Citations (22)
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Hamish W. Y. Wan, Kate A. Carey, Arlene D’Silva, Nadine A. Kasparian & Michelle A. Farrar. (2019) “Getting ready for the adult world”: how adults with spinal muscular atrophy perceive and experience healthcare, transition and well-being. Orphanet Journal of Rare Diseases 14:1.
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Esther T. Kruitwagen-van Reenen, Ludo van der Pol, Carin Schröder, Renske I. Wadman, Leonard H. van den Berg, Johanna M. A. Visser-Meily & Marcel W. M. Post. (2018) Social participation of adult patients with spinal muscular atrophy: Frequency, restrictions, satisfaction, and correlates. Muscle & Nerve 58:6, pages 805-811.
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Richard S. Finkel, Thomas Sejersen, Eugenio Mercuri, E. Bertini, K. Chen, T.O. Crawford, V. Dubowitz, M. de Lemus, R. Graham, R. Hurst Davis, S. Iannaccone, J. Kirschner, M. Main, O. Mayer, E. Mazzone, J. Montes, F. Muntoni, A. Murphy, S. Quijano-Roy, A. Robertson, M. Schroth, A. Simonds, B. Snyder, M. Vitale, A. Wittchen, S. Woods, Y. Qian & B. Wirth. (2017) 218th ENMC International Workshop:. Neuromuscular Disorders 27:6, pages 596-605.
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Esther Th Kruitwagen-Van Reenen, Renske I Wadman, Johanna Ma Visser-Meily, Leonard H. van den Berg, Carin Schröder & W. Ludo van der Pol. (2016) Correlates of health related quality of life in adult patients with spinal muscular atrophy. Muscle & Nerve 54:5, pages 850-855.
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