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Review Articles

A scoping review of studies investigating hearing loss, social isolation and/or loneliness in adults

ORCID Icon & ORCID Icon
Pages 30-46 | Received 17 Jul 2020, Accepted 06 Apr 2021, Published online: 25 May 2021

Abstract

Objectives

Social isolation and loneliness are interrelated but independent constructs that threaten healthy aging and well-being and are thought to be associated with hearing loss. Our aim was to review the empirical studies that have examined the association between hearing loss and social isolation and/or loneliness to highlight future research needs.

Design

Scoping review.

Study sample

Three electronic databases were searched combining key terms of “hearing loss”, “hearing impairment” and “deaf*” with “social isolation” or “loneliness”, yielding an initial result of 939 articles. After removing duplicate articles, abstract screening and full-text review, 57 original articles met our inclusion criteria.

Results

Studies were diverse in terms of methodology with the most common type of study being studies that have explored the relationship between hearing loss and social isolation/loneliness from large population-based datasets. Only eight studies were intervention studies and of these, only one specifically explored the outcomes of hearing aids (HAs) on social isolation/loneliness.

Conclusions

Further research is warranted to examine the influence that hearing interventions, in particular HAs, have on social isolation and/or loneliness, with a specific need to include people who identify as being socially isolated and/or lonely at baseline.

Introduction

Social isolation and loneliness are independent yet interrelated concepts. Both are highly prevalent and adversely affect health and well-being (Steptoe et al. Citation2013; Valtorta and Hanratty Citation2012) and are associated with increased risk of mortality (National Academies of Sciences, Engineering and Medicine (NASEM), 2020). Approximately 50% of adults over 60 years are at risk of social isolation and about one-third will experience loneliness (Landeiro et al. Citation2017). Social isolation is defined as an objective and quantifiable reflection of reduced social network size and lack of social contact (Steptoe et al. Citation2013), with limited participation in activities and lack of social participation being risk factors for social isolation (Lubben Citation1988). Loneliness, however, is a subjective negative feeling associated with a perceived paucity of a wider social network (social loneliness) or absence of a specified desired companion (emotional loneliness; Valtorta and Hanratty Citation2012; Weiss Citation1973). In other words, loneliness is a subjective mismatch between one’s actual level of social connection and desired level of connection (Valtorta and Hanratty Citation2012). It should be noted that although social isolation can theoretically be measured objectively, it is defined less consistently than loneliness (Fakoya, Mccorry, and Donnelly Citation2020) because a variety of constructs can be used to measure it including network size, social support and social participation (Newall and Menec Citation2019). Importantly, although people can be both socially isolated and lonely, people can also be socially isolated but not lonely and vice versa, thus it is important to examine these constructs separately.

Hearing loss is a risk factor for social isolation and loneliness and remediation of hearing loss can contribute to a reduction in social functioning (see NASEM Citation2020 for review). However, there is a need to further examine this association to help guide clinical practices and awareness outside of audiology. Of four systematic or scoping reviews that have explored intervention outcomes for improving social isolation and loneliness in adults (Cattan et al. Citation2005; Fakoya, Mccorry, and Donnelly Citation2020; Gardiner, Geldenhuys, and Gott Citation2018; Jarvis et al. Citation2020), few studies were found to have employed high quality, randomised controlled trial methods, and of those that had, treatment effect sizes were small (Jarvis et al. Citation2020). Moreover, none considered the sequelae of hearing loss or hearing interventions. Indeed, Fakoya, Mccorry, and Donnelly (Citation2020) highlighted that it was essential to consider less well-researched groups, including adults with hearing loss, in the context of understanding and managing social isolation and loneliness in older adults. A systematic literature review that examined the association between hearing loss, social isolation and loneliness (Shukla et al. Citation2020) identified that despite heterogeneity in terms of how social isolation and loneliness were measured, most studies have found an association between hearing loss and social isolation and/or loneliness.

