Theme 5 Epidemiology and informatics

Acknowledgments

We are grateful to the people with MND who participated and CARE-MND Consortium members. Funding for this study was provided by the Chief Scientist Office for Scotland, MND Scotland and the MND Association from grant CAF/MND/15/01.

Acknowledgments

This project is funded by the MND Association. We are also grateful to the Betty Messenger Charitable Foundation and a family trust that wishes to remain anonymous for their financial support.

Acknowledgments

The reported study was funded by RFBR according to the research project No 18-315-00228 мол_а. Study was supported by “Live now” charity foundation.

Acknowledgments

ALS Association (SC5181 and 15-IIP-213); Centers for Disease Control/Agency for Toxic Substances and Disease Registry (200-2014-59046); the Diamond Endowment.

Acknowledgments

This work was supported in part by the National Institutes of Health (NIH) National Institute of Environmental Health Sciences (NIEHS) Grant R44 ES022103-03; National Science Foundation (NSF) Geography and Spatial Sciences (GSS) Grant 1433756; Centers for Disease Control and Prevention National ALS Registry Contract 200-2014-59046; and ALS Association Grant 15-IIP-213.

Acknowledgments

Diamond Endowment Fund; ALS Assocation grants SC5181, 18-11A-437, and 15-11P-213; Dartmouth SYNGERY; donor funds from the French and Scheuer Families.

Acknowledgments

This work was supported by the Research Development Award from the Diamond Endowment Program at DHMC. Thank you to Dr. Walter Bradley for revisions.

Acknowledgments

We thank all ALS and non-ALS participants who completed the ALS Quest questionnaire. World-wide national and state-based ALS Associations, the International Alliance of ALS/MND Associations, the USA CDC National ALS Registry, and the Canadian Neuromuscular Disease Registry assisted in recruiting respondents for the questionnaire. Volunteers helped translate the questionnaire into different languages. Supported by the Aimee Stacey Memorial and the Ignacy Burnett Bequests.

Acknowledgments

We thank our participants for their contribution, and the Motor Neurone Disease Association (UK), NIHR and Walton Neuroscience Fund for research support.

Acknowledgments

We are very grateful to the Project MinE Consortium for genetic and methylation data samples. This is an EU Joint Programme-Neurodegenerative Disease Research (JPND) project. The project is supported through the following funding organisations under the aegis of JPND - www.jpnd.eu (United Kingdom, Medical Research Council (MR/L501529/1) and Economic and Social Research Council (ES/L008238/1)). The work leading up to this publication was funded by the European Community’s Health Seventh Framework Program (FP7/2007–2013; grant agreement number 259867) and Horizon 2020 Program (H2020-PHC-2014-two-stage; grant agreement number 633413).

Acknowledgments

Data used in this research were entirely obtained from the UK MND Collections for MND Research, funded by the MND Association and the Wellcome Trust. We would like to thank people with MND and their families for their participation in this project.

Acknowledgments

JCK is a NIHR Clinical Lecturer. PJS is an NIHR Senior Investigator.

Acknowledgments

This study is included in the ONWebDUALS project (JPND- PS/0001/2013), an EU Joint Programme—Neurodegenerative Disease Research (JPND)—Fundação para a Ciência e Tecnologia initiative. VAC was independently funded by a PhD fellowship (PD/BD/105852/2014) from Fundação para a Ciência e Tecnologia, Portugal. We thank Professor Peter Andersen for providing the genetic tests.

Acknowledgments

JG is the recipient of a FIS-FEDER PI16/01673. JMVT, CG, and MS are the recipients of a FIS-FEDER PI18/00691 grant.

Acknowledgments

The authors thank the ALS patients for their participation in this study. This study was supported by funding from the National Natural Science Foundation of China (Grant No. 81371394 and No. 81511140101) and the National Key Research and Development Program of China (No. 2016YFC0901504). The authors declare no conflicts of interest.

Acknowledgments

Agency for Toxic Substances and Disease Registry/Centers for Disease Control and Prevention

Acknowledgments

This study was funded by MTPA and conducted by HVH, who served as a paid consultant for MTPA.

Acknowledgments

Data was obtained from PRO-ACT. Supported by the ALS Association (LGCA-333).

Acknowledgments

We thank generous and visionary sponsors: ALS Association and ALS Finding a Cure® Foundation

Acknowledgments

We thank our participants for their contribution, and the Motor Neurone Disease Association (UK), NIHR CLRN and Walton Neuroscience Fund for research support.

Acknowledgments

We thank our participants for their contribution, and the Motor Neurone Disease Association (UK), NIHR and Walton Neuroscience Fund for research support.

Acknowledgments

We thank the participants for their contributions, and The Motor Neurone Disease Association (UK) and The National Institute for Health Research (NIHR) for support.

Acknowledgments

Support was provided by Cytokinetics, Biogen, and Ionis Pharmaceuticals.

Acknowledgments

Study funded by the Swedish Research Council, (2015-03170), the Ulla-Carin Lindquist Foundation, and the Karolinska Institutet (Senior Researcher Award and Strategic Research Area in Epidemiology).

Acknowledgments

This project was funded by Swedish Research Council (2015-03170), Ulla-Carin Lindquist Foundation, Bjorklund foundation, Neuro Sweden Association, and Karolinska Institutet (Senior Researcher Award and Strategic Research Area in Epidemiology).