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ORIGINAL ARTICLE

Cognitive and behavioral challenges in caring for patients with frontotemporal dementia and amyotrophic lateral sclerosis

, , , &
Pages 298-302 | Received 04 Sep 2009, Accepted 08 Jan 2010, Published online: 11 Mar 2010

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Read on this site (12)

. (2023) Theme 04 - In Vivo Experimetal Models. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:sup1, pages 128-139.
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Claire M. O’Connor, Lindy Clemson, Henry Brodaty, Lee-Fay Low, Yun-Hee Jeon, Laura N. Gitlin, Olivier Piguet & Eneida Mioshi. (2019) The tailored activity program (TAP) to address behavioral disturbances in frontotemporal dementia: a feasibility and pilot study. Disability and Rehabilitation 41:3, pages 299-310.
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Jashelle Caga, Sharpley Hsieh, Elizabeth Highton-Williamson, Margaret C. Zoing, Eleanor Ramsey, Emma Devenney, Rebekah M. Ahmed, Anne Hogden & Matthew C. Kiernan. (2018) The burden of apathy for caregivers of patients with amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:7-8, pages 599-605.
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Sophie Claire Andrews, Alexia Pavlis, Mathew Staios & Fiona Fisher. (2017) Which behaviours? Identifying the most common and burdensome behaviour changes in amyotrophic lateral sclerosis. Psychology, Health & Medicine 22:4, pages 483-492.
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Amy DeBaets. (2016) Responsibility, Constraint, and the Complexities of Moral Agency. AJOB Neuroscience 7:4, pages 212-213.
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Samar M Aoun, Lauren J Breen, Denise Howting, Robert Edis, David Oliver, Robert Henderson, Margaret O’Connor, Rodney Harris & Carol Birks. (2016) Receiving the news of a diagnosis of motor neuron disease: What does it take to make it better?. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 17:3-4, pages 168-178.
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Tamlyn J. Watermeyer, Richard G. Brown, Katie C. L. Sidle, David J. Oliver, Christopher Allen, Joanna Karlsson, Cathy Ellis, Christopher E. Shaw, Ammar Al-Chalabi & Laura H. Goldstein. (2015) Impact of disease, cognitive and behavioural factors on caregiver outcome in amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 16:5-6, pages 316-323.
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. (2014) THEME 3 COGNITIVE AND PSYCHOLOGICAL ASSESSMENT AND SUPPORT. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 15:sup1, pages 81-92.
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Claire M. O’Connor, Samrah Ahmed & Eneida Mioshi. (2014) Functional disability in primary progressive aphasia. Aphasiology 28:8-9, pages 1131-1149.
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Patricia Lillo, Eneida Mioshi, Margaret C. Zoing, Matthew C. Kiernan & John R. Hodges. (2011) How common are behavioural changes in amyotrophic lateral sclerosis?. Amyotrophic Lateral Sclerosis 12:1, pages 45-51.
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Renée N. Douville & Avindra Nath. (2017) Human Endogenous Retrovirus-K and TDP-43 Expression Bridges ALS and HIV Neuropathology. Frontiers in Microbiology 8.
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M.-H. Soriani & C. Desnuelle. (2017) Care management in amyotrophic lateral sclerosis. Revue Neurologique 173:5, pages 288-299.
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Joachim Wolf & Anton Safer. (2017) Was die ALS-Phänotypen für die Prognose bedeuten. NeuroTransmitter 28:5, pages 29-34.
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Brenda BentleyMoira O'Connor. (2016) The End-of-Life Experiences of People with Motor Neuron Disease: Family Carers' Perspectives. Journal of Palliative Medicine 19:8, pages 857-862.
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Ann Van der Jeugd, Ben Vermaercke, Glenda M. Halliday, Matthias Staufenbiel & Jürgen Götz. (2016) Impulsivity, decreased social exploration, and executive dysfunction in a mouse model of frontotemporal dementia. Neurobiology of Learning and Memory 130, pages 34-43.
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Jackie Hill. (2016) Cognition and motor neurone disease: the facts. British Journal of Neuroscience Nursing 12:1, pages 38-39.