The review of Shukla et al. (Citation2020) was limited to studies in which participants were older than 60 years, social isolation and/or loneliness were assessed using a validated measure and had a design that used a formal control group. All qualitative studies were excluded, as were studies investigating younger populations and intervention outcomes. By omitting studies of individuals younger than 60 years of age we lose insights into the experiences of young people; by omitting studies that used qualitative methodology we lose insights into lived experiences, and by excluding examination of intervention studies we limit insights into potential solutions for loneliness and/or social isolation among people with hearing loss. Thus, we consider there is the need for a broader review to identify the extent, range and nature of research concerning hearing loss, social isolation and loneliness across the life span, that includes qualitative as well as quantitative findings, and the outcomes of hearing-related interventions. We chose to conduct a scoping review rather than a systematic review. This is because scoping reviews are used to identify and map the available evidence (Arksey and O'Malley Citation2005; Anderson et al. Citation2008), as in the work here, while systematic reviews are used to identify and retrieve international evidence that is relevant to a particular question or questions and to appraise and synthesise the results (Munn et al. Citation2018). Specifically then, we conducted a scoping review of studies that examined the relationship between hearing loss, social isolation and/or loneliness to broadly understand the current state of the literature with a view to identify research gaps and characterise findings for clinical practice.

Methods

This scoping review was conducted using guidelines from Arksey and O'Malley (Citation2005), Peters et al. (Citation2015) and Fraser et al. (Citation2015). See Supplementary data file 1 for PRISMA-Scoping Review checklist. The review consisted of:

  1. Determining the purpose of the study

  2. Identifying potential studies to include

  3. Screening and selecting studies for inclusion

  4. Extracting data

  5. Collating and summarising the results

  6. Synthesising review findings

Determining the purpose of the study

The purpose of this scoping review was to examine the extent, range and nature of research concerning hearing loss and social isolation and/or loneliness in post-lingually deafened adults. Empirical studies were included if the study also examined social isolation and/or loneliness. No limitation on study design, year of publication or social context was applied. Any method used to assess social isolation/loneliness was acceptable and included studies that used validated questionnaires, study-specific single item questions or questionnaires, open-ended questionnaires, and open-ended interviews in which social isolation and/or loneliness were thematically extracted.

Identifying potential studies

After conducting preliminary scoping searches to gain familiarity with the literature and key terms, three databases (EMBASE, pubmed and CINAHL) were searched for relevant literature from their inception until the date the search was conducted (29th November 2019). Key search terms used were “hearing loss”, “hearing impairment” and “deaf*” combined with “social isolation” or “loneliness”. Electronic search results were exported to an Endnote library and duplicates deleted. The initial search yielded 939 articles, of which 282 were duplicates, leaving 657 unique references. See Supplementary Data File 2 for search strategy output.

Screening and selecting studies for inclusion

The 657 unique references were then screened using Covidence (https://www.covidence.org/home). The inclusion criteria from title/abstract screening to full-text review were: (a) a primary research study; (b) participants were adults with an acquired hearing loss—subjectively reported, objective measured or assumed. By “assumed” we mean that there were some studies that did not specify participants’ hearing ability, but in which participants used hearing aids (HAs) or cochlear implants (CIs), self-identified as hearing impaired, or used an alternative form of communication, such as sign language. Thus, we considered it acceptable to assume these individuals had hearing loss; (c) social isolation and/or loneliness were assessed in some manner or revealed through qualitative methodology and (d) the full text article was available in English. Our exclusion criteria were studies in which (a) hearing loss could not be differentiated from other conditions; (b) data were duplicated in another publication and (c) the statistical analyses precluded an examination of the association between hearing loss and social isolation/loneliness.

The two authors screened the titles/abstracts and completed the full-text review independently. Discrepancies were discussed, and criteria were updated as necessary to clarify resolutions. A total of 57 studies were included for data extraction (see ).

Figure 1. Flow chart of studies included in scoping review.

