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Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration Volume 16, 2015 - Issue 5-6
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ORIGINAL ARTICLE

Impact of disease, cognitive and behavioural factors on caregiver outcome in amyotrophic lateral sclerosis

Tamlyn J. WatermeyerDepartment of Psychology, Bangor University, Bangor, UK
,
Richard G. BrownKing's College London, Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience, London, UK
,
Katie C. L. SidleDepartment of Molecular Neuroscience, Institute of Neurology, University College London, London, UK
,
David J. OliverMedway Community Healthcare, The Wisdom Hospice, Kent, and University of Kent, The Centre for Professional Practice, Chatham, Kent, UK
,
Christopher AllenCambridge University Hospitals NHS Trust, Addenbrooke's Motor Neurone Disease Care & Research Centre, Cambridge, UK
,
Joanna KarlssonEast Kent Hospitals University NHS Trust, East Kent Motor Neurone Disease Service, Kent, UK
,
Cathy EllisKing's College Hospital NHS Foundation Trust, Motor Nerve Clinic, London, UK
,
Christopher E. ShawKing's College London, Department of Basic and Clinical Neuroscience, Institute of Psychiatry, Psychology and Neuroscience, London, UK
,
Ammar Al-ChalabiKing's College London, Department of Basic and Clinical Neuroscience, Institute of Psychiatry, Psychology and Neuroscience, London, UK
&
Laura H. GoldsteinKing's College London, Department of Psychology, Institute of Psychiatry, Psychology and Neuroscience, London, UKCorrespondence[email protected]
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Pages 316-323 | Received 15 Jan 2015, Accepted 12 Apr 2015, Published online: 22 Jul 2015

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Anna Maksymowicz-Śliwińska, Dorothée Lulé, Krzysztof NieporĘcki, Katarzyna Ciećwierska, Albert C. Ludolph & Magdalena Kuźma-Kozakiewicz. (2023) The quality of life and depression in primary caregivers of patients with amyotrophic lateral sclerosis is affected by patient-related and culture-specific conditions. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:3-4, pages 317-326.
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Mansur A. Kutlubaev, Jashelle Caga, Ying Xu, Daria K. Areprintseva, Ekaterina V. Pervushina & Matthew C. Kiernan. (2023) Apathy in amyotrophic lateral sclerosis: systematic review and meta-analysis of frequency, correlates, and outcomes. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 24:1-2, pages 14-23.
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Rebecca Francis, Stacie Attrill & Sebastian Doeltgen. (2021) The impact of cognitive decline in amyotrophic lateral sclerosis on swallowing. A scoping review. International Journal of Speech-Language Pathology 23:6, pages 604-613.
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Jashelle Caga, Margaret C. Zoing, David Foxe, Eleanor Ramsey, Mirelle D’Mello, Eneida Mioshi, Rebekah M. Ahmed, Matthew C. Kiernan & Olivier Piguet. (2021) Problem-focused coping underlying lower caregiver burden in ALS-FTD: implications for caregiver intervention. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 22:5-6, pages 434-441.
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Jessica de Wit, Anita Beelen, Marc S. van den Heerik, Leonard H. van den Berg, Johanna M. A. Visser-Meily & Carin D. Schröder. (2020) Psychological distress in partners of patients with amyotrophic lateral sclerosis and progressive muscular atrophy: what’s the role of care demands and perceived control?. Psychology, Health & Medicine 25:3, pages 319-330.
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Ratko Radakovic, Sarah McGrory, Siddharthan Chandran, Robert Swingler, Suvankar Pal, Laura Stephenson, Shuna Colville, Judy Newton, John M. Starr & Sharon Abrahams. (2020) The brief Dimensional Apathy Scale: A short clinical assessment of apathy. The Clinical Neuropsychologist 34:2, pages 423-435.
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Jashelle Caga, Sharpley Hsieh, Elizabeth Highton-Williamson, Margaret C. Zoing, Eleanor Ramsey, Emma Devenney, Rebekah M. Ahmed, Anne Hogden & Matthew C. Kiernan. (2018) The burden of apathy for caregivers of patients with amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:7-8, pages 599-605.
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Juyeon Oh & Jung A. Kim. (2018) Factor analysis of the Zarit Burden Interview in family caregivers of patients with amyotrophic lateral sclerosis. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 19:1-2, pages 50-56.
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Mattia Siciliano, Gabriella Santangelo, Francesca Trojsi, Carmela Di Somma, Manila Patrone, Cinzia Femiano, Maria Rosaria Monsurrò, Luigi Trojano & Gioacchino Tedeschi. (2017) Coping strategies and psychological distress in caregivers of patients with Amyotrophic Lateral Sclerosis (ALS). Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 18:5-6, pages 367-377.
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Janet Grace & Janessa O. Carvalho. 2018. Encyclopedia of Clinical Neuropsychology. Encyclopedia of Clinical Neuropsychology 1493 1499 .
Dan Geng, RuWei Ou, XiaoHui Miao, LiHong Zhao, QianQian Wei, XuePing Chen, Yan Liang, HuiFang Shang & Rong Yang. (2017) Patients’ self-perceived burden, caregivers’ burden and quality of life for amyotrophic lateral sclerosis patients: a cross-sectional study. Journal of Clinical Nursing 26:19-20, pages 3188-3199.
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Cathy Gluyas, Susan Mathers, Nicole Hennessy Anderson & Anna Ugalde. (2016) Factors to consider for motor neurone disease carer intervention research: A narrative literature review. Palliative and Supportive Care 15:5, pages 600-608.
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Angela Rosenbohm, Raphael S. Peter, Siegfried Erhardt, Dorothée Lulé, Dietrich Rothenbacher, Albert C. Ludolph & Gabriele Nagel. (2017) Epidemiology of amyotrophic lateral sclerosis in Southern Germany. Journal of Neurology 264:4, pages 749-757.
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Janet Grace & Janessa O. Carvalho. 2017. Encyclopedia of Clinical Neuropsychology. Encyclopedia of Clinical Neuropsychology 1 8 .

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