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Original Articles

Infant hearing loss in South Africa: Age of intervention and parental needs for support

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Pages S30-S35 | Received 09 Jun 2008, Published online: 07 Jul 2009
 

Abstract

Hearing loss is referred to as the silent, overlooked epidemic in developing countries, and data reporting the mean age of diagnosis and intervention is virtually non-existent due to limited systematic or routine screening programs. The objective of this paper is to present findings of recent practice in early diagnosis and intervention services in an urban South African context, with specific reference to parental needs for support. Data was collected by means of questionnaire surveys for 54 parents of children with congenital or early-onset hearing loss, followed by focus group discussions conducted with 10 parents. The results of this study indicate the mean age of diagnosis to be 23 months (±18 SD), the mean age of initial hearing-aid fitting to be 28 months (±19 SD), and the mean age of enrollment into an early intervention program to be 31 months (±19 SD). In addition, results signify that this diverse and challenging population of parents of young hearing-impaired children largely depends on the ongoing support, guidance, and commitment of the pediatric audiologist.

Abbreviations
EHDI=

Early hearing detection and intervention

NHS=

Newborn hearing screening

Abbreviations
EHDI=

Early hearing detection and intervention

NHS=

Newborn hearing screening

La hipoacusia es reconocida como una epidemia silente e ignorada en los países en desarrollo y no existen, virtualmente, datos reportados sobre la edad media del diagnóstico y la intervención, debido a programas de identificación rutinarios o sistemáticos limitados. El objetivo de este trabajo es presentar los hallazgos de una práctica reciente sobre diagnóstico temprano y servicios de intervención en un contexto urbano de Sudáfrica, con referencia específica a las necesidades de apoyo de los padres. La información se recogió por medio de cuestionarios realizados a 54 progenitores de niños con hipoacusias congénitas o de inicio temprano, seguido de discusiones grupales realizadas con 10 padres. Los resultados de este estudio indican que la edad media del diagnóstico es de 23 meses (±18DS), la edad media para la adaptación inicial de auxiliar auditivo es de 28 meses (±19DS), y la edad media de registro en un programa de intervención temprana de 31 meses (±19DS). Además, los resultados sugieren que esta diversa y comprometida población de padres de niños con trastornos auditivos, depende enormemente del apoyo, guía y compromiso continuo del audiólogo pediátrico.

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