Figure 1. Flow chart of studies included in scoping review.

Extracting data

Guidelines for data extraction were developed jointly by the authors. The authors then reviewed a sample of three articles together to assess and refine the guidelines. Once completed, both authors reviewed the articles independently and entered information extracted into tables in Microsoft Excel. Data extraction included: first author name, author affiliations, country of first author, year of publication, aims, concept (association, intervention, both), study type (quantitative, qualitative, mixed-methods), design, sample size, age of participants, other pertinent participant characteristics (gender, living circumstances etc.), hearing status, device use, how hearing was measured, how social isolation was measured, how loneliness was measured, description of intervention, analysis and overview of key findings relevant to social isolation and/or loneliness and hearing loss.

It should be noted that when extracting the information and interpreting the findings, we used the author-given labels of social isolation and loneliness; we did not relabel and re-categorize studies using our interpretation of what was measured. We did this because, as noted by the National Academies of Sciences Engineering and Medicine report (2020) “The concepts of social isolation and loneliness have been defined in different ways which has led to some variability in how these concepts are measured”. The report goes on to say that “a number of tools capture elements of both social isolation and loneliness, which may obscure differences between these two concepts”. (NASEM Citation2020, Chapter 6 pp107). In other words, our relabelling and re-categorizing studies would not have yielded a clear set of interpretations.

Collating and summarising the results

Both authors reviewed the extracted data and worked together to determine the most appropriate way to summarise the findings. The final summary included categorisation of studies into one of five groups based on study design as follows:

  1. Quantitative comparison studies: studies that compared the degree or presence of social isolation and/or loneliness among two or more groups of participants, at least one of which included adults with hearing loss.

  2. Quantitative experiential studies: studies that examined the association between hearing loss and social isolation and/or loneliness among individuals selected for study participation based on their hearing status.

  3. Quantitative population-based studies: studies in which data were extracted from large datasets often designed for longitudinal epidemiological studies. Participants were not included in these studies based on their hearing status, i.e. the presence of hearing loss was incidental to their study participation but was used as a variable in the analysis.

  4. Quantitative interventional studies: Studies that examined the effect of a hearing intervention, such as HAs, CIs or an auditory rehabilitation program, on social isolation and/or loneliness.

  5. Qualitative studies: studies that used qualitative methods, irrespective of whether it explored an association or the effect of an intervention.

Two studies used mixed-methods. The authors came to agreement as to which category these studies best fitted with. One study was placed in the qualitative category (Smith Citation2012) and one in quantitative experiential category (Canton and Williams Citation2012).

Synthesising review findings

Finally, the findings were jointly synthesised by the authors focussing on identifying the relationships between hearing and social isolation/loneliness and their implications.

Results

provide key information about each study, separated by study type (quantitative comparison studies, quantitative experiential studies, etc.) to explore the association between hearing loss and social isolation and/or loneliness. Each is discussed below. Supplementary Data File 3 shows the distribution of studies by country and year of publication.

Table 1. Summary of key findings of comparison studies (n = 9).

Table 2. Summary of key findings of experiential studies (n = 5).

Table 3. Summary of key findings of population-based studies (n = 21).

Table 4. Summary of key findings of interventional studies (n = 8).

Table 5. Summary of key findings of qualitative studies (n = 11).

Nine studies compared social isolation and/or loneliness among two or more populations, at least one of which included adults with hearing loss. Three studies examined loneliness only (ID 1, 3, 5), four studies examined social isolation only (ID 2, 6, 7, 8) and the remaining two examined both social isolation and loneliness (ID 4, 9). Of those that examined social isolation, four showed social isolation was associated with hearing loss, in that people with hearing loss had higher social isolation scores as compared to people without hearing loss (ID 2, 4, 7, 9) and one showed that HAs can improve social isolation relative to no intervention (ID 8). Of the studies that examined loneliness, five showed that relative to normative data and people with normal hearing, people with hearing loss are more lonely (ID 1, 3, 4, 5, 9); and one showed that CIs can improve loneliness relative to no intervention (ID 1).

