Qualitative data collection: considerations for people with Aphasia

ABSTRACT

Background: Investigators are increasingly using qualitative research methods in studies with people with aphasia. While most qualitative research has relied on the pragmatic method of inquiry, and methods reliant on verbal communication such as interviews, there exists a gap in the literature on how to use these methods with people with communication impairments such as aphasia.

Aims: This paper aims to be a starting point for researchers new to qualitative research wanting to learn about how to collect qualitative data from people with aphasia. A secondary aim is to encourage researchers to report the creative ways in which they manage the communication challenges presented by people with aphasia in data collection.

Main Contribution: This tutorial provides an overview of qualitative data collection methods and adjustments for making them aphasia-friendly, including interview and alternative interviewing methods, focus groups, observation, and photovoice. Each data collection method is discussed in the context of ethical and logistical considerations specific to people with aphasia.

Conclusions: Qualitative data collection with people with aphasia can be challenging due to their communication difficulties, but when done properly researchers can help people with aphasia get their stories and perspectives into the world.

KEYWORDS:

• Aphasia
• qualitative methods
• data collection
• supported communication
• aphasia-friendly

Acknowledgments

The authors would like to acknowledge Dr. Doug Gross and Dr. Ashley McKillop for their feedback on earlier versions of this manuscript.

Disclosure statement

No potential conflict of interest was reported by the authors.