménez Estévez & Pablo Ruiz-Palomino. (2023) How entrepreneurship drives life satisfaction among people with intellectual disabilities (PwID): a mixed-method approach. Management Decision.
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Ann Dhondt, Ines Van keer, Annette van der Putten & Bea Maes. (2022) Analysis of early expressive communicative behaviour of young children with significant cognitive and motor developmental delays. British Journal of Learning Disabilities 51:1, pages 24-37.
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José Antonio García-Candel, María Luisa Belmonte & Abraham Bernárdez-Gómez. (2023) Expectations of Personal Life Development and Decision-Making in People with Moderate Intellectual Disabilities. Journal of Intelligence 11:2, pages 24.
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Monireh Aminian, Mahnaz Karbalaei Sadegh, Masoomeh Salmani & Hayat Ameri. (2023) Evaluation of Conversational Skills in Children with Intellectual Disability and Their Mothers’ Parenting Styles. Middle East Journal of Rehabilitation and Health Studies 10:3.
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Kantor Jiří. 2023. Speciální pedagogika osob s omezením pohyblivosti a koncept praxe založené na důkazech. Speciální pedagogika osob s omezením pohyblivosti a koncept praxe založené na důkazech.
Wieneke Penninga, Sara L. P. Nijs, Hedwig J. A. van Bakel & Petri J. C. M. Embregts. (2022) Meaningful moments of interaction with people with profound intellectual disabilities: Reflections from direct support staff. Journal of Applied Research in Intellectual Disabilities 35:6, pages 1307-1316.
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Marie Matérne, Charlotta Plejert, André Frank, Jessica Bui, Karin Ridder & Camilla Warnicke. (2022) Interaction and multimodal expressions in a water-dance intervention for adults with intellectual and multiple disabilities. Journal of Interactional Research in Communication Disorders 14:1.
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Helena Wandin, Per Lindberg & Karin Sonnander. (2022) A trained communication partner’s use of responsive strategies in aided communication with three adults with Rett syndrome: A case report. Frontiers in Psychology 13.
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Mari Okamoto, Ryosuke Kojima, Akihiko Ueda, Machiko Suzuki & Yasushi Okuno. (2022) Characterizing eye-gaze positions of people with severe motor dysfunction: Novel scoring metrics using eye-tracking and video analysis. PLOS ONE 17:8, pages e0265623.
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Marina Luisa Rodocanachi Roidi, Kumiko Toshimori, Angelo Colletti, Enrico Ripamonti & Ivana Olivieri. (2022) A semi-standardized music therapy intervention for girls with Rett syndrome: A descriptive essay. Journal of Pediatric Rehabilitation Medicine 15:2, pages 323-334.
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Gineke Hanzen, Aly Waninge, Ruth M. A. van Nispen, Carla Vlaskamp & Annette A. J. van der Putten. (2021) Effects of the “Care for Participation+” Intervention on the Participation of Adults With Visual and Severe or Profound Intellectual Disabilities: A Nonrandomized Controlled Trial. Journal of Policy and Practice in Intellectual Disabilities 19:2, pages 202-219.
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Thalia Cavadini, Yannick Courbois & Edouard Gentaz. (2022) Eye-tracking-based experimental paradigm to assess social-emotional abilities in young individuals with profound intellectual and multiple disabilities. PLOS ONE 17:4, pages e0266176.
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Dena R. BonnikeKaren H. DouglasYun-Ching ChungGeorge R. Peterson-Karlan. (2022) Social Positioning to Increase Communication of Adults With Extensive Support Needs. Intellectual and Developmental Disabilities 60:1, pages 1-15.
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Hille Voss, Joanne Watson & Melissa J. Bloomer. 2022. End of Life and People with Intellectual and Developmental Disability. End of Life and People with Intellectual and Developmental Disability 353 377 .
Hille Voss, April Loxton, Julie Anderson & Joanne Watson. (2021) “It was one of those complicated cases”: health practitioners’ perspectives and practices of providing end-of-life care for people with profound intellectual and multiple disability. BMC Palliative Care 20:1.
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Lauren Emily Yuile, Andy Smidt & Sinead Quinlan. (2020) Valuing relationships: The impact of a sensory program on the interactions of adolescents with severe-to-profound intellectual disabilities. Journal of Intellectual Disabilities 25:4, pages 527-553.
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Bea Maes, Sara Nijs, Sien Vandesande, Ines Van keer, Michael Arthur‐Kelly, Juliane Dind, Juliet Goldbart, Geneviève Petitpierre & Annette Van der Putten. (2020) Looking back, looking forward: Methodological challenges and future directions in research on persons with profound intellectual and multiple disabilities. Journal of Applied Research in Intellectual Disabilities 34:1, pages 250-262.
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Gineke Hanzen, Ruth M. A. van Nispen, Carla Vlaskamp, Eliza L. Korevaar, Aly Waninge & Annette A. J. van der Putten. (2020) Improving the participation of adults with visual and severe or profound intellectual disabilities: a process evaluation of a new intervention. BMC Health Services Research 20:1.