Seven studies examined how hearing status related to social isolation and/or loneliness among different groups of individuals. Two studies examined both social isolation and loneliness (ID 1, 4), four studies examined loneliness only (ID 2, 3, 5, 6) and one study examined social isolation only (ID 7). Of the three studies that examined social isolation and hearing loss, two showed an association (ID 1, 7). Of the studies that examined loneliness, three showed no association (ID 3, 4,5), one showed an association only for sub-groups of participants (ID 2) and one showed that more hearing loss was associated with higher loneliness scores (ID 6).

Twenty-two studies examined the association between hearing loss and social isolation and/or loneliness using population-based datasets. Of the studies that examined the relationship between hearing loss and social isolation, four reported that hearing loss was a predictor of social isolation, or that degree of hearing loss correlated with degree of reported social isolation (ID 7, 9, 19, 21). The findings of four studies showed associations for subcategories of participants only (ID 11, 12, 16, 17).

Of the studies that examined the association between hearing loss and loneliness, ten reported a significant association across the study population (ID 1, 2, 4, 5, 6, 8, 9, 10, 13, 20), five found an association for subcategories of participants (ID 14, 15, 18, 19, 21), and two found no association between hearing loss and loneliness (ID 6, 22).

Eight studies investigated the effect of hearing interventions on social isolation and/or loneliness. Of these, all five studies that examined the outcomes of a hearing intervention on social isolation, did so for CIs (ID 2, 3, 5, 6, 8). Four of the five studies showed that CIs decreased social isolation (ID 2, 3, 5, 8) and one did not (ID6).

Seven studies examined the effect of hearing interventions on loneliness (ID 1, 2, 4, 5, 6, 7, 8). Hearing interventions included CIs and/or HAs, and the effect of Group Audiological Rehabilitation (GAR) supplemented with an exercise program. Only one of the five studies that examined the impact of CIs on loneliness showed them to reduce loneliness (ID 5). Regarding the impact of HAs on loneliness, one showed that HAs reduced loneliness (ID 7) and one did not (ID 1). The GAR program had positive effects on emotional loneliness, in that emotional loneliness was lowered, but did not impact social loneliness (ID 4).

The most common methodological approach used by qualitative studies was that of thematic analysis (n = 5). Ten of the 11 qualitative studies explicitly asked adults with hearing loss to discuss their experiences of hearing loss and identified social isolation and/or loneliness as a theme, while one (ID 8) focussed on exploring loneliness in older adults more generally. In this latter study, the participants spontaneously brought up the impact of hearing loss describing how it contributed to both loneliness and isolation. Of the ten other qualitative studies, six explored the experience of living with hearing loss (ID 1, 3, 4, 5, 6, 7), three examined perceptions related to an intervention for managing hearing loss (ID 10, 11, 12, 13), and one related to both experiences of living with hearing loss and perceptions of a hearing loss intervention (ID 2, 9—note this is the same study, but findings are reported relevant to experiences and interventions separately). Three studies revealed that people with hearing loss experience social isolation rather than loneliness (ID1, 3, 5). Three revealed that social isolation decreased after an intervention (ID, 11, 12, 13) and one study identified that loneliness decreased after a hearing intervention (specify hearing intervention) (ID 9).

Discussion

This article reports the findings of a scoping review conducted to review the research examining the association between hearing loss, social isolation and loneliness, with a view to identifying future research needs and guiding clinical practices. Fifty-seven empirical studies were included, most of which have been published since 2015 (see Supplementary File 3), indicating that the topic is of current interest. The studies reviewed were highly heterogeneous in terms of methodology, participants and measures.

