Abstract
There is an evident disparity between the number of youth who report experiencing problematic substance use and the number who seek treatment. To address this disparity, it is important to understand the reasons youth do and do not seek substance use treatment. Using qualitative data obtained from semistructured interviews with 31 youth aged 17–25 years presenting for treatment at a mental health hospital, the current study identifies themes in the factors that youth identify as having influenced them to seek or delay treatment. In alignment with self-determination theory, youth identified internal factors, such as wanting to better their academic, social, or financial situation, and external factors, such as familial pressure, as motivating them to seek treatment. Factors beyond those encompassed by self-determination theory were also revealed as having influenced youth decisions to seek treatment for substance abuse. These predominantly included structural factors, including satisfaction with previous treatment, accessibility of services, and availability of clinicians. These findings provide important insight for first-contact professionals and service providers looking to enhance youth motivation to seek and engage in treatment. Limitations and opportunities for future research are discussed.
Introduction
Youth drug and alcohol use
The treatment-seeking process of youth with substance-use problems has garnered the attention of service providers, researchers, and policy-makers to understand better how to facilitate early access to treatment. Rates of alcohol and drug use increase significantly during high school and postsecondary.Citation1 During emerging adulthood, a developmental period between the ages of 18 and 25 years marked by increased autonomy and exploration of interests and relationships and decreased dependence on individual and organization supports,Citation2 youth are more likely to have a substance-use disorder than during any other stage of development.Citation3 In Canada, approximately 6% of males and 3% of females aged 15–24 years have symptoms consistent with substance-use disorderCitation4 and 3% of youth meet diagnostic criteria for a concurrent disorder.Citation5
Drug and alcohol use across the life span poses a serious public health problem and often results in negative personal, familial, and societal consequences.Citation6 The cost of illicit drug use is nearly US$200 billion dollars each year to cover health care, lost productivity, incarceration, and drug enforcement.Citation7 Onset of substance use during adolescence or emerging adulthood increases the likelihood of severe substance abuse in adulthood and can have negative consequences on interpersonal relationships, employment, and physical and mental health.Citation8 On a positive note, participation in treatment within the first 10 years of substance-use onset enhances the likelihood of successful maintenance of abstinence.Citation9 Additionally, treatment utilization has the potential to reduce the negative outcomes associated with problematic substance abuse, including social maladjustment and psychiatric and family problems.Citation10
Given the benefits of early engagement in treatment, the discrepancy between the number of youth experiencing problematic substance use and the number engaging in treatment is concerning.Citation11 An important barrier to effective treatment is poor treatment capacity to engage youth.Citation12 Accordingly, it is important to understand better the factors that influence or delay youth to seek substance-use treatment. This has important implications for effectively responding to the needs and concerns of youth when they are first thinking about getting help for problematic substance use.
Treatment seeking
Despite the high prevalence and adverse consequences of alcohol and substance abuse, few youth seek treatment.Citation11 The Ontario Student Drug Use and Health Survey found that although 16% of grade 7–12 students could benefit from treatment, only 0.6% had pursued services in the past year.Citation13 There are a variety of factors that have been found to explain this gap in youth treatment needs, and help to explain what influences or delays youth to seek treatment. Prior research has uncovered influential personal factors, including youth perceptions of having a problem or needing professional help,Citation14 positivity of feelings toward family,Citation15 and feeling competent and confident to express ideas and feelings.Citation16 Involvement in risky behavior, a recent arrest, and psychological problems, such as a mood disorder, can also prompt or deter youth from seeking substance-use treatment.Citation17–Citation19 With regard to social factors, previous studies have revealed that support from peers and family members can influence treatment seeking.Citation20 In addition, Goodman et alCitation21 examined the role of social pressure in substance-use treatment and found that peer pressure prompted guilt about substance use and commitment to a treatment program, while family pressure was related to giving into coercion and demands. Interacting with peers who use substances and having family members who use substances has also been found to influence perceptions of the need for treatment.Citation22 Structural factors that have been found to delay treatment onset include difficulties with scheduling appointments and trust in and acceptance of the treatment and service provider.Citation23 Rapp et alCitation24 also found that treatment availability and ease of admission were important treatment-seeking predictors. Notably, it is also important to recognize that a significant number of youth reduce their substance use and recover without formal treatment.Citation25 These findings reveal the importance of considering personal, social, and structural factors that influence treatment seeking. The perceptions of youth with regard to factors within these domains have yet to be examined, and are important for better understanding and addressing the low proportion of youth with problematic substance use who engage in treatment.
