Situating household management of children’s asthma in the context of social, economic, and environmental injustice

Abstract

Background

Structural determinants of health are social, economic, and environmental forces that generate unequal opportunities for resources and unequally distribute exposure to risk. For example, economic constraint, racial discrimination and segregation, and environmental injustice shape population-level asthma prevalence and severity. Structural determinants are especially relevant to consider in clinical settings because they affect everyday household asthma management.

Objective

To examine how structural determinants shape everyday household management of pediatric asthma and offer a framework for providers to understand asthma management in social context.

Design

Qualitative interviews of caregivers for children with asthma.

Participants

Participants included 41 caregivers in two U.S. cities: St. Louis, Missouri (n = 25) and Gainesville, Florida (n = 16). Most caregivers were women (83%), Black (73%) and/or had low socioeconomic status (SES; 78%). Caregivers cared for children with asthma aged 0–4 (32%), 5–11 (68%) and 12–17 (54%).

Approach

We carried out narrative interviews with caregivers using an adapted McGill Illness Narrative Interview and using qualitative analysis techniques (e.g. inductive and deductive coding, constant comparison).

Key Results

Caregivers highlighted three ways that structural determinants complicated asthma management at home: 1) housing situations, 2) competing household illnesses and issues, and 3) multi-household care.

Conclusions

By connecting social, economic, and environmental injustices to the everyday circumstances of asthma management, our study can help providers understand how social contexts challenge asthma management and can open conversations about barriers to adherence and strategies for supporting asthma management at home. We offer recommendations for medical system reform, clinical interactions, and policy advocacy.

KEYWORDS:

• Pediatrics
• control/management

Acknowledgements

The content is solely the responsibility of the authors and does not necessarily represent the official view of the NIH.

Declaration of interest

The authors declare that they do not have a conflict of interest.

Compliance with ethical standards

Ethical approval was obtained from the Washington University School of Medicine and University of Florida Institutional Review Boards.

Additional information

Funding

Research reported in this publication was supported by funding from the National Heart, Lung, and Blood Institute (NHLBI) of the National Institutes of Health (NIH), R01HL137680 (MPI: Shepperd and Waters). Research was also supported by the Washington University Institute of Clinical and Translational Sciences grant UL1TR002345 from the National Center for Advancing Translational Sciences (NCATS) of the NIH.