The key findings of the review are that hearing loss is associated with both social isolation and loneliness, that this applies across the life span and that this association is somewhat independent of degree of hearing loss. Further, when participants qualitatively describe the impacts of their hearing, they more often use vocabulary around social isolation than loneliness. Finally, research examining the impact of hearing interventions on social isolation and loneliness is relatively sparse, those studies that have been conducted indicates that hearing interventions can be effective at decreasing social isolation and loneliness. We discuss each of these points below.

Almost all studies that examined social isolation showed a positive association between hearing loss and social isolation while, for studies examining loneliness, just over half of all studies showed a positive association between hearing loss and loneliness with a further third showed mixed outcomes such as the finding only applying to a subset of participants. These findings are unsurprising in light of the recent review of Shukla et al. (Citation2020), because our review included all but one of the papers reviewed by Shukla et al. (Citation2020). The one paper not included here is Wells et al. (Citation2020), in which 20,244 individuals aged 65 year and older were surveyed via an automated telephone interview to explore whether a variety of physical and psychosocial conditions, including loneliness, were associated with hearing loss and HA use. This paper was omitted from our review because it was published after the date of our original search. They found no association between loneliness and HA use regardless of degree of self-reported hearing loss (mild versus severe), which is in line with the findings of Applebaum et al. (Citation2019) but not with those of Weinstein, Sirow, and Moser (Citation2016).

It was evident that loneliness and social isolation are both associated with hearing loss in adults of all ages. This was concluded from the findings of studies in which all participants were younger than age 65 years and that reported associations between hearing loss and social isolation (Canton and Williams Citation2012; Hawthorne Citation2006), or between hearing loss and loneliness (King and Stephens Citation1992; Murphy and Newlon Citation1987; Nachtegaal et al. Citation2009). Two qualitative studies also support this: Barlow et al. (Citation2007) noted reports of both loneliness and social isolation among their deaf participants who were aged 33–60 years, and Hétu et al. (Citation1988) reported that workers with hearing loss (mean age 39.5 years) felt socially isolated at work. There is evidence that the implications of hearing loss for health and well-being may differ with age and with age of onset of hearing loss. For example, social isolation and loneliness in older adults (over the age of 65 years) increases the risk of all-cause mortality (NASEM Citation2020), whereas in younger adults it increases the risk of depression (Loades et al. Citation2020). Thus, hearing interventions provided to adults with hearing loss may have different mitigating health effects, depending on the age of the individual.

Hearing interventions have the potential to mitigate the negative health impacts of social isolation and loneliness by ensuring adequate audibility to facilitate social interaction and thus encourage patients to connect socially. Our review showed that CIs have been relatively more widely examined than HAs, perhaps because it is thought that CIs have a greater potential to impact social isolation and/or loneliness than do HAs. The data do indeed bear this out, in that four of five studies showed CIs to decrease social isolation, and one of five showed CIs to decrease loneliness. Conversely, for HAs, none have examined the impact of HAs on social isolation, and one of two studies showed HAs decreased loneliness. Further, note that Wells et al. (Citation2020) also found that HAs did not impact loneliness. It should be noted however, that in these studies (and in most of the others reviewed here), participants had low loneliness scores i.e., were not particularly lonely, thus it the impacts of an intervention would be difficult to measure. A further point to note is that the participants in the intervention studies are unlikely to be representative to the true population of people with hearing loss, since the vast majority of people with hearing loss wait for between 5 and 10 years before seeking help for their hearing after becoming aware of hearing difficulties (Davis et al. Citation2007). The lack of help seeking might be influenced by their being socially isolated, and thus not seeing value in accessing hearing services.