The exploration of motivation and readiness to change among youth with substance-use challenges has gained more attention from researchers and clinicians in the last decade.Citation26 Motivation is an important factor when considering treatment seeking, engagement, and outcomes.Citation27 Specifically, internal motivation involves doing something for its own sake without concern for the results of the action.Citation28 In the case of treatment for substance-use problems, it involves both a desire to change and a readiness to change in either the presence or absence of treatment.Citation20 Although treatments are often designed for individuals who are internally motivated to take action and change, many youth seek or enter treatment as a result of external pressure from family members, friends, employers, or the criminal justice system.Citation20,Citation21 External motivation may prompt the youth to seek treatment and influence the development of internal motivation once they are in treatment, though long-term recovery is strongly dependent on intrinsic motivational factors.Citation29
Self-determination theory (SDT) serves as a helpful framework to examine the factors that influence youth to seek treatment or delay seeking treatment. This theory aims to understand human motivation and behavior through the concepts of innate, universal, and psychological needs.Citation28 For example, youth may feel motivated to seek treatment to feel more connected or in control, whereas other youth may be motivated to delay seeking treatment to retain a sense of autonomy. SDT proposes that motivational states range along a continuum from acting in response to external pressure to being internally motivated to take action out of self-interest.Citation30 This is particularly relevant to youth, as many enter treatment because it has been mandated or recommended, as opposed to self-referral. SDT proposes that there is a varying degree of overlap between external pressures and autonomous drive.Citation31 The combination of one’s own feelings and desires to change, as well as one’s perceptions of external pressures, is thought to determine an individual’s likelihood of engaging in a particular action.Citation32 In the context of this study, SDT can help in understanding of youth perceptions of internal and external influences that prompt or delay the treatment-seeking process. In addition, this study aims to highlight factors beyond individual and external motivations and behaviors as proposed by SDT that influence youth to change their substance use.
Overall, the literature highlights that although negative outcomes of substance use and positive treatment outcomes have been revealed among youth, only a small proportion seek treatment. There is a need to understand influential factors for seeking or delaying treatment from a youth’s perspective better, to facilitate entry into treatment and enhance the likelihood of improved functioning and quality of life.
Present study
Understanding how youth describe their experience seeking substance-use treatment has important implications for clinical practice, particularly with regard to ensuring that barriers to and facilitators for treatment seeking are considered in treatment engagement and planning. This study expands on the research conducted by Goodman et alCitation2 exploring how the transition to adulthood impacts and is impacted by treatment seeking, as well as research by Henderson et alCitation33 examining youth perceptions of parental influences on motivation to seek treatment. The current study investigated the following research questions. What factors do youth identify as having influenced them to seek or delay treatment? How can these factors be understood in relation to one another? How do these factors align with or differ from SDT? A qualitative thematic analysis design was used to guide the initial coding and identification of themes. The analysis extended the framework of SDT to allow for confirmation and new evidence to emerge.
Materials and methods
The qualitative thematic analysis approach was used in the collection, analysis, and description of findings from the data for this study. This method allows for a flexible approach to providing a complex and detailed account of the data by identifying, analyzing, and reporting themes and describing a data set.Citation34 By examining participants’ realities, meanings, and experiences, qualitative thematic analysis facilitates an enhanced understanding of a topic that in turn has important implications for researchers, service providers, and policymakers.Citation35 The study protocol was submitted and approved by the Centre for Addiction and Mental Health Research Ethics Board.
Participants were recruited using flyers put up in the youth addiction-services area within a mental health hospital and handed out by clinicians in the hospital directly to clients. Interested youth were connected to research staff to set up an appointment for the interview. Eligibility criteria were English-speaking, between the ages of 16 and 25 years, currently seeking services at the mental health hospital, and no need for immediate psychiatric services. The final sample consisted of 31 youth (16 females, 14 males, one unreported; ages 17–25 years, mean age 20.8 years) who provided consent to participate. Over 90% of youth were Canadian-born and English-speaking. The majority of youth lived at home with their parents (71%), and the remaining participants lived on their own (16.1%), with friends/peers (6.5%), or in supportive/transitional housing (3.2%). The primary substance used was identified as cannabis (38.7%), alcohol (32.3%), or another substance (19.4%). More than one primary substance was reported by 40% of participants. The majority (65%) screened positively for substance-use disorder. Almost half (48%) endorsed concurrent mental health problems. All participants were attending outpatient-treatment services (eg, individual or group treatment) at least weekly, and 29% were receiving intensive day treatment. More detailed information about the participants can be found in Goodman et al.Citation2
Informed consent was obtained prior to participation in the study. Interviews were conducted individually, and participants received compensation in the form of a CA$20 gift certificate for their time. The interviews lasted 45–90 minutes, and were conducted in an interview room in the clinical service area of the hospital by a doctoral student with experience in qualitative data collection. As part of a more comprehensive semistructured interview aimed at understanding various factors affecting youth substance-use change and treatment engagement, youth were asked the following questions. Tell me about the time in your life when you first thought about changing your alcohol/drug use, and why you began to think about making changes. Did anyone else contribute to your thoughts around changing your substance use? How were they involved? Is there any connection between your