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Kasper Kruithof, Dick Willems, Faridi van Etten‐Jamaludin & Erik Olsman. (2020) Parents' knowledge of their child with profound intellectual and multiple disabilities: An interpretative synthesis. Journal of Applied Research in Intellectual Disabilities 33:6, pages 1141-1150.
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Chris Walton, Charles Antaki & W.M.L Finlay. (2020) Orienting to affect in services for people with severe or profound intellectual disabilities: A UK‐based investigation. Journal of Applied Research in Intellectual Disabilities 33:5, pages 876-886.
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Esther Atlan, Danièle Toubert-Duffort & Minna Puustinen. (2020) L’observation et l’évaluation d’élèves en situation de polyhandicap : une nécessaire réflexion méthodologique. La nouvelle revue - Éducation et société inclusives N° 88:1, pages 187-203.
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Sara Nijs. (2020) Peer interactions among persons with profound intellectual and multiple disabilities. La nouvelle revue - Éducation et société inclusives N° 88:1, pages 153-169.
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Sara Nijs. (2020) Interactions entre pairs chez les personnes polyhandicapées. La nouvelle revue - Éducation et société inclusives N° 88:1, pages 135-152.
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Bea Maes, Anneleen Penne & Katrijn Vastmans. (2020) De l’éducation des élèves présentant un polyhandicap (PIMD). La nouvelle revue - Éducation et société inclusives N° 88:1, pages 121-134.
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Danièle Toubert-Duffort. (2020) Les enjeux de l’apprentissage pour la personne polyhandicapée. La nouvelle revue - Éducation et société inclusives N° 88:1, pages 65-85.
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Ann Dhondt, Ines Van keer, Annette van der Putten & Bea Maes. (2019) Communicative abilities in young children with a significant cognitive and motor developmental delay. Journal of Applied Research in Intellectual Disabilities 33:3, pages 529-541.
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Sien Vandesande, Guy Bosmans & Bea Maes. (2019) Can I be your safe haven and secure base? A parental perspective on parent-child attachment in young children with a severe or profound intellectual disability. Research in Developmental Disabilities 93, pages 103452.
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Kyra Frederiks, Paula Sterkenburg, Emilia Barakova & Loe Feijs. (2019) The effects of a bioresponse system on the joint attention behaviour of adults with visual and severe or profound intellectual disabilities and their affective mutuality with their caregivers. Journal of Applied Research in Intellectual Disabilities 32:4, pages 890-900.
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Danièle Toubert-Duffort & Sophie Dumont. 2017. La personne polyhandicapée. La personne polyhandicapée 375 390 .
Aafke Kamstra, Annette AJ van der Putten & Carla Vlaskamp. (2017) Efforts to increase social contact in persons with profound intellectual and multiple disabilities: Analysing individual support plans in the Netherlands. Journal of Intellectual Disabilities 21:2, pages 158-174.
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Colin Griffiths & Martine Smith. (2017) You and me: The structural basis for the interaction of people with severe and profound intellectual disability and others. Journal of Intellectual Disabilities 21:2, pages 103-117.
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Charles Antaki, Rebecca J. Crompton, Chris Walton & W.M.L. Finlay. (2016) How adults with a profound intellectual disability engage others in interaction. Sociology of Health & Illness 39:4, pages 581-598.
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Ines Van keer, Stephy Colla, Karla Van Leeuwen, Carla Vlaskamp, Eva Ceulemans, Karel Hoppenbrouwers, Annemie Desoete & Bea Maes. (2017) Exploring parental behavior and child interactive engagement: A study on children with a significant cognitive and motor developmental delay. Research in Developmental Disabilities 64, pages 131-142.
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Giulio E. Lancioni, Nirbhay N. Singh, Mark F. O’Reilly, Jeff Sigafoos, Francesca Campodonico & Gloria Alberti. 2017. Handbook of Positive Psychology in Intellectual and Developmental Disabilities. Handbook of Positive Psychology in Intellectual and Developmental Disabilities 261 284 .
A. ten Brug, A. A. J. Van der Putten, A. Penne, B. Maes & C. Vlaskamp. (2016) Making a difference? A comparison between multi-sensory and regular storytelling for persons with profound intellectual and multiple disabilities. Journal of Intellectual Disability Research 60:11, pages 1043-1053.
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Heleen Neerinckx & Bea Maes. (2016) Joint attention behaviours in people with profound intellectual and multiple disabilities: the influence of the context. Journal of Applied Research in Intellectual Disabilities 29:6, pages 574-584.
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Adelaide Espírito Santo & Maria Teresa Santos. (2016) A INCLUSÃO ESCOLAR DE ALUNOS COM MULTIDEFICIÊNCIA. Journal of Research in Special Educational Needs 16:S1, pages 89-93.
