https://orcid.org/0000-0002-1269-9053
Figures & data
Table 1 Patient demographics and clinical characteristics from patient medical chart review.
Table 2 Physician demographics from physician survey.
Figure 1 Misdiagnosis of ALS based on data from patient medical chart review.
ALS, amyotrophic lateral sclerosis.
Table 3 Time to first consultation with a healthcare professional and to definitive ALS diagnosis by misdiagnosis status, from patient medical charts.
Table 4 Symptoms at onset and at ALS diagnosis by misdiagnosis status, from patient medical charts.
Table 5 Conditions previously diagnosed or suspected before ALS diagnosis, from patient medical chartsTable Footnotea.
Table 6 Perception of barriers to diagnosing ALS from physician surveyTable Footnotea.
Table 7 Summary of testing approaches used to aid diagnosis of ALS, from patient medical charts.
Supplemental Material
Download MS Word (17.6 KB)Data availability statement
All data, i.e., methodology, materials, data and data analysis, that support the findings of this survey are the intellectual property of Adelphi Real World. All requests for access should be addressed directly to Jennifer Mellor at [email protected].