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Original Article

Time to diagnosis in the National Registry of Veterans with Amyotrophic Lateral Sclerosis

, , , , , , , , , , & show all
Pages 125-132 | Received 25 Aug 2008, Accepted 20 Oct 2008, Published online: 26 Feb 2010

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Rubika Balendra, Ashley R. Jones, Ahmad Al Khleifat, Theresa Chiwera, Paul Wicks, Carolyn A. Young, Pamela J. Shaw, Martin R. Turner, P. Nigel Leigh & Ammar Al-Chalabi. (2023) Comparison Of King’s Clinical Staging In Multinational Amyotrophic Lateral Sclerosis Cohorts. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:1-2, pages 71-81.
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Jaime Raymond, Paul Mehta, Ted Larson, Pam Factor-Litvak, Bryn Davis & Kevin Horton. (2021) History of vigorous leisure-time physical activity and early onset amyotrophic lateral sclerosis (ALS), data from the national ALS registry: 2010–2018. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:7-8, pages 535-544.
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Jaime Raymond, BjÖrn Oskarsson, Paul Mehta & Kevin Horton. (2019) Clinical characteristics of a large cohort of US participants enrolled in the National Amyotrophic Lateral Sclerosis (ALS) Registry, 2010–2015. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 20:5-6, pages 413-420.
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Laurie Wagner, Lindsay Rechtman, Heather Jordan, Maggie Ritsick, Marchelle Sanchez, Eric Sorenson & Wendy Kaye. (2016) State and metropolitan area-based amyotrophic lateral sclerosis (ALS) surveillance. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 17:1-2, pages 128-134.
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Michael Benatar, Joanne Wuu, Sharon Usher & Kevin Ward. (2011) Preparing for a U.S. National ALS Registry: Lessons from a pilot project in the State of Georgia. Amyotrophic Lateral Sclerosis 12:2, pages 130-135.
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Richard S. Bedlack, Paul Wicks, James Heywood & Edward Kasarskis. (2010) Modifiable barriers to enrollment in American ALS research studies. Amyotrophic Lateral Sclerosis 11:6, pages 502-507.
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Articles from other publishers (12)

Kelly G. Gwathmey, Philippe Corcia, Chris J. McDermott, Angela Genge, Stefan Sennfält, Mamede de Carvalho & Caroline Ingre. (2023) Diagnostic delay in amyotrophic lateral sclerosis. European Journal of Neurology 30:9, pages 2595-2601.
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Maize C. Cao, Erin E. Cawston, Grace Chen, Collin Brooks, Jeroen Douwes, Dave McLean, E. Scott Graham, Mike Dragunow & Emma L. Scotter. (2022) Serum biomarkers of neuroinflammation and blood-brain barrier leakage in amyotrophic lateral sclerosis. BMC Neurology 22:1.
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J.F. Vázquez-Costa, M. Martínez-Molina, M. Fernández-Polo, V. Fornés-Ferrer, M. Frasquet-Carrera & T. Sevilla-Mantecón. (2021) Analysis of the diagnostic pathway and delay in patients with amyotrophic lateral sclerosis in the Valencian Community. Neurología (English Edition) 36:7, pages 504-513.
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J.F. Vázquez-Costa, M. Martínez-Molina, M. Fernández-Polo, V. Fornés-Ferrer, M. Frasquet-Carrera & T. Sevilla-Mantecón. (2021) Análisis del trayecto y retraso diagnóstico de los pacientes con esclerosis lateral amiotrófica en la Comunidad Valenciana. Neurología 36:7, pages 504-513.
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Jang Woo Lee, Seong-Woong Kang & Won Ah Choi. (2021) Clinical Course of Amyotrophic Lateral Sclerosis according to Initial Symptoms: An Analysis of 500 Cases. Yonsei Medical Journal 62:4, pages 338.
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Jaime Raymond, Paul Mehta, Ted Larson, Erik P. Pioro & D. Kevin Horton. (2021) Reproductive History and Age of Onset for Women Diagnosed with Amyotrophic Lateral Sclerosis: Data from the National ALS Registry: 2010–2018. Neuroepidemiology 55:5, pages 416-424.
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Marina Martínez-Molina, Herminia Argente-Escrig, Margarita F. Polo, David Hervás, Marina Frasquet, Victoria Cortés, Teresa Sevilla & Juan F. Vázquez-Costa. (2020) Early Referral to an ALS Center Reduces Several Months the Diagnostic Delay: A Multicenter-Based Study. Frontiers in Neurology 11.
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Elin RoosDaniela MariosaCaroline IngreCecilia LundholmKarin WirdefeldtPer M. RoosFang Fang. (2016) Depression in amyotrophic lateral sclerosis. Neurology 86:24, pages 2271-2277.
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Federica Edith Pisa, Giancarlo Logroscino, Anica Casetta, Laura Cecotti, Lorenzo Verriello, Alessio Bratina, Arianna Sartori, Lucio Lazzarino de Lorenzo, Roberto Eleopra & Fabio Barbone. (2015) The Use of Antidepressant Medication before and after the Diagnosis of Amyotrophic Lateral Sclerosis: A Population-Based Cohort Study. Neuroepidemiology 44:2, pages 91-98.
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Cassie S. Mitchell, Sabrina K. Hollinger, Shivani D. Goswami, Meraida A. Polak, Robert H. Lee & Jonathan D. Glass. (2015) Antecedent Disease Is Less Prevalent in Amyotrophic Lateral Sclerosis. Neurodegenerative Diseases 15:2, pages 109-113.
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Hipolito Nzwalo, Daisy de Abreu, Michael Swash, Susana Pinto & Mamede de Carvalho. (2014) Delayed diagnosis in ALS: The problem continues. Journal of the Neurological Sciences 343:1-2, pages 173-175.
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E. Fondell, E. J. O'Reilly, K. C. Fitzgerald, G. J. Falcone, L. N. Kolonel, Y. Park, M. L. McCullough & A. Ascherio. (2014) Dietary Fiber and Amyotrophic Lateral Sclerosis: Results From 5 Large Cohort Studies. American Journal of Epidemiology 179:12, pages 1442-1449.
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