Citations (32)
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Alexandra Beyermann, Margareta Asp, Tove Godskesen & Mirkka Söderman. (2023) Nurses’ challenges when supporting the family of patients with ALS in specialized palliative home care: A qualitative study. International Journal of Qualitative Studies on Health and Well-being 18:1.
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Christopher Poppe, Insa Koné, Luzia Margarete Iseli, Kathi Schweikert, Bernice Simone Elger & Tenzin Wangmo. (2020) Differentiating needs of informal caregivers of individuals with ALS across the caregiving course: a systematic review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:7-8, pages 519-541.
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Louise Sofia Madsen, Jørgen Jeppesen & Charlotte Handberg. (2019) “Understanding my ALS”. Experiences and reflections of persons with amyotrophic lateral sclerosis and relatives on participation in peer group rehabilitation. Disability and Rehabilitation 41:12, pages 1410-1418.
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Juyeon Oh & Jung A. Kim. (2018) Factor analysis of the Zarit Burden Interview in family caregivers of patients with amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:1-2, pages 50-56.
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Tamlyn J. Watermeyer, Richard G. Brown, Katie C. L. Sidle, David J. Oliver, Christopher Allen, Joanna Karlsson, Cathy Ellis, Christopher E. Shaw, Ammar Al-Chalabi & Laura H. Goldstein. (2015) Impact of disease, cognitive and behavioural factors on caregiver outcome in amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 16:5-6, pages 316-323.
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Articles from other publishers (27)
Ana Paula Trucco, Eneida Mioshi, Naoko Kishita, Caroline Barry & Tamara Backhouse. (2023) Navigating an emotional journey: A qualitative study of the emotional experiences of family carers currently supporting people living with motor neurone disease. Palliative and Supportive Care, pages 1-7.
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Manjusha G Warrier, Arun Sadasivan, Bhuvaneshwari Balasubramaian, Meera G Nair, Saraswati Nashi, Seena Vengalil, A Nalini & Priya Treesa Thomas. (2021) A meta-ethnographic synthesis of lived experience of spouse caregivers in chronic illness. Qualitative Social Work 21:2, pages 431-454.
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Manjusha G Warrier, Priya Treesa Thomas, Arun Sadasivan, Saraswati Nashi, Seena Vengalil & A. Nalini. (2022) Development of Guidelines for Spouses Engaged in Home-Based Care of Persons With Motor Neuron Disease From Indian Context. Journal of Patient Experience 9, pages 237437352210775.
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Cathryn Pinto, Adam W A Geraghty, Lucy Yardley & Laura Dennison. (2021) Emotional distress and well-being among people with motor neurone disease (MND) and their family caregivers: a qualitative interview study. BMJ Open 11:8, pages e044724.
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Barbara Bassola, Silvia Cilluffo & Maura Lusignani. (2020) Going inside the relationship between caregiver and care‐receiver with Amyotrophic Lateral Sclerosis in Italy, a Grounded Theory study. Health & Social Care in the Community 29:4, pages 1083-1090.
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Matthew Munan, Westerly Luth, Shelagh K. Genuis, Wendy S.W. Johnston & Erika MacIntyre. (2020) Transitions in Amyotrophic Lateral Sclerosis: Patient and Caregiver Experiences. Canadian Journal of Neurological Sciences / Journal Canadien des Sciences Neurologiques 48:4, pages 496-503.
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Juyeon Oh, Jung-A Kim & Min Sun Chu. (2021) Family Caregiver Suffering in Caring for Patients with Amyotrophic Lateral Sclerosis in Korea. International Journal of Environmental Research and Public Health 18:9, pages 4937.
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Michael Toze, Mo Ray, Thomas George, Kelly Sisson & David Nelson. (2020) End of life care for long-term neurological conditions: A meta-ethnographic review of the experiences of informal carers. Palliative Medicine 35:2, pages 335-354.
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ManjushaG Warrier, Arun Sadasivan, Kiran Polavarapu, VeeramaniPreethish Kumar, NiranjanPrakash Mahajan, ChevulaPradeep Chandra Reddy, Seena Vengalil, Saraswati Nashi, Atchayaram Nalini & PriyaTreesa Thomas. (2020) Lived experience of spouses of persons with motor neuron disease: Preliminary findings through interpretative phenomenological analysis. Indian Journal of Palliative Care 26:1, pages 60.
