1,403
Views
80
CrossRef citations to date
0
Altmetric
Article

Reflections on doing inclusive research in the “Making Life Good in the Community” study

&
Pages 53-61 | Published online: 18 Jun 2010

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (26)

Sally Robinson & Jan Idle. (2023) Loneliness and how to counter it: People with intellectual disability share their experiences and ideas. Journal of Intellectual & Developmental Disability 48:1, pages 58-70.
Read now
Jonathan Rix, Helena Garcia-Carrizosa, Simon Hayhoe, Jane Seale & Kieron Sheehy. (2021) Emergent analysis and dissemination within participatory research. International Journal of Research & Method in Education 44:3, pages 287-302.
Read now
António Valentim & Joaquim Pires Valentim. (2020) What I think of school: perceptions of school by people with intellectual disabilities. Disability & Society 35:10, pages 1618-1640.
Read now
Anita Gjermestad, Laila Luteberget, Turid Midjo & Aud Elisabeth Witsø. (2020) Preparing a dialogue conference together with persons with intellectual disabilities. Nordic Social Work Research 10:4, pages 343-355.
Read now
Jonathan Rix, Helena Garcia Carrizosa, Jane Seale, Kieron Sheehy & Simon Hayhoe. (2020) The while of participation: A systematic review of participatory research involving people with sensory impairments and/or intellectual impairments. Disability & Society 35:7, pages 1031-1057.
Read now
Katherine Elisabeth Jones, Shelly Ben-David & Rachelle Hole. (2020) Are individuals with intellectual and developmental disabilities included in research? A review of the literature. Research and Practice in Intellectual and Developmental Disabilities 7:2, pages 99-119.
Read now
Katja Dindar, Anne Lindblom & Eija Kärnä. (2017) The construction of communicative (in)competence in autism: a focus on methodological decisions. Disability & Society 32:6, pages 868-891.
Read now
Nancy Salmon, Edurne García Iriarte & Emma Q. Burns. (2017) Research Active Programme: A pilot inclusive research curriculum in higher education. International Journal of Research & Method in Education 40:2, pages 181-200.
Read now
Kate P. Dorozenko, Brian J. Bishop & Lynne D. Roberts. (2016) Fumblings and faux pas: Reflections on attempting to engage in participatory research with people with an intellectual disability. Journal of Intellectual & Developmental Disability 41:3, pages 197-208.
Read now
Iva Strnadová, Jan Walmsley, Kelley Johnson & Therese M. Cumming. (2016) Diverse faces of inclusive research: reflecting on three research studies. Scandinavian Journal of Disability Research 18:1, pages 52-64.
Read now
Chantal Camden, Keiko Shikako-Thomas, Tram Nguyen, Emma Graham, Aliki Thomas, Jennifer Sprung, Christopher Morris & Dianne J. Russell. (2015) Engaging stakeholders in rehabilitation research: a scoping review of strategies used in partnerships and evaluation of impacts. Disability and Rehabilitation 37:15, pages 1390-1400.
Read now
Michelle F. Morgan, Karen B. Moni & Monica Cuskelly. (2015) The Development of Research Skills in Young Adults with Intellectual Disability in Participatory Research. International Journal of Disability, Development and Education 62:4, pages 438-457.
Read now
Iva Strnadová, Therese M. Cumming, Marie Knox, Trevor R. Parmenter & Hee Min Lee. (2015) Perspectives on life, wellbeing, and ageing by older women with intellectual disability. Journal of Intellectual & Developmental Disability 40:3, pages 275-285.
Read now
Susan Woelders, Tineke Abma, Tamara Visser & Karen Schipper. (2015) The power of difference in inclusive research. Disability & Society 30:4, pages 528-542.
Read now
Sally Robinson, Karen R. Fisher & Robert Strike. (2014) Participatory and Inclusive Approaches to Disability Program Evaluation. Australian Social Work 67:4, pages 495-508.
Read now
Michelle F. Morgan, Monica Cuskelly & Karen B. Moni. (2014) Unanticipated ethical issues in a participatory research project with individuals with intellectual disability. Disability & Society 29:8, pages 1305-1318.
Read now
Colleen A. Kidney & Katherine E. McDonald. (2014) A toolkit for accessible and respectful engagement in research. Disability & Society 29:7, pages 1013-1030.
Read now
Therese M. Cumming, Iva Strnadová, Marie Knox & Trevor Parmenter. (2014) Mobile technology in inclusive research: tools of empowerment. Disability & Society 29:7, pages 999-1012.
Read now
Sally Robinson & Robert Strike. (2014) Reinforce Self Advocacy: Speaking Up Over the Years. Research and Practice in Intellectual and Developmental Disabilities 1:1, pages 88-90.
