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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 16, 2015 - Issue 1-2
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CLINICAL

Reproductive decision-making among individuals at risk for familial amyotrophic lateral sclerosis

Deborah E. H. HartzfeldVHA Central Office: Genomic Medicine Service, Department of Veterans Affairs, Salt Lake City, Utah, USACorrespondence[email protected]
,
Nailah SiddiqueFeinberg School of Medicine, The Herbert C. Wenske/Les Turner ALS Foundation Professor, Davee Department of Neurology and Clinical Neurosciences and Department of Cell and Molecular Biology, Director, Divison of Neuromuscular Medicine, Northwestern University, Chicago, IL, USA
,
David VictorsonMedical and Social Sciences; Center for Healthcare Studies, Northwestern University, Chicago, Illinois, USA
,
Suzanne O’NeillCenter for Genetic Medicine, Northwestern University, Chicago, Illinois, USA
,
Lisa KinsleyFeinberg School of Medicine, Davee Department of Neurology and Clinical Neurosciences, Division of Neuromuscular Medicine, Northwestern University, Chicago, Illinois, USA
&
Teepu SiddiqueDavee Department of Neurology and Clinical Neurosciences and Department of Cell and Molecular Biology, Division of Neuromuscular Medicine, Feinberg School of Medicine Northwestern University, Chicago, Illinois, USA
Pages 114-119 | Received 10 Jun 2014, Accepted 01 Aug 2014, Published online: 10 Sep 2014

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Jade Howard, Fadhila Mazanderani & Louise Locock. (2021) Life ‘on high alert’: how do people with a family history of motor neurone disease make sense of genetic risk? insights from an online forum. Health, Risk & Society 23:5-6, pages 179-195.
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Ashley Crook, Alison McEwen, Jennifer A. Fifita, Katharine Zhang, John B. Kwok, Glenda Halliday, Ian P. Blair & Dominic B. Rowe. (2019) The C9orf72 hexanucleotide repeat expansion presents a challenge for testing laboratories and genetic counseling. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 20:5-6, pages 310-316.
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Geraldine Foley & Geralyn Hynes. (2018) Decision-making among patients and their family in ALS care: a review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:3-4, pages 173-193.
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Ashley Crook, Kelly Williams, Lorel Adams, Ian Blair & Dominic B. Rowe. (2017) Predictive genetic testing for amyotrophic lateral sclerosis and frontotemporal dementia: genetic counselling considerations. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 18:7-8, pages 475-485.
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Articles from other publishers (5)

Rachel A. Paul, Aaron Baldwin, Kelsey Johnson, Sara Manning Peskin, Thomas F. Tropea, Meron Azage, Tanya Bardakjian & Laynie Dratch. (2023) Preimplantation Genetic Testing for Adult-Onset Neurodegenerative Disease. Neurology 101:19, pages 836-841.
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Ashley Crook, Chris Jacobs, Toby Newton-John, Rosie O’Shea & Alison McEwen. (2021) Genetic counseling and testing practices for late-onset neurodegenerative disease: a systematic review. Journal of Neurology 269:2, pages 676-692.
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Benedetta Niccolini, Valentina Palmieri, Marco De Spirito & Massimiliano Papi. (2021) Opportunities Offered by Graphene Nanoparticles for MicroRNAs Delivery for Amyotrophic Lateral Sclerosis Treatment. Materials 15:1, pages 126.
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Ashley Crook, Chris Jacobs, Toby Newton-John, Ebony Richardson & Alison McEwen. (2021) Patient and Relative Experiences and Decision-making About Genetic Testing and Counseling for Familial ALS and FTD. Alzheimer Disease & Associated Disorders 35:4, pages 374-385.
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Anne Hogden & Ashley Crook. (2017) Patient-centered decision making in amyotrophic lateral sclerosis: where are we?. Neurodegenerative Disease Management 7:6, pages 377-386.
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