As mentioned above, participants giving open-ended reports about the impacts of HL, more often used vocabulary referring to feelings of social isolation than to feelings of loneliness. It is not possible to determine whether this is because hearing loss is more strongly associated with social isolation, or whether it is because reporting feelings of social isolation is less stigmatising than reporting feelings of loneliness (Aguayo and Coady Citation2001; Bennion and Forshaw Citation2013; Hétu et al. Citation1988; Ross and Lyon Citation2007; Mäki-Torkko et al. Citation2015; Smith et al. 2016). Indeed, admission of being lonely is often considered to be stigmatising (Rokach and Brock Citation1997). Nonetheless, the observation might indicate that providing interventions that facilitate connections between individuals might be a way to ameliorate the situation. Indeed, two of the reviewed studies used an intervention with a social component. Jones et al. (Citation2019) used an intervention that involved a combination of GAR and an exercise program which was found to decrease emotional loneliness among participants relative to individuals who did not attend the program. Smith et al. (2016) examined the impacts of attending a sensory support centre. Thematic analysis of interviews conducted with attendees revealed that for some, attendance at the centre was motivated by feelings of isolation, and that attendance had decreased these feelings. Together, these studies suggest that providing hearing assistive technology in combination with providing a forum for interaction, whether for socialising, education, or exercise, has the possibility of connecting people with hearing loss who feel socially isolated with others.

Loneliness is considered to reflect subjective negative feelings associated with perceived paucity of a wider social network or absence of desired companionship while social isolation is defined as an objective and quantifiable reflection of one’s social network. It could thus be hypothesised that loneliness is more strongly associated with perceived hearing than measured hearing, while the converse is true for social isolation. To examine this, we looked at the findings of studies in which hearing was assessed using both self-rated and behavioural measures and their associations with loneliness and/or social isolation were directly compared. This applies for just two studies (Weinstein and Ventry Citation1982; Pronk et al. Citation2011). Weinstein and Ventry (Citation1982) determined that social isolation was significantly associated with both self-rated and behaviourally assessed hearing, but that self-rated hearing was more strongly associated with subjective isolation than measured hearing (r = 0.52 versus r = 0.39, respectively) while here was little difference for objective isolation (r = 0.26 and 0.24, respectively). Social isolation reflected the respondent's reaction to constrictions in social networks, feelings of loneliness and inferiority, reduced interest in leisure activities, and desire to withdraw from others, while objective isolation reflected the number of face-to-face contacts with friends and relatives, contacts with distant significant others, and involvement in a variety of leisure activities during the month prior to the interview. This supports the hypothesis above. Conversely, Pronk et al. (Citation2011) examined the association of loneliness with self-rated and behaviourally assessed hearing and reported that both predicted adverse effects on social and emotional loneliness—but only for specific subgroups of individuals. With such limited data it is not possible to support or refute the hypothesis but it is an avenue for future research.

It is worthy of mention that there was considerable overlap across studies in the measures used to assess loneliness, but this was not the case for measures of social isolation. Specifically, 10 studies used the de Jong Loneliness Scale (De Jong-Gierveld and Kamphuls Citation1985) and 11 used a version of the UCLA loneliness scale (Hays and DiMatteo Citation1987; Hughes et al. Citation2004; Russell Citation1996; Russell, Peplau, and Cutrona Citation1980). On the other hand, no two studies from different research groups used the same measure of social isolation. Aspects such as social network size, frequency of social interactions, and perceived social support were all assessed under the umbrella term social isolation. However, in these studies these sub-constructs were considered to be umbrella measures of social isolation. However, these sub-constructs differ from one another as illustrated by studies showing that with age, social network size decreases and yet social support increases (van Tilburg Citation1998). It therefore would seem important that the association between different sub-constructs of social isolation and hearing loss are examined independently if a thorough understanding of the impacts of hearing loss on social isolation is to be attained.

All but one of the reviewed studies assessed social isolation and loneliness from the perspective of the individual with hearing loss. It is important to recall however, that the communication partners of people with hearing loss are also affected, the impacts of which can lead to withdrawal from social activities and interactions (see meta-analysis by Barker, Leighton, and Ferguson Citation2017). To gain a more complete picture of healthy aging, studies examining social isolation and loneliness from the perspective of communication partners of people with hearing loss should be conducted.