Read now
Jennifer Conder, Paul Milner & Brigit Mirfin-Veitch. (2011) Reflections on a participatory project: The rewards and challenges for the lead researchers. Journal of Intellectual & Developmental Disability 36:1, pages 39-48.
Read now
Alex McClimens. (2010) These self-evident truths: Power and control in intellectual disability research. Journal of Intellectual & Developmental Disability 35:2, pages 64-65.
Read now

Articles from other publishers (54)

Golnaz Ghaderi, Peter Milley, Rosemary Lysaght & Virginie Cobigo. (2023) Including people with intellectual and other cognitive disabilities in research and evaluation teams: A scoping review of the empirical knowledge base. Journal of Intellectual Disabilities.
Crossref
John Selander & Erika Wall. (2023) The athletic work force: Sport as a key to employment for people with intellectual disabilities?. Work, pages 1-11.
Crossref
Mona Nikidehaghani, Freda Hui-Truscott & Corinne Cortese. (2022) Researching vulnerable participants: The role of critical reflexivity in overcoming methodological challenges. International Journal of Market Research 65:2-3, pages 237-258.
Crossref
Petri J.C.M. Embregts & Noud Frielink. 2023. 43 70 .
Lorna Montgomery, Berni Kelly, Ursula Campbell, Gavin Davidson, Leanne Gibson, Louise Hughes, Jadzia Menham, Linda McKendry, Leslie-Anne Newton, Alex Parkinson, Ethan Redmond, Joseph Turnbull, Paul Webb & Lisamarie Wood. (2022) ‘Getting our voices heard in research: a review of peer researcher’s roles and experiences on a qualitative study of adult safeguarding policy. Research Involvement and Engagement 8:1.
Crossref
Maaike Hermsen, Rianne Simons, Hennie van Veen, Angela Prudon, Lina Rooijackers, Roy Otten & Renske Koordeman. (2022) Building high-quality interpersonal staff-client relationships with people with severe to profound intellectual disabilities and challenging behavior: Insights of professionals and relatives. Journal of Intellectual Disabilities, pages 174462952211314.
Crossref
Gemma Diaz-Garolera, Judit Fullana, Maria Pallisera, Carolina Puyaltó, Ana Rey & Maialen Beltran. (2022) Learnings and Benefits from Co-Researching: Views of Advisors with Intellectual Disabilities. Disabilities 2:3, pages 516-528.
Crossref
Agnès d’Arripe & Céline Lefebvre. (2022) La place des personnes typifiées institutionnellement comme déficientes intellectuelles dans la recherche en sciences sociales. Communication:vol. 39/1.
Crossref
Gemma Diaz-Garolera, Judit Fullana, Maria Pallisera, Carolina Puyaltó & Ana Rey. (2022) ¿Aprender, Compartir, Contribuir? Perspectivas de Personas con Discapacidad Intelectual sobre su Participación en Investigaciones. Revista Internacional de Educación para la Justicia Social 11:1.
Crossref
Matthew Bogenschutz, Parthenia Dinora, Sarah Lineberry, Seb Prohn, Michael Broda & Angela West. (2022) Promising Practices in the Frontiers of Quality Outcome Measurement for Intellectual and Developmental Disability Services. Frontiers in Rehabilitation Sciences 3.
Crossref
Sofie Sergeant, Henriëtte Sandvoort, Geert Van Hove, Petri Embregts, Kim van den Bogaard, Elsbeth Taminiau & Alice Schippers. (2022) On the Road Together: Issues Observed in the Process of a Research Duo Working Together in a Long-Term and Intense Collaboration in an Inclusive Research Project. Social Sciences 11:5, pages 185.
Crossref
Catherine de Haas, Joanna Grace, Joanna Hope & Melanie Nind. (2022) Doing Research Inclusively: Understanding What It Means to Do Research with and Alongside People with Profound Intellectual Disabilities. Social Sciences 11:4, pages 159.
Crossref
I‐Ting Hwang, Taye M. Hallock, Ariel E. Schwartz, Stephanie Roth, Beth Pfeiffer & Jessica M. Kramer. (2021) How people with intellectual and developmental disabilities on collaborative research teams use technology: A rapid scoping review. Journal of Applied Research in Intellectual Disabilities 35:1, pages 88-111.
Crossref
Dan Goodley, Magda Szarota & Agnieszka Wołowicz. 2020. The Palgrave Encyclopedia of the Possible. The Palgrave Encyclopedia of the Possible 1 8 .
Dan Goodley, Magda Szarota & Agnieszka Wołowicz. 2022. The Palgrave Encyclopedia of the Possible. The Palgrave Encyclopedia of the Possible 407 414 .
