Citations (21)
Keep up to date with the latest research on this topic with citation updates for this article.
Read on this site (2)
Christopher Poppe, Insa Koné, Luzia Margarete Iseli, Kathi Schweikert, Bernice Simone Elger & Tenzin Wangmo. (2020) Differentiating needs of informal caregivers of individuals with ALS across the caregiving course: a systematic review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:7-8, pages 519-541.
Read now
Read now
Geraldine Foley & Geralyn Hynes. (2018) Decision-making among patients and their family in ALS care: a review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:3-4, pages 173-193.
Read now
Read now
Articles from other publishers (19)
Heather M. Young, Tina R. Kilaberia, Robin Whitney, Benjamin M. Link, Janice F. Bell, Orly Tonkikh, Jessica Famula & Björn Oskarsson. (2023)
Needs of persons living with
ALS
at home and their family caregivers: A scoping review
. Muscle & Nerve 68:3, pages 240-249.
Crossref
Crossref
Kushwanth Koya, Gobinda Chowdhury & Emma Green. (2022) Young informal carers’ information needs communicated online: Professional and personal growth, finance, health and relationships. Journal of Information Science, pages 016555152211368.
Crossref
Crossref
Camille Paynter, Susan Mathers, Heidi Gregory, Adam P. Vogel & Madeline Cruice. (2022) Using the Concept of Health Literacy to Understand How People Living with Motor Neurone Disease and Carers Engage in Healthcare: A Longitudinal Qualitative Study. Healthcare 10:8, pages 1371.
Crossref
Crossref
Aijing Luo, Lu Qin, Yifeng Yuan, Zhengzijin Yang, Fei Liu, Panhao Huang & Wenzhao Xie. (2022) The Effect of Online Health Information Seeking on Physician-Patient Relationships: Systematic Review. Journal of Medical Internet Research 24:2, pages e23354.
Crossref
Crossref
Christopher Poppe, Kathi Schweikert, Tanja Krones & Tenzin Wangmo. (2022) Supportive needs of informal caregivers of people with amyotrophic lateral sclerosis in Switzerland: a qualitative study. Palliative Care and Social Practice 16, pages 263235242210777.
Crossref
Crossref
Juyeon Oh, SeolHwa Moon & Kyongok Park. (2022) Amyotrophic lateral sclerosis in social media: Content analysis of YouTube videos. Health Informatics Journal 28:2, pages 146045822211059.
Crossref
Crossref
Katy Tobin, Sinead Maguire, Bernie Corr, Charles Normand, Orla Hardiman & Miriam Galvin. (2021) Discrete choice experiment for eliciting preference for health services for patients with ALS and their informal caregivers. BMC Health Services Research 21:1.
Crossref
Crossref
Shelagh K. Genuis, Westerly Luth, Sandra Campbell, Tania Bubela & Wendy S. Johnston. (2021) Communication About End of Life for Patients Living With Amyotrophic Lateral Sclerosis: A Scoping Review of the Empirical Evidence. Frontiers in Neurology 12.
Crossref
Crossref
Katharina Wollmann, Piet van der Keylen, Johanna Tomandl, Joerg J. Meerpohl, Mario Sofroniou, Andy Maun & Sebastian Voigt-Radloff. (2021) The information needs of internet users and their requirements for online health information—A scoping review of qualitative and quantitative studies. Patient Education and Counseling 104:8, pages 1904-1932.
Crossref
Crossref
Wendy S. Johnston & Westerly Luth. 2021. Public Policy in ALS/MND Care. Public Policy in ALS/MND Care
77
96
.
Rachael Keast, Phyllis N. Butow, Ilona Juraskova & Rebekah Laidsaar-Powell. (2020) Online resources for family caregivers of cognitively competent patients: A review of user-driven reputable health website content on caregiver communication with health professionals. Patient Education and Counseling 103:12, pages 2408-2419.
Crossref
Crossref
Eleftherios Anestis, Fiona Eccles, Ian Fletcher, Maddy French & Jane Simpson. (2020) Giving and receiving a diagnosis of a progressive neurological condition: A scoping review of doctors’ and patients’ perspectives. Patient Education and Counseling 103:9, pages 1709-1723.
Crossref
Crossref
Gerd Berget & Andrew MacFarlane. (2020) What Is Known About the Impact of Impairments on Information Seeking and Searching?. Journal of the Association for Information Science and Technology 71:5, pages 596-611.
Crossref
Crossref
Klaudia Kukulka, Karla T. Washington, Raghav Govindarajan & David R. Mehr. (2019) Stakeholder Perspectives on the Biopsychosocial and Spiritual Realities of Living With ALS: Implications for Palliative Care Teams. American Journal of Hospice and Palliative Medicine® 36:10, pages 851-857.
Crossref
Crossref
Tom Burke, Jennifer Wilson O'Raghallaigh, Sinead Maguire, Miriam Galvin, Mark Heverin, Orla Hardiman & Niall Pender. (2019) Group interventions for amyotrophic lateral sclerosis caregivers in Ireland: a randomised controlled trial protocol. BMJ Open 9:9, pages e030684.
Crossref
Crossref
Anneli Ozanne & Ulla H. Graneheim. (2018) Understanding the incomprehensible - patients’ and spouses’ experiences of comprehensibility before, at and after diagnosis of amyotrophic lateral sclerosis. Scandinavian Journal of Caring Sciences 32:2, pages 663-671.
Crossref
Crossref
Ralf J. Jox. 2017. Angewandte Ethik in der Neuromedizin. Angewandte Ethik in der Neuromedizin
201
211
.
Alessia Pizzimenti, Maria Cristina Gori, Emanuela Onesti, Bev John & Maurizio Inghilleri. (2015) Communication of diagnosis in amyotrophic lateral sclerosis: stratification of patients for the estimation of the individual needs. Frontiers in Psychology 6.
Crossref
Crossref
Andrew Soundy & Nicola Condon. (2015) Patients experiences of maintaining mental well-being and hope within motor neuron disease: a thematic synthesis. Frontiers in Psychology 6.
Crossref
Crossref