Citations (28)
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Åsa-Sara Sernheim, Helena Hemmingsson, Helene Lidström, I. Witt Engerström & G. M. Liedberg. (2020) Rett syndrome: Teenagers’ and young adults’ activities, usage of time and responses during an ordinary week – a diary study. Scandinavian Journal of Occupational Therapy 27:5, pages 323-335.
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Gillian S. Townend, Theresa E. Bartolotta, Anna Urbanowicz, Helena Wandin & Leopold M.G. Curfs. (2020) Development of consensus-based guidelines for managing communication of individuals with Rett syndrome. Augmentative and Alternative Communication 36:2, pages 71-81.
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Helena Tegler, Mia Pless, Monica Blom Johansson & Karin Sonnander. (2019) Speech and language pathologists’ perceptions and practises of communication partner training to support children’s communication with high-tech speech generating devices. Disability and Rehabilitation: Assistive Technology 14:6, pages 581-589.
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Åsa-Sara Sernheim, Helena Hemmingsson, Ingegerd Witt Engerström & Gunilla Liedberg. (2018) Activities that girls and women with Rett syndrome liked or did not like to do. Scandinavian Journal of Occupational Therapy 25:4, pages 267-277.
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Kelli Vessoyan, Gill Steckle, Barb Easton, Megan Nichols, Victoria Mok Siu & Janette McDougall. (2018) Using eye-tracking technology for communication in Rett syndrome: perceptions of impact. Augmentative and Alternative Communication 34:3, pages 230-241.
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Anna Urbanowicz, Natalie Ciccone, Sonya Girdler, Helen Leonard & Jenny Downs. (2018) Choice making in Rett syndrome: a descriptive study using video data. Disability and Rehabilitation 40:7, pages 813-819.
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Articles from other publishers (22)
Rebecca L. Kolb, Jennifer J. McComas, Shawn N. Girtler, Jessica Simacek, Adele F. Dimian, Emily K. Unholz-Bowden & Alefyah H. Shipchandler. (2023) Teaching Requesting to Individuals with Rett Syndrome Using Alternative Augmentative Communication (AAC) Through Caregiver Coaching via Telehealth. Journal of Developmental and Physical Disabilities 35:6, pages 1063-1090.
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Alberto Romano, Meir Lotan & Rosa Angela Fabio. (2023) A Severity Comparison between Italian and Israeli Rett Syndrome Cohorts. Diagnostics 13:21, pages 3390.
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Jeffrey L. Neul, Alan K. Percy, Timothy A. Benke, Elizabeth M. Berry-Kravis, Daniel G. Glaze, Sarika U. Peters, Eric D. Marsh, Di An, Kathie M. Bishop & James M. Youakim. (2023) Trofinetide Treatment Demonstrates a Benefit Over Placebo for the Ability to Communicate in Rett Syndrome. Pediatric Neurology.
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Bryce B. Reeve, Nicole Lucas, Dandan Chen, Molly McFatrich, Harrison N. Jones, Kelly L. Gordon, Leslie Zapata Leiva, Li Lin, Monica Coenraads, Jana von Hehn, Randall L. Carpenter, Eric D. Marsh & Christina K. Zigler. (2023) Validation of the Observer-Reported Communication Ability (ORCA) measure for individuals with Rett syndrome. European Journal of Paediatric Neurology 46, pages 74-81.
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Alan K. Percy, Jeffrey L. Neul, Timothy A. Benke, Eric D. Marsh & Daniel G. Glaze. (2023) A review of the Rett Syndrome Behaviour Questionnaire and its utilization in the assessment of symptoms associated with Rett syndrome. Frontiers in Pediatrics 11.
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Yael S. Stern, Jordan Lee, Rachel Levy, Alana Glickman, Jeffrey Grauzer, Aaron J. Kaat & Megan Y. Roberts. (2023) A Comparison of Maternal and Clinician Perception of Communication in Autistic Toddlers. Journal of Speech, Language, and Hearing Research 66:6, pages 2064-2078.
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Xin-yan Zhang & Karen Spruyt. (2023) Non-Verbal Social Skills Assessment in Rett Syndrome: a Systematic Review. Review Journal of Autism and Developmental Disorders.
