598
Views
35
CrossRef citations to date
0
Altmetric
Research Article

Patient-reported problematic symptoms in an ALS treatment trial

, , , , &
Pages 198-205 | Received 27 Jun 2015, Accepted 26 Oct 2015, Published online: 29 Jan 2016

Keep up to date with the latest research on this topic with citation updates for this article.

Read on this site (8)

Richard Cave & Steven Bloch. (2023) The use of speech recognition technology by people living with amyotrophic lateral sclerosis: a scoping review. Disability and Rehabilitation: Assistive Technology 18:7, pages 1043-1055.
Read now
Jill Van Damme, Ayse Kuspinar, Wendy Johnston, Colleen O’Connell, John Turnbull, Marvin Chum, Patricia Strachan, Westerly Luth, Shane McCullum, Nicole Peters, Joy MacDermid & Vanina Dal Bello-Haas. (2022) Refining items for a preference-based, amyotrophic lateral sclerosis specific, health-related quality of life scale. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 23:7-8, pages 508-516.
Read now
Bernadette Wigand, Ina Schlichte, Stefanie Schreiber, Johanna Heitmann, Thomas Meyer, Reinhard Dengler, Susanne Petri, Aiden Haghikia, Stefan Vielhaber & Susanne Vogt. (2022) Characteristics of pain and the burden it causes in patients with amyotrophic lateral sclerosis – a longitudinal study. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 23:3-4, pages 284-291.
Read now
Adriano Chiò, Antonio Canosa, Andrea Calvo, Cristina Moglia, Alessandro Cicolin & Gabriele Mora. (2021) Developments in the assessment of non-motor disease progression in amyotrophic lateral sclerosis. Expert Review of Neurotherapeutics 21:12, pages 1419-1440.
Read now
Kate T. Brizzi, John F. P. Bridges, Jill Yersak, Calaneet Balas, Neil Thakur, Miriam Galvin, Orla Hardiman, Chad Heatwole, John Ravits, Zachary Simmons, Lucie Bruijn, James Chan, Richard Bedlack & James D. Berry. (2020) Understanding the needs of people with ALS: a national survey of patients and caregivers. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration 21:5-6, pages 355-363.
Read now
Matthias Boentert. (2019) Sleep disturbances in patients with amyotrophic lateral sclerosis: current perspectives. Nature and Science of Sleep 11, pages 97-111.
Read now
Simon Judge, Steven Bloch & Christopher J. McDermott. (2019) Communication change in ALS: engaging people living with ALS and their partners in future research. Disability and Rehabilitation: Assistive Technology 14:7, pages 675-681.
Read now
P. A. McCombe, N. R. Wray & R. D. Henderson. (2017) Extra-motor abnormalities in amyotrophic lateral sclerosis: another layer of heterogeneity. Expert Review of Neurotherapeutics 17:6, pages 561-577.
Read now

Articles from other publishers (27)