Sue Fletcher-Watson, Kabie Brook, Sonny Hallett, Fergus Murray & Catherine J. Crompton. (2021) Inclusive Practices for Neurodevelopmental Research. Current Developmental Disorders Reports 8:2, pages 88-97.
Crossref
Eilionóir Flynn, Clíona de Bhailís & María Laura Serra. (2020) Lived experience influencing law reform: insights from a collaborative research project. Qualitative Research 21:2, pages 234-250.
Crossref
Aukelien Scheffelaar, Nanne Bos, Marjan de Jong, Mattanja Triemstra, Sandra van Dulmen & Katrien Luijkx. (2020) Lessons learned from participatory research to enhance client participation in long-term care research: a multiple case study. Research Involvement and Engagement 6:1.
Crossref
Betty-Jean Dee-Price. (2019) Making space for the participant with complex communication (access) needs in social work research. Qualitative Social Work 19:5-6, pages 827-844.
Crossref
Sarah M. Hart, Mikayla Pascucci, Sheetal Sood & Emily M. Barrett. (2020) Value, vulnerability and voice: An integrative review on research assent. British Journal of Learning Disabilities 48:2, pages 154-161.
Crossref
Susan Taylor & Susan Balandin. (2020) The Ethics of Inclusion in AAC Research of Participants with Complex Communication Needs. Scandinavian Journal of Disability Research 22:1, pages 108-115.
Crossref
Dan Goodley, Magda Szarota & Agnieszka Wołowicz. 2020. The Palgrave Encyclopedia of the Possible. The Palgrave Encyclopedia of the Possible 1 8 .
Ann Fudge Schormans, Robert Wilton & Nick Marquis. (2019) Building collaboration in the co-production of knowledge with people with intellectual disabilities about their everyday use of city space. Area 51:3, pages 415-422.
Crossref
Paul Milner & Patsie Frawley. (2018) From ‘on’ to ‘with’ to ‘by:’ people with a learning disability creating a space for the third wave of Inclusive Research. Qualitative Research 19:4, pages 382-398.
Crossref
Anna Chalachanová, Anita Gjermestad & Inger Marie Lid. 2019. Samproduksjon i forskning. Samproduksjon i forskning 76 93 .
Janette Lloyd, Anne Jobling, Emma Louise White, Michel Labosse, Karen Moni, Monica Cuskelly & Mary McMahon. (2018) A dialogic approach to working inclusively in a Research Reference Committee. British Journal of Learning Disabilities 47:1, pages 35-41.
Crossref
Jennifer Smith-Merry. 2019. Handbook of Research Methods in Health Social Sciences. Handbook of Research Methods in Health Social Sciences 1935 1952 .
Nancy Salmon, Aoife Barry & Enid Hutchins. (2018) Inclusive research: An Irish perspective. British Journal of Learning Disabilities 46:4, pages 268-277.
Crossref
Line Melbøe. (2018) Role of the “differently-abled” researcher: Challenges and solutions in inclusive research. Alter 12:4, pages 225-237.
Crossref
Petri J. C. M. Embregts, Elsbeth F. Taminiau, Luciënne Heerkens, Alice P. Schippers & Geert van Hove. (2018) Collaboration in Inclusive Research: Competencies Considered Important for People With and Without Intellectual Disabilities. Journal of Policy and Practice in Intellectual Disabilities 15:3, pages 193-201.
Crossref
Jan Walmsley, Iva Strnadová & Kelley Johnson. (2018) The added value of inclusive research. Journal of Applied Research in Intellectual Disabilities 31:5, pages 751-759.
Crossref
Brittany St. JohnIulia MihailaKatelyn Dorrance, Leann Smith DaWalt & Karla K. Ausderau. (2018) Reflections From Co-Researchers With Intellectual Disability: Benefits to Inclusion in a Research Study Team. Intellectual and Developmental Disabilities 56:4, pages 251-262.
Crossref
Iva Strnadová & Jan Walmsley. (2018) Peer-reviewed articles on inclusive research: Do co-researchers with intellectual disabilities have a voice?. Journal of Applied Research in Intellectual Disabilities 31:1, pages 132-141.
Crossref
Brigit Mirfin-Veitch, Jenny Conder, Gareth J. Treharne, Leigh Hale & Georgina Richardson. 2018. The Palgrave Handbook of Ethics in Critical Research. The Palgrave Handbook of Ethics in Critical Research 355 370 .
Judit Fullana, Maria Pallisera, Elena Català & Carolina Puyalto. (2017) Evaluating a Research Training Programme for People with Intellectual Disabilities Participating in Inclusive Research: The Views of Participants. Journal of Applied Research in Intellectual Disabilities 30:4, pages 684-695.