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Shawn N. Girtler, Emily K. Unholz-Bowden, Alefyah Shipchandler, Rebecca L. Kolb & Jennifer J. McComas. (2023) Use of Augmentative and Alternative Communication by Individuals with Rett Syndrome Part 1: Page-Linking. Journal of Developmental and Physical Disabilities.
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Sara Nayelle Ferreira de Sousa, Cintia Da Silva Araújo, Lígia Cardoso Azevedo, Elen Silva de Oliveira, Uilma Sacramento Santana, Francielly Dos Santos Silva, Maycon Carvalho Andrade & Jéssica Mendes dos Santos. (2022) THE ROLE OF THE PHYSICAL THERAPIST IN CHILDREN WITH NEUROPSYCHOMOTOR RETARDATION DIAGNOSED WITH RETT SYNDROME. Health and Society 2:05, pages 185-202.
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Michelle Lui, Amrita Maharaj, Roula Shimaly, Asiya Atcha, Hamza Ali, Stacie Carroll & Rhonda McEwen. (2021) User Experiences of Eye Gaze Classroom Technology for Children With Complex Communication Needs. Journal of Special Education Technology 37:3, pages 426-436.
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María Luisa Gómez Taibo & Sara Paramos Alonso. (2022) Documentación de habilidades comunicativas y de lenguaje receptivo en un caso de Síndrome de Rett. Revista de Investigación en Logopedia 12:2, pages e77431.
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Jeffrey L. Neul, Alan K. Percy, Timothy A. Benke, Elizabeth M. Berry-Kravis, Daniel G. Glaze, Sarika U. Peters, Nancy E. Jones & James M. Youakim. (2022) Design and outcome measures of LAVENDER, a phase 3 study of trofinetide for Rett syndrome. Contemporary Clinical Trials 114, pages 106704.
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Callie Ward, Shula Chiat & Gillian S. Townend. (2021) A comparison of formal and informal methods for assessing language and cognition in children with Rett syndrome. Research in Developmental Disabilities 114, pages 103961.
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Rhonda McEwen, Asiya Atcha, Michelle Lui, Roula Shimaly, Amrita Maharaj, Syed Ali & Stacie Carroll. (2020) Interlocutors and Interactions: Examining the Interactions Between Students With Complex Communication Needs, Teachers, and Eye-Gaze Technology. Human-Machine Communication 1, pages 113-131.
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Aurore Morel, Elodie Peyroux, Arnaud Leleu, Emilie Favre, Nicolas Franck & Caroline Demily. (2018) Overview of Social Cognitive Dysfunctions in Rare Developmental Syndromes With Psychiatric Phenotype. Frontiers in Pediatrics 6.
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Jessica Simacek, Brittany Pennington, Joe Reichle & Quannah Parker-McGowan. (2017) Aided AAC for people with severe to profound and multiple disabilities: A systematic review of interventions and treatment intensity. Advances in Neurodevelopmental Disorders 2:1, pages 100-115.
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Tessa ClarksonJocelyn LeBlancGeneva DeGregorioVanessa Vogel-FarleyKatherine BarnesWalter E. KaufmannCharles A. Nelson. (2017) Adapting the Mullen Scales of Early Learning for a Standardized Measure of Development in Children With Rett Syndrome. Intellectual and Developmental Disabilities 55:6, pages 419-431.
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Gunter Loffler & Gordon Gael. (2017) Cognitive function in Rett syndrome: profoundly impaired or near normal?. European Journal of Paediatric Neurology.
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A. Morel & C. Demily. (2017) Cognition sociale dans les troubles neuro-génétiques de l’enfant : revue de la littérature. Archives de Pédiatrie 24:8, pages 757-765.
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Anthony Hornof, Haley Whitman, Marah Sutherland, Samuel Gerendasy & Joanna McGrenere. (2017) Designing for the "Universe of One". Designing for the "Universe of One".
Jenny Downs & Helen Leonard. (2016) Quantitative and qualitative insights into the experiences of children with Rett syndrome and their familiesQuantitative und qualitative Einblicke in die Erfahrungen von Kindern mit Rett-Syndrom und ihren Familien. Wiener Medizinische Wochenschrift 166:11-12, pages 338-345.
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Hannah M. Julien, Quannah Parker-McGowan, Breanne J. Byiers & Joe Reichle. (2014) Adult Interpretations of Communicative Behavior in Learners with Rett Syndrome. Journal of Developmental and Physical Disabilities 27:2, pages 167-182.
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