In sum, this review showed distinct associations between hearing loss, loneliness and social isolation. These associations likely arise because hearing loss leads to behavioural changes resulting from having to cope with listening to a degraded auditory signal, the consequences of which are difficulties understanding speech, and/or speech being more effortful to decode. This can lead to increased fatigue (Holman et al. Citation2021) and a decreased desire to participate in social situations (Pichora-Fuller, Kramer, and Wingfield Citation2016). Thus, people with hearing loss can become frustrated, withdrawn, socially isolated and/or lonely (Shukla et al. Citation2020). This sequence of events likely explains why interventions that improve the auditory signal (e.g. HAs/CIs) tend to decrease social isolation and loneliness.

Clinical application

As discussed in Saunders, Vercammen, and Bott (Citation2021), there is debate as to the extent to which audiologists should screen for non-audiological conditions such as social isolation and loneliness and how these can be used as outcome measures. Nonetheless, as noted by Clark, English, and Montano (Citation2020), it is important that hearing care professionals are aware that their patients might be socially isolated and/or lonely and should be equipped to address this in their practice—by for example, referrals to social support services.

For clinicians who want to integrate screening of loneliness and/or social isolation into their practice, they should be aware that these are different constructs and that these can fluctuate independently over time (NASEM Citation2020). There are a number of validated tools available to measure one or both constructs. NASEM (Citation2020) recommends using the Berkman-Syme Social Network Index (Berkman and Syme Citation1979) for measuring social isolation and the three-item UCLA Loneliness scale (Hughes et al. Citation2004) for measuring loneliness.

This review highlights the need for hearing care professionals to work collaboratively with other care professionals (i.e. geriatricians, general practitioners, allied health professionals), to address loneliness and social isolation in people with hearing loss.

Likewise, health professionals, and in particular geriatricians need to aware that hearing loss contributes of social isolation and loneliness. They should therefore consider encouraging their patients to seek hearing health care if they encounter a person with untreated hearing loss. The coronavirus pandemic has certainly raised awareness about social isolation and feelings of loneliness and thus, there has never been a more opportune time to implement strategies for managing social isolation and loneliness and bringing to the forefront the recognition that hearing loss is a factor associated in both.

Limitations

While this review was conducted following a search of three databases, we did omit the grey literature and studies that were not published in English, thus some relevant work is likely to have been missed. Further, our review did not appraise the quality of the studies, and our search criteria did not include the terms HAs or CIs, nor terms for sub-constructs of social isolation and loneliness so again some relevant studies might have been omitted. Secondly, as described in the methods, we decided to use the author-given labels of social isolation and loneliness; we did not relabel and re-categorize studies using our interpretation of what was measured. As a result, some readers may disagree with the categorisation of some of the studies included in this review. However, we do not believe that relabelling and re-categorizing the studies would necessarily have yielded greater clarity in interpretations. The important message to take away is that researchers must clearly differentiate between social isolation and loneliness in terms of how they are referred to, measured, and interpreted if the field is to gain a good understanding of hearing as it relates to the distinct constructs of social isolation and loneliness.

Conclusion

This scoping review identified that hearing loss is associated with both social isolation and loneliness. Moreover, it has identified that these associations occur for adults across their lifespan and with varying degrees of hearing loss. Clinicians should be aware that social isolation and loneliness are risk factors for patient wellbeing and should refer patients at risk to appropriate support services. Future research should consider social isolation and loneliness as independent constructs, it should examine the relationship and influence of hearing interventions on these constructs and should focus on people who identify as being socially isolated and/or lonely. Such research may provide insights into ways social isolation and loneliness can be addressed among people with hearing loss.

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Disclosure statement

Dr Anthea Bott is employed as a research scientist with GN Hearing.

Additional information

Funding

This research was supported by the NIHR Manchester Biomedical Research Centre. The views expressed are those of the author(s) and not necessarily those of the NHS, the NIHR or the Department of Health.

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