Crossref
Jillian Cavanagh, Timothy Bartram, Hannah Meacham, Christine Bigby, Jodi Oakman & Ellie Fossey. (2017) Supporting workers with disabilities: a scoping review of the role of human resource management in contemporary organisations. Asia Pacific Journal of Human Resources 55:1, pages 6-43.
Crossref
Jennifer Smith-Merry. 2017. Handbook of Research Methods in Health Social Sciences. Handbook of Research Methods in Health Social Sciences 1 19 .
Joy Hammel, Katherine E. McDonald & Lex Frieden. (2016) Getting to Inclusion: People With Developmental Disabilities and the Americans With Disabilities Act Participatory Action Research Consortium. Inclusion 4:1, pages 6-15.
Crossref
Carol Puyalto, Maria Pallisera, Judit Fullana & Montserrat Vilà. (2016) Doing Research Together: A Study on the Views of Advisors with Intellectual Disabilities and Non-Disabled Researchers Collaborating in Research. Journal of Applied Research in Intellectual Disabilities 29:2, pages 146-159.
Crossref
Tessa Kim Frankena, Jenneken Naaldenberg, Mieke Cardol, Christine Linehan & Henny van Schrojenstein Lantman-de Valk. (2015) Active involvement of people with intellectual disabilities in health research – A structured literature review. Research in Developmental Disabilities 45-46, pages 271-283.
Crossref
Sue Baines & Jane Edwards. (2015) Considering the ways in which anti-oppressive practice principles can inform health research. The Arts in Psychotherapy 42, pages 28-34.
Crossref
Jamil Jivraj, Lori-Ann Sacrey, Amanda Newton, David Nicholas & Lonnie Zwaigenbaum. (2014) Assessing the influence of researcher–partner involvement on the process and outcomes of participatory research in autism spectrum disorder and neurodevelopmental disorders: A scoping review. Autism 18:7, pages 782-793.
Crossref
Hanne Marie Høybråten Sigstad. (2014) Characteristic interviews, different strategies. Journal of Intellectual Disabilities 18:2, pages 188-202.
Crossref
Edurne García Iriarte, Patricia O'Brien & Darren Chadwick. (2014) Involving People With Intellectual Disabilities Within Research Teams: Lessons Learned from an Irish Experience. Journal of Policy and Practice in Intellectual Disabilities 11:2, pages 149-157.
Crossref
Erin Stack & Katherine E. McDonald. (2014) Nothing About Us Without Us: Does Action Research in Developmental Disabilities Research Measure Up?. Journal of Policy and Practice in Intellectual Disabilities 11:2, pages 83-91.
Crossref
Christine Bigby, Patsie Frawley & Paul Ramcharan. (2013) Conceptualizing Inclusive Research with People with Intellectual Disability. Journal of Applied Research in Intellectual Disabilities 27:1, pages 3-12.
Crossref
Christine Bigby, Patsie Frawley & Paul Ramcharan. (2013) A Collaborative Group Method of Inclusive Research. Journal of Applied Research in Intellectual Disabilities 27:1, pages 54-64.
Crossref
Iva Strnadová, Therese M. Cumming, Marie Knox & Trevor Parmenter. (2013) Building an Inclusive Research Team: The Importance of Team Building and Skills Training. Journal of Applied Research in Intellectual Disabilities 27:1, pages 13-22.
Crossref
Patricia O'Brien, Roy McConkey & Edurne García‐Iriarte. (2013) Co‐researching with People who Have Intellectual Disabilities: Insights From a National Survey. Journal of Applied Research in Intellectual Disabilities 27:1, pages 65-75.
Crossref
Samantha Flood, Davey Bennett, Melissa Melsome & Ruth Northway. (2013) Becoming a researcher. British Journal of Learning Disabilities 41:4, pages 288-295.
Crossref
R. Saaltink, G. MacKinnon, F. Owen & C. Tardif‐Williams. (2012) Protection, participation and protection through participation: young people with intellectual disabilities and decision making in the family context. Journal of Intellectual Disability Research 56:11, pages 1076-1086.
Crossref
Zack Marshall, Stephanie Nixon, Denise Nepveux, Tess Vo, Ciann Wilson, Sarah Flicker, Alex McClelland & Devon Proudfoot. (2012) Navigating Risks and Professional Roles: Research with Lesbian, Gay, Bisexual, Trans, and Queer Young People with Intellectual Disabilities. Journal of Empirical Research on Human Research Ethics 7:4, pages 20-33.
Crossref
Christine Bigby. 2012. Researching Later Life and Ageing. Researching Later Life and Ageing 84 103 .
C. J. Nierse & T. A. Abma. (2011) Developing voice and empowerment: the first step towards a broad consultation in research agenda setting. Journal of Intellectual Disability Research 55:4, pages 411-421.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.