Exploring the lived experience of fibromyalgia using creative data collection methods

Figures & data

Table

	Who are you?	What affects you?	How do others see you?	What role does fibromyalgia play?	What is life with fibromyalgia like?
Dawn	Pony tail, Hessian libra wall hanging, needle abd thread in red	Photo of twin sister and brother, two letters, carboard cut outs, medication, jigsaw piece	Nail, light bulb, diary/calendar	Swimming goggles and timetable, country club membership card, apple, a torn piece of orange paper	Sent an email letter explaining thoughts
Charlene	Smiley face, turtle, angel, diamond	My children	Rock, also sent an email letter explaining thoughts	Sent an email letter explaining thoughts	Sent an email letter explaining thoughts
Charlotte	Marriage certificate, one gardening glove, broken cooking measure	Photo of husband, thermometer, figurine representing friends, cookery book	Snowman figurine, cookery book, paintbrush, needle and thread	Broken watch, a broken piece of tree, a bent nail, an empty, hollow toilet paper roll	A series of photos created specifically for this project to depict “shattered”, “frustration” and “empty”
Lindsay	A paint brush, spool of thread, bottle of glue, photo card of family journal, also sent an email letter explaining thoughts	Book of prayers and beads, book, music box, flower, adrenal insufficiency magnet and hydrocortisone	Doll with the face drawn upon it	Native Texan sticker, calendar, mobile phone, mobile phone clock, volunteer ID badge, playing cards, book, soft fabric in green and blue, box of decaffeinated green tea, also sent an email letter explaining thoughts	Sent an email letter explaining thoughts
Sue	A plain box, a candle, a glittery heel, passport	Sunglasses, makeup, condom, staff badge	Pen, pawn, safety pins, box of hayfever medication	A mindmap explaining thoughts	A pillow on top of the box