Reliability and validity of the Patient Generated Index (PGI) in patients with chronic kidney disease (CKD) on dialysis, a new approach to quality of life

Abstract

Purpose

To evaluate the test-retest reliability and validity of the Patient Generated Index (PGI) in individuals with Chronic Kidney Disease (CDK) undergoing hemodialysis.

Methods

Through a non-experimental study with repeated measures, PGI was applied twice to assess internal consistency and test-retest reliability. Correlations with the Kidney Disease Quality of Life Short Form (KDQOL-SF), the Human Activity Profile (HAP) questionnaire, the Social Participation Scale, and the Glittre ADL Test were used.

Results

91 individuals with CKD were evaluated. There was high reliability for the PGI (ICC= 0.97) PGI correlated with KQDOL – SF in Functional Capacity r = 0.38 (p < 0.001), Emotional Well-Being r = 0.31 (p = 0.003), Social Aspect r = 0.22 (p = 0.036), Emotional Function r = 0.22 (p = 0.038) and Effect of Kidney Disease r = 0.21 (p = 0.042), and Physical scores r = 0.24 (p = 0.021)), Mental r = 0.21 (p = 0.05) and General r = 0.22 (p = 0.037) summarized. There was a significant correlation between PGI and HAP r = 0.40 (p < 0.001) and the Social Participation Scale r = −0.36 (p < 0.001). There was no correlation between the PGI and Glittre ADL scores r = 0.12 (p = 0.247).

Conclusion

In adults receiving hemodialysis, the PGI proved to be an accurate and reliable instrument for the assessment of the quality of life from the perspective of the patient.

IMPLICATIONS FOR REHABILITATION

• Although hemodialysis treatment is associated with increased survival and symptom control, there is a significant change in the patient’s lifestyle.

• In order to provide a more focused view of the individual, the Patient Generated Index (PGI) was created to evaluate the quality of life.

• PGI is reliable and correlates with KQDOL – SF and the Social Participation Scale in this population.

Keywords:

• Quality of life
• hemodialysis
• patient generated index
• exercise test
• evaluation

Author contributions

All authors contributed to the study conception and design. Material preparation, data collection and analysis were performed by [Vanessa Pereira Lima], [Patrícia Cardoso Campos], [Pedro Henrique Scheidt Figueiredo] and [Henrique Silveira Costa]. The first draft of the manuscript was written by [Vanessa Pereira Lima] and all authors commented on previous versions of the manuscript. All authors read and approved the final manuscript.

Disclosure statement

No potential conflict of interest was reported by the author(s).

Additional information

Funding

This work was supported by the Minas Gerais State Research Support Foundation—FAPEMIG,APQ-00662-18.