Invited Manuscript Poster on Renal-Related Education American Society of Nephrology, Nov. 16–21, 2010 Adolescents with Chronic Kidney Disease and Their Need for Online Peer Mentoring: A Qualitative Investigation of Social Support and Healthcare Transition

Figures & data

Table 1. Patient characteristics (N = 17).

Characteristic	N (%)
Male	13 (76.5)
Race
Black	8 (47.1)
White	8 (47.1)
Other	1 (5.9)
CKD Stage
Pre-ESKD	7 (41.2)
Transplant	10 (58.8)
Age at diagnosis mean (SD)/median	6.32 (±6.83)/2
Medications per day mean (SD)/median	6.94 (±3.34)/7
Cause of CKD
Glomerulonephritis	7 (41.2)
Obstructive uropathy/posterior urethral valves	4 (23.6)
Renal hypoplasia/dysgenesis	2 (11.8)
Interstitial nephritis	1 (5.9)
Nephrolithiasis/Crohn’s disease	1 (5.9)
Liver transplant/HTN	1 (5.9)
HIV	1 (5.9)
Insurance
Private	7 (41.2)
Public	10 (58.8)

Note: CKD, chronic kidney disease; ESKD, end-stage kidney disease; HTN, hypertension.

Figure 1. Participant responses to dichotomized questions.

Table

Ref. code	Question
1	How many other young people, about your age, do you know with chronic kidney disease?
2	Do you communicate with them?
	Probing: How frequently?
	Probing: Through what means?
	Probing: For what purposes?
3	What part is difficult about coping with kidney disease?
4	Is it easy to talk with your kidney team?
5	Do you think it will be hard to go to the adult kidney doctors?
6	What kinds of activities do you do on the Internet?
	Probing: Do you use any social media websites, such as Facebook or MySpace?
7	Do you use any websites to help you cope with the difficulties caused by chronic kidney disease?
	Probing: If so, what are those sites?
	Probing: If not, are you aware of any websites like this?
	Probing: If not and you know of some, why don’t you use them?
8	If there were a website designed just for you and other young people with chronic kidney disease, would you be interested in trying it out?
	Probing: If no, why not? [If not, skip Q-11 but ask Q-9 and Q-10]
9	What are some things that other young people would want to do most at the website?
10	How private would you want the website to be?
11	What would make you not use this kind of website?
12	Are there any other things that you want to tell us?