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Helen Aret Brewah. (2019) A qualitative study of the preparedness of practitioners to care for people with motor neurone disease in their homes. Primary Health Care 29:5, pages 38-44.
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Yao HuangBeiQian MaoPengWen NiYuYan ShouJunNa YeLili HouTing Xie. (2019) Investigation on the Status and Determinants of Caregiver Burden on Caring for Patients with Chronic Wound. Advances in Wound Care 8:9, pages 429-437.
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Barbara Poletti, Laura Carelli, Federica Solca, Rita Pezzati, Andrea Faini, Nicola Ticozzi, Hiroshi Mitsumoto & Vincenzo Silani. (2019) Sexuality and intimacy in ALS: systematic literature review and future perspectives. Journal of Neurology, Neurosurgery & Psychiatry 90:6, pages 712-719.
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Lorna Hollowood. (2018) Issues affecting people with motor neurone disease and their carers: a literature review. British Journal of Neuroscience Nursing 14:6, pages 278-284.
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Lucy Holkham & Andy Soundy. (2017) The experience of informal caregivers of patients with motor neurone disease: A thematic synthesis. Palliative and Supportive Care 16:4, pages 487-496.
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Sabrina Cipolletta, Giorgia Rosamaria Gammino, Patrizia Francescon & Arianna Palmieri. (2018) Mutual support groups for family caregivers of people with amyotrophic lateral sclerosis in Italy: A pilot study. Health & Social Care in the Community 26:4, pages 556-563.
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Mona Shahbazi, Shara Holzberg, Saeyoan Thirunavukkarasu & Gioia Ciani. (2017) Perceptions of sexuality in individuals with Amyotrophic Lateral Sclerosis (ALS) and their treating clinicians. NeuroRehabilitation 41:2, pages 331-342.
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Cathy Gluyas, Susan Mathers, Nicole Hennessy Anderson & Anna Ugalde. (2016) Factors to consider for motor neurone disease carer intervention research: A narrative literature review. Palliative and Supportive Care 15:5, pages 600-608.
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Samar M. Aoun, Kathleen Deas, Linda J. Kristjanson & David W. Kissane. (2016) Identifying and addressing the support needs of family caregivers of people with motor neurone disease using the Carer Support Needs Assessment Tool. Palliative and Supportive Care 15:1, pages 32-43.
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Miriam Galvin, Bernie Corr, Caoifa Madden, Iain Mays, Regina McQuillan, Virpi Timonen, Anthony Staines & Orla Hardiman. (2016) Caregiving in ALS – a mixed methods approach to the study of Burden. BMC Palliative Care 15:1.
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J. Martín Martín, M. Olano-Lizarraga & M. Saracíbar-Razquin. (2016) The experience of family caregivers caring for a terminal patient at home: A research review. International Journal of Nursing Studies 64, pages 1-12.
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Susan Bergin & Carole Mockford. (2016) Recommendations to support informal carers of people living with motor neurone disease. British Journal of Community Nursing 21:10, pages 518-524.
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Huub Creemers, Sandra de Morée, Jan H Veldink, Frans Nollet, Leonard H van den Berg & Anita Beelen. (2016) Factors related to caregiver strain in ALS: a longitudinal study. Journal of Neurology, Neurosurgery & Psychiatry 87:7, pages 775-781.
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Birgitta Jakobsson Larsson, Camilla Fröjd, Karin Nordin & Ingela Nygren. (2015) Relatives of patients with amyotrophic lateral sclerosis: Their experience of care and support. Palliative and Supportive Care 13:6, pages 1569-1577.
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Anneli O. Ozanne, Ulla H. Graneheim & Susann Strang. (2014) Struggling to find meaning in life among spouses of people with ALS. Palliative and Supportive Care 13:4, pages 909-916.
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Sabrina Cipolletta & Linda Amicucci. (2015) The family experience of living with a person with amyotrophic lateral sclerosis: A qualitative study. International Journal of Psychology 50:4, pages 288-294.
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Susan K. BaxterWendy O. BairdSue ThompsonStephen M. BianchiStephen J. WaltersEllen LeeSam H. AhmedzaiAlison ProctorPamela J. ShawChristopher J. McDermott. (2013) The Impact on the Family Carer of Motor Neurone Disease and Intervention with Noninvasive Ventilation. Journal of Palliative Medicine 16:12, pages 1602-1609.
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