Validation study of an end-of-life questionnaire from the Swedish Register of Palliative Care

Figures & data

Figure 1. Answers that differed between ELQ registrations and corresponding paper versions per question, divided into three categories.

Figure 2. Congruity between ELQ registrations and ELQs filled in from medical records.

Figure 3. Answers that differed between ELQ registrations and ELQs filled in from medical records per question, divided into three categories.

Table I. Contingency table comparing reported data with data from medical record concerning question number 13 and 14.

	Medical record/Data reported	Yes, by a doctor	Yes, by a nurse	Yes, by both a doctor and a nurse	No	Don't know
Information to patient	Yes, by a doctor	10	0	4	5	0
	Yes, by a nurse	0	0	0	0	0
	Yes, by both a doctor and a nurse	30	0	24	7	1
	No	3	0	2	9	0
	Don't know	2	0	1	1	0
Information to next of kin	Yes, by a doctor	6	0	3	0	0
	Yes, by a nurse	0	2	0	0	0
	Yes, by both a doctor and a nurse	46	1	40	0	0
	No	0	0	0	0	0
	Don't know	0	1	0	0	0

Table II. Contingency table comparing reported data with data from medical record concerning question number 15.

	Medical record/Data reported	Hours	Days	Weeks	Months	Don't know
Time for loss of ability of self-determination	Hours	30	13	0	0	9
	Days	10	22	1	0	5
	Weeks	1	0	2	0	0
	Months	0	0	0	0	0
	Don't know	1	3	0	0	2

Table III. Contingency table comparing reported data with data from medical record concerning question number 16.

	Medical record/Data reported	Yes	No	Don't know	The patient cannot participate
Pain evaluation with VAS/NRS	Yes	12	11	2	25
	No	8	6	2	12
	Don't know	1	3	0	1
	The patient cannot participate	3	1	1	11

Table IV. Contingency table comparing reported data with data from medical record concerning question number 17.

	Medical record/ Data reported	Yes	No	Don't know
Shortness of breath	Yes	1	0	0
	No	2	79	4
	Don't know	0	12	1
Confusion	Yes	1	0	0
	No	27	51	7
	Don't know	0	12	1
Nausea	Yes	0	1	0
	No	2	77	6
	Don't know	0	12	1
Death rattle	Yes	3	11	1
	No	4	65	2
	Don't know	0	12	1
Pain	Yes	3	7	0
	No	8	62	6
	Don't know	2	10	1
Anxiety	Yes	1	15	1
	No	3	63	3
	Don't know	2	10	1
Other	Yes	1	2	0
	No	14	67	2
	Don't know	0	12	1

Figure 4. Flow of information from the patient to the SRPC.