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Sara Nijs, Anneleen Penne, Carla Vlaskamp & Bea Maes. (2016) Peer Interactions among Children with Profound Intellectual and Multiple Disabilities during Group Activities. Journal of Applied Research in Intellectual Disabilities 29:4, pages 366-377.
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Colin Griffiths & Martine Smith. (2016) Attuning: A Communication Process between People with Severe and Profound Intellectual Disability and Their Interaction Partners. Journal of Applied Research in Intellectual Disabilities 29:2, pages 124-138.
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S. Nijs, C. Vlaskamp & B. Maes. (2016) Children with PIMD in interaction with peers with PIMD or siblings. Journal of Intellectual Disability Research 60:1, pages 28-42.
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S. Nijs, C. Vlaskamp & B. Maes. (2016) The nature of peer-directed behaviours in children with profound intellectual and multiple disabilities and its relationship with social scaffolding behaviours of the direct support worker. Child: Care, Health and Development 42:1, pages 98-108.
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A. Kamstra, A. A. J. van der Putten, W. J. Post & C. Vlaskamp. (2015) Informal Social Networks of People with Profound Intellectual and Multiple Disabilities: Relationship with Age, Communicative Abilities and Current Living Arrangements. Journal of Applied Research in Intellectual Disabilities 28:2, pages 159-164.
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Mélissa Chard & Jean-Luc Roulin. (2016) Vers une meilleure compréhension du fonctionnement cognitif des personnes polyhandicapées. Revue francophone de la déficience intellectuelle 26, pages 29-44.
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Masahiro KOHZUKI. (2015) The Definitions of Multimorbidity and Multiple Disabilities(MMD) and the Rehabilitation for MMD. Asian Journal of Human Services 8:0, pages 120-130.
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S. Forster & T. Iacono. (2014) The nature of affect attunement used by disability support workers interacting with adults with profound intellectual and multiple disabilities. Journal of Intellectual Disability Research 58:12, pages 1105-1120.
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Juliet Goldbart, Darren Chadwick & Susan Buell. (2014) Speech and language therapists’ approaches to communication intervention with children and adults with profound and multiple learning disability. International Journal of Language & Communication Disorders 49:6, pages 687-701.
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Melissa Chard, Jean-Luc Roulin & Martine Bouvard. (2014) Visual Habituation Paradigm With Adults With Profound Intellectual and Multiple Disabilities: A New Way for Cognitive Assessment?. Journal of Applied Research in Intellectual Disabilities 27:5, pages 481-488.
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Katja Koski, Kaisa Martikainen, Katja Burakoff, Hannu Vesala & Kaisa Launonen. (2014) Evaluation of the impact of supervisory support on staff experiences of training. Tizard Learning Disability Review 19:2, pages 77-84.
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Giulio E. Lancioni, Nirbhay N. Singh, Mark F. O’Reilly, Jeff Sigafoos, Doretta Oliva & Francesca Campodonico. (2013) Further evaluation of a telephone technology for enabling persons with multiple disabilities and lack of speech to make phone contacts with socially relevant partners. Research in Developmental Disabilities 34:11, pages 4178-4183.
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Giulio E. Lancioni, Nirbhay N. Singh, Mark F. O’Reilly, Jeff Sigafoos, Doretta Oliva, Francesca Campodonico, Fiora D’Amico, Francesca Buonocunto, Valentina Sacco & Robert Didden. (2013) Post-coma persons emerging from a minimally conscious state with multiple disabilities make technology-aided phone contacts with relevant partners. Research in Developmental Disabilities 34:10, pages 3190-3196.
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Jesper Dammeyer & Simo Køppe. (2013) The Relationship Between Body Movements and Qualities of Social Interaction Between a Boy With Severe Developmental Disabilities and His Caregiver. Intellectual and Developmental Disabilities 51:3, pages 154-163.
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Katja Koski & Kaisa Launonen. (2012) Assessing the communication skills of carers working with multiple learning disabilities: a case study. International Journal of Language & Communication Disorders 47:6, pages 685-695.
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A. Penne, A. ten Brug, V. Munde, A. van der Putten, C. Vlaskamp & B. Maes. (2012) Staff interactive style during multisensory storytelling with persons with profound intellectual and multiple disabilities. Journal of Intellectual Disability Research 56:2, pages 167-178.
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Ine Hostyn, Katja Petry, Greet Lambrechts & Bea Maes. (2011) Evaluating the Quality of the Interaction Between Persons with Profound Intellectual and Multiple Disabilities and Direct Support Staff: A Preliminary Application of Three Observation Scales from Parent-Infant Research. Journal of Applied Research in Intellectual Disabilities 24:5, pages 407-420.
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Hostyn Ine, Neerinckx Heleen & Maes Bea. (2011) Attentional processes in interactions between people with profound intellectual and multiple disabilities and direct support staff. Research in Developmental Disabilities 32:2, pages 491-503.
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