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CLINICAL

The R of ALSFRS-R: Does it really mirror functional respiratory involvement in amyotrophic lateral sclerosis?

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Pages 120-123 | Received 12 Apr 2014, Accepted 04 Aug 2014, Published online: 10 Sep 2014

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Susana Pinto. (2023) Determining the need for caregiver support using ALSFRS-R and its limitations. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:1-2, pages 155-156.
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. (2022) Theme 10 - Disease Stratification and Phenotyping of Patients. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 23:sup1, pages 150-166.
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Umberto Manera, Luca Solero, Christina Nicole Fournier, Antonio Canosa, Rosario Vasta, Alessandro Bombaci, Maurizio Grassano, Francesca Palumbo, Maria Claudia Torrieri, Paolina Salamone, Federico Casale, Giuseppe Fuda, Cristina Moglia, Andrea Calvo & Adriano Chiò. (2022) Validation of the Italian version of the Rasch-Built Overall Amyotrophic Lateral Sclerosis Disability Scale (ROADS) administered to patients and their caregivers. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 23:5-6, pages 424-429.
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Terry D. Heiman-Patterson, Michael S. Sherman, Daohai Yu, Carlayne E. Jackson, Asha George & Edward J. Kasarskis. (2021) Use of a new ALS specific respiratory questionnaire: the ARES score. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:sup1, pages 48-53.
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Susana Pinto, Marta Gromicho & Mamede de Carvalho. (2019) Assessing upper limb function with ALSFRS-R in amyotrophic lateral sclerosis patients. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 20:5-6, pages 445-448.
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Carlayne Jackson, Mamede De Carvalho, Angela Genge, Terry Heiman-Patterson, Jeremy M. Shefner, Jenny Wei & Andrew A. Wolff. (2018) Relationships between slow vital capacity and measures of respiratory function on the ALSFRS-R. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:7-8, pages 506-512.
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Noah Lechtzin, Merit E. Cudkowicz, Mamede de Carvalho, Angela Genge, Orla Hardiman, Hiroshi Mitsumoto, Jesus S. Mora, Jeremy Shefner, Leonard H. Van den Berg & Jinsy A. Andrews. (2018) Respiratory measures in amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:5-6, pages 321-330.
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Susana Pinto & Mamede de Carvalho. (2017) Comparison of slow and forced vital capacities on ability to predict survival in ALS. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 18:7-8, pages 528-533.
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Susana Pinto & Mamede de Carvalho. (2017) Correlation between Forced Vital Capacity and Slow Vital Capacity for the assessment of respiratory involvement in Amyotrophic Lateral Sclerosis: a prospective study. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 18:1-2, pages 86-91.
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M. Khamaysa, M. Lefort, M. Pélégrini-Issac, A. Lackmy-Vallée, M. M. El Mendili, A. Preuilh, D. Devos, G. Bruneteau, F. Salachas, T. Lenglet, Md. M. Amador, N. Le Forestier, A. Hesters, J. Gonzalez, A.-S. Rolland, C. Desnuelle, M. Chupin, G. Querin, M. Georges, C. Morelot-Panzini, V. Marchand-Pauvert & P.-F. Pradat. (2023) Quantitative brainstem and spinal MRI in amyotrophic lateral sclerosis: implications for predicting noninvasive ventilation needs. Journal of Neurology.
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Susana Pinto, Miguel Oliveira Santos, Marta Gromicho, Michael Swash & Mamede de Carvalho. (2023) Respiratory phenotypes in amyotrophic lateral sclerosis as determined by respiratory questions on the Amyotrophic Lateral Sclerosis Functional Rating Scale–Revised and their relation to respiratory tests. European Journal of Neurology 30:6, pages 1594-1599.
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Marta Gromicho, Tiago Leão, Miguel Oliveira Santos, Susana Pinto, Alexandra M. Carvalho, Sara C. Madeira & Mamede De Carvalho. (2022) Dynamic Bayesian networks for stratification of disease progression in amyotrophic lateral sclerosis. European Journal of Neurology 29:8, pages 2201-2210.
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Filipe Gonçalves & Bruno Magalhães. (2021) Effects of prolonged interruption of rehabilitation routines in amyotrophic lateral sclerosis patients. Palliative and Supportive Care 20:3, pages 369-374.
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Jochem Helleman, Esther T. Kruitwagen-van Reenen, J. Bakers, Willeke J. Kruithof, Annerieke C. van Groenestijn, Rineke J. H. Jaspers Focks, Arthur de Grund, Leonard H. van den Berg, Johanna M. A. Visser-Meily & Anita Beelen. (2020) Using patient-reported symptoms of dyspnea for screening reduced respiratory function in patients with motor neuron diseases. Journal of Neurology 267:11, pages 3310-3318.
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Naile Alankaya, Zeliha Tülek, Aylin Özakgül, Alper Kaya & Aynur Dik. (2019) Validity and Reliability of the Turkish Version of the Amyotrophic Lateral Sclerosis Assessment Questionnaire. Journal of Neuroscience Nursing 51:5, pages 253-258.
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Alice Pirola, Elisa De Mattia, Andrea Lizio, Giulia Sannicolò, Elena Carraro, Fabrizio Rao, Valeria Sansone & Christian Lunetta. (2019) The prognostic value of spirometric tests in Amyotrophic Lateral Sclerosis patients. Clinical Neurology and Neurosurgery 184, pages 105456.
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Susana Pinto & Mamede de Carvalho. (2019) SVC Is a Marker of Respiratory Decline Function, Similar to FVC, in Patients With ALS. Frontiers in Neurology 10.
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Susanne Vogt, Susanne Petri, Reinhard Dengler, Hans-Jochen Heinze & Stefan Vielhaber. (2018) Dyspnea in Amyotrophic Lateral Sclerosis: Rasch-Based Development and Validation of a Patient-Reported Outcome (DALS-15). Journal of Pain and Symptom Management 56:5, pages 736-745.e2.
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Stephen R. Pfohl, Renaid B. Kim, Grant S. Coan & Cassie S. Mitchell. (2018) Unraveling the Complexity of Amyotrophic Lateral Sclerosis Survival Prediction. Frontiers in Neuroinformatics 12.
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Susana Pinto, Marta Gromicho & Mamede de Carvalho. (2017) Sialorrhoea and reversals in ALS functional rating scale. Journal of Neurology, Neurosurgery & Psychiatry 88:2, pages 187-188.
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