“It gave me something big in my life to wonder and think about which took over the space … and not MS”: managing well-being in multiple sclerosis through art-making

Abstract

Background and aim: Individuals living with Multiple Sclerosis (MS) often face progressive loss of function, uncertainty and disruption to self-image and valued roles. Previous studies show that creative self-expression is valued by some people living with long-term illness, yet its meaning for people living with MS is unclear. This research study explored the meanings of leisure-based visual art-making for people living with MS. Method: This qualitative study followed guidelines for Interpretative Phenomenological Analysis (IPA). Single semi-structured interviews were conducted with five adults (2 males; 3 females; 40–65 years), recruited from MS Ireland. Findings: Participants valued art-making for contributing to a more satisfying way of life; for filling occupational voids and using time well. Deep immersion offered respite from worry about illness. Creative classes offered social camaraderie and opportunities for learning and development. Art-making processes and products were highly affirmative, increasing emotional well-being and promoting self-worth. Most felt that they expressed valued aspects of self through their art. Art-making appeared to assist with identity maintenance, accommodating functional losses associated with MS whilst opening “new doors”. Conclusion: Art-making offered a multi-faceted means of supporting identity and increasing fulfilment in lives that were restricted in many ways by MS.

Implications for Rehabilitation

• Creative leisure activities may offer people with MS a flexible means of using time and filling occupational voids increasing satisfaction and well-being.

• Art and craft classes may offer people with MS opportunities to socialise and provide a source of personal development.

• Deep immersion in creative activities may offer the experience of respite from worry about MS.

• Some people with MS are able to take up creative activities for the first time after the onset of illness and find them meaningful and supportive of well-being; at least minimal pre-illness interest in arts and crafts seems helpful to provide basic confidence and skills; availability of accessible, welcoming art classes also seems to encourage participation.

• Art
• creativity
• flow
• multiple sclerosis
• occupation
• self-esteem
• well-being