Social participation and quality-of-life of patients with traumatic brain injury living in the community: A mixed methods study

Abstract

Objective: To investigate the quality-of-life (QoL) and social participation of patients with traumatic brain injury (TBI) living in the community in Japan.

Methods: A mixed-methods study of 29 post-TBI patients and 12 family members was conducted. Objective scales were used to evaluate QoL (Short Form Health Survey SF-36), depression (Zung Self-rating Depression Scale) and psychosocial function (Sydney Psychosocial Reintegration Scale, 2^nd edition). Subjective views of changes in social functioning, participation and suitability of family support were obtained by a semi-structured interview. Participants were classified into ‘change’ and ‘no-change’ groups for social participation and between-group comparisons of QoL and determinant factors of QoL were evaluated.

Results: The SF-36 social role component was significantly associated with the suitability of family support, followed by their understanding. However, QoL was not significantly associated with changes in social participation. Social participation was particularly influenced by the absence of rehabilitation support for low-skill labourers and housewives, whether they lost their employment or not.

Conclusions: Advances in rehabilitation services are required, particularly to meet the specific needs of housewives and low-skill labourers. Families should receive sufficient education and short- and long-term strategies for providing suitable support to patients and their families should be implemented.

Keywords:

• Post-TBI
• rehabilitation
• family support
• housewife

Declaration of interest

This work was supported by a research Grant-in-Aid for Scientific Research C (no. 24500599) from the Ministry of Education, Science, Culture, Sports, Science, and Technology of Japan. We would like to thank Editage (www.editage.jp) for English language editing.