Matthias Boentert. (2023) Sleep Disorders in Neuromuscular Diseases: A Narrative Review. Clinical and Translational Neuroscience 7:3, pages 23.
Crossref
Fiona Runacres, Susan Mathers, Sarah CM Lee, Rowan Hearn, Sonia Gregory, Natasha Bear & Samar Aoun. (2023) Motor neurone disease: A point-prevalence study of patient reported symptom prevalence, severity and palliative care needs. Palliative Medicine.
Crossref
Katherine M. Burke, Amy S. Ellrodt, Benjamin C. Joslin, Pia P. Sanpitak, Claire MacAdam, Prabhav Deo, Kevin Ozment, Cristina Shea, Stephen A. Johnson, Doreen Ho, Samuel K. Chu, Ashwin N. Babu, Colin K. Franz & Sabrina Paganoni. (2023) Ultrasound-guided glenohumeral joint injections for shoulder pain in ALS: A case series. Frontiers in Neurology 13.
Crossref
Yana Yunusova, Ashley Waito, Carolina Barnett Tapia, Anna Huynh, Rosemary Martino, Agessandro Abrahao, Gary L. Pattee, James D. Berry, Lorne Zinman & Jordan R. Green. (2023) Face and content validation of the amyotrophic lateral sclerosis—Bulbar dysfunction index (ALS-BDI). Frontiers in Neurology 13.
Crossref
Hiew FL. (2023) Sleep and Survival in Amyotrophic Lateral Sclerosis (ALS): The Parallelism in Motor and Non-Motor Progression. Annals of Indian Academy of Neurology 26:5, pages 628-628.
Crossref
Soyoung Kwak. (2022) Pain in amyotrophic lateral sclerosis: a narrative review. Journal of Yeungnam Medical Science 39:3, pages 181-189.
Crossref
Yao Wang, Xiaoyu Yang, Qun Han, Min Liu & Chang Zhou. (2022) Prevalence of Sialorrhea Among Amyotrophic Lateral Sclerosis Patients: A Systematic Review and Meta-Analysis. Journal of Pain and Symptom Management 63:4, pages e387-e396.
Crossref
Emily Beswick, Deborah Forbes, Zack Hassan, Charis Wong, Judith Newton, Alan Carson, Sharon Abrahams, Siddharthan Chandran & Suvankar Pal. (2021) A systematic review of non-motor symptom evaluation in clinical trials for amyotrophic lateral sclerosis. Journal of Neurology 269:1, pages 411-426.
Crossref
Anna G. Hauswirth, Hannah C. George & Catherine Lomen‐Hoerth. (2021) ALS patient and caregiver attitudes toward physician‐hastened death in C alifornia . Muscle & Nerve 64:4, pages 428-434.
Crossref
Verena C. Samara, Patricia Jerant, Summer Gibson & Mark Bromberg. (2021) Bowel, bladder, and sudomotor symptoms in ALS patients. Journal of the Neurological Sciences 427, pages 117543.
Crossref
Julia Hafer, Sarah Jensen, Martina Wiedau‐Pazos & Ambereen K. Mehta. (2021) Assessment of feasibility and utility of universal referral to specialty palliative care in a multidisciplinary amyotrophic lateral sclerosis clinic: A cohort study. Muscle & Nerve 63:6, pages 818-823.
Crossref
Ashley A. Waito, Farah Wehbe, Reeman Marzouqah, Carolina Barnett, Sanjana Shellikeri, Cindy Cui, Agessandro Abrahao, Lorne Zinman, Jordan R. Green & Yana Yunusova. (2021) Validation of Articulatory Rate and Imprecision Judgments in Speech of Individuals With Amyotrophic Lateral Sclerosis. American Journal of Speech-Language Pathology 30:1, pages 137-149.
Crossref
Kirsten Hüning, Patrick Weydt, Michaela Hesse, Gülay Ates, Henning Cuhls & Lukas Radbruch. (2020) Pharmakologische und nicht pharmakologische Symptomtherapie bei amyotropher Lateralsklerose. Nervenheilkunde 39:12, pages 791-800.
Crossref
Matthias Boentert. (2020) Sleep and Sleep Disruption in Amyotrophic Lateral Sclerosis. Current Neurology and Neuroscience Reports 20:7.
Crossref
James Grogan & Zachary Simmons. (2020) Telemedicine for the Care of Neuromuscular Disorders. Current Treatment Options in Neurology 22:6.
Crossref
Anne Hogden, Camille Paynter & Karen Hutchinson. (2020) How can we improve patient-centered care of motor neuron disease?. Neurodegenerative Disease Management 10:2, pages 91-97.
Crossref
Iona Pearson, Stella A. Glasmacher, Judith Newton, Emily Beswick, Arpan R. Mehta, Richard Davenport, Siddharthan Chandran & Suvankar Pal. (2020) The Prevalence and Management of Saliva Problems in Motor Neuron Disease: A 4-Year Analysis of the Scottish Motor Neuron Disease Register. Neurodegenerative Diseases 20:4, pages 147-152.
Crossref
Vladislav B. Voitenkov & E. V. Ekusheva. (2019) Pain in amyotrophic lateral sclerosis. Journal of Clinical Practice 10:2, pages 66-73.
Crossref
Shoba Nair. 2019. Textbook of Neuroanesthesia and Neurocritical Care. Textbook of Neuroanesthesia and Neurocritical Care 277 295 .
Ted M. Burns. (2018) Estimating and managing fatigue for our patients: Are we measuring up?. Muscle & Nerve 58:2, pages 182-183.
Crossref
Deanna Britton, Chafic Karam & Joshua S. Schindler. (2018) Swallowing and Secretion Management in Neuromuscular Disease. Clinics in Chest Medicine 39:2, pages 449-457.
Crossref
Natsuko IshidaShuya HongoAyaka KumanoHiroyuki HattaNobuyuki ZakojiMakiko HirutaniYoshiaki YamamotoHirohumi AonoMoe TuigiRyohei SuzukiHiroshi HanamitsuEisaku WakasugiMasaaki TakahashiAkimasa Yamatani. (2018) Relationship between Pain and Functional Status in Patients with Amyotrophic Lateral Sclerosis: A Multicenter Cross-Sectional Study. Journal of Palliative Medicine 21:5, pages 588-591.
Crossref
Stephen A. Goutman & Zachary Simmons. (2017) Symptom management in amyotrophic lateral sclerosis: We can do better. Muscle & Nerve 57:1, pages 1-3.
Crossref
Katharine Nicholson, Alyssa Murphy, Erin McDonnell, Jordan Shapiro, Ericka Simpson, Jonathan Glass, Hiroshi Mitsumoto, Dallas Forshew, Robert Miller & Nazem Atassi. (2017) Improving symptom management for people with amyotrophic lateral sclerosis. Muscle & Nerve 57:1, pages 20-24.
Crossref
Juyeon Oh & Jung A Kim. (2017) Supportive care needs of patients with amyotrophic lateral sclerosis/motor neuron disease and their caregivers: A scoping review. Journal of Clinical Nursing 26:23-24, pages 4129-4152.
Crossref
V. Danel-Brunaud, L. Touzet, L. Chevalier, C. Moreau, D. Devos, S. Vandoolaeghe & L. Defebvre. (2017) Ethical considerations and palliative care in patients with amyotrophic lateral sclerosis: A review. Revue Neurologique 173:5, pages 300-307.
Crossref
Adriano Chiò, Gabriele Mora & Giuseppe Lauria. (2017) Pain in amyotrophic lateral sclerosis. The Lancet Neurology 16:2, pages 144-157.
Crossref

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.