ABSTRACT
Objective: We sought feedback from elderly patients living with asthma to understand their experience with assuming self-management roles for their asthma in order to inform the design and implementation of a primary care-based strategy that could best support their asthma control. Methods: We held six focus groups with a total of 31 English- and Spanish-speaking older adults with a current diagnosis of asthma. Focus groups addressed the effect of asthma on patients' lives and self-management strategies. Transcripts were analyzed using constant comparative techniques. Results: Asthma exerted a consistent effect on patients' physical and psychological well-being. Common barriers to self-care included misuse of controller medications and uncertainty whether shortness of breath, fatigue, and cough were due to their asthma or some other chronic illness. Patients developed coping strategies to continue with daily activities even when experiencing symptoms, but did not recognize attainable asthma quality of life. Conclusions: Asthma had a distinct impact on elderly adults' quality of life; due to their longstanding history with this condition, many patients had accepted these symptoms as a “new normal.” Developing strategies to reorient patients' perceptions of the possibilities for managing their illness will be critical to the success of asthma self-management support programs specific to older adults.
Declaration of interest
No conflicts of interest exist for the following authors: Rachel O'Conor, Melissa Martynenko, Monica Gagnon, Diane Hauser, Edwin Young, Joseph Lurio, Michael S. Wolf, or Alex D. Federman. Juan P. Wisnivesky is a member of the research board of EHE International, has received consulting fees from Merck, UBS and IMS Health, and was awarded a research grant from GlaxoSmithKline to conduct a COPD study. The content is solely the responsibility of the authors and does not necessary represent the official view of the Patient Centered Outcomes Research Institute.
Funding
Research reported in this publication was supported by the Patient Centered Outcomes Research Institute (AS-1307-05584).