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Sharpley Hsieh, Cristian E. Leyton, Jashelle Caga, Emma Flanagan, Cassandra Kaizik, Claire M. O’Connor, Matthew C. Kiernan, John R. Hodges, Olivier Piguet & Eneida Mioshi. (2015) The Evolution of Caregiver Burden in Frontotemporal Dementia with and without Amyotrophic Lateral Sclerosis. Journal of Alzheimer's Disease 49:3, pages 875-885.
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David MacKintosh. (2015) Get the facts right: time for evidence-based ethics. Journal of Medical Ethics 41:10, pages 830-831.
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Lauren Massimo, Lois K. Evans & Murray Grossman. (2014) Differentiating Subtypes of Apathy to Improve Person-Centered Care in Frontotemporal Degeneration. Journal of Gerontological Nursing 40:10, pages 58-65.
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Piet van Leeuwen. (2014) Palliatieve zorg en ALS. Pallium 16:4, pages 14-15.
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. (2014) Thursday 5 June 2014. British Journal of Occupational Therapy 77:8_suppl, pages 46-74.
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Andrew Eisen, Martin R. Turner & Roger Lemon. (2014) Tools and talk: An evolutionary perspective on the functional deficits associated with amyotrophic lateral sclerosis. Muscle & Nerve 49:4, pages 469-477.
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Seong-il Oh, Aram Park, Hee-Jin Kim, Ki-Wook Oh, Hojin Choi, Min-Jung Kwon, Chang-Seok Ki, Hee-Tae Kim & Seung Hyun Kim. (2014) Spectrum of Cognitive Impairment in Korean ALS Patients without Known Genetic Mutations. PLoS ONE 9:2, pages e87163.
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Claire FlahertyAllyson Brothers, Darren Hoffer, Marissa Harrison, Chengwu Yang, Richard S Legro & Zachery Simmons. (2013) VALUES: a national multicenter study demonstrating gender differences in amyotrophic lateral sclerosis with behavioral impairment. Neurodegenerative Disease Management 3:6, pages 515-524.
Crossref
. (2013) Abstracts. British Journal of Occupational Therapy 76:7_suppl, pages 1-165.
Crossref
Samar M Aoun, Brenda Bentley, Laura Funk, Chris Toye, Gunn Grande & Kelli J Stajduhar. (2012) A 10-year literature review of family caregiving for motor neurone disease: Moving from caregiver burden studies to palliative care interventions. Palliative Medicine 27:5, pages 437-446.
Crossref
Olivier Piguet & John R. Hodges. (2013) Behavioural-variant frontotemporal dementia: An update. Dementia & Neuropsychologia 7:1, pages 10-18.
Crossref
Patricia Lillo, Eneida Mioshi & John R Hodges. (2012) Caregiver burden in amyotrophic lateral sclerosis is more dependent on patients’ behavioral changes than physical disability: a comparative study. BMC Neurology 12:1.
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Sabine Nunnemann, Alexander Kurz, Stefan Leucht & Janine Diehl-Schmid. (2012) Caregivers of patients with frontotemporal lobar degeneration: a review of burden, problems, needs, and interventions. International Psychogeriatrics 24:9, pages 1368-1386.
Crossref
Claire Flaherty-CraigAllyson Brothers, Ashley McFalls, Chengwu Yang & Zachary Simmons. (2012) VALUES † : a national multicenter study of regional and gender differences in frontotemporal disease in amyotrophic lateral sclerosis . Neurodegenerative Disease Management 2:3, pages 325-336.
Crossref
Ru-Jing Ren, Yue Huang, Gang Xu, Chun-Bo Li, Qi Cheng, Sheng-Di Chen & Gang Wang. (2012) History, Present, and Progress of Frontotemporal Dementia in China: A Systematic Review. International Journal of Alzheimer's Disease 2012, pages 1-6.
Crossref
Gregory A. Jicha. (2011) Medical Management of Frontotemporal Dementias: The Importance of the Caregiver in Symptom Assessment and Guidance of Treatment Strategies. Journal of Molecular Neuroscience 45:3, pages 713-723.
Crossref
Matthew C Kiernan, Steve Vucic, Benjamin C Cheah, Martin R Turner, Andrew Eisen, Orla Hardiman, James R Burrell & Margaret C Zoing. (2011) Amyotrophic lateral sclerosis. The Lancet 377:9769, pages 942-955.
Crossref
Olivier Piguet, Michael Hornberger, Eneida Mioshi & John R Hodges. (2011) Behavioural-variant frontotemporal dementia: diagnosis, clinical staging, and management. The Lancet Neurology 10:2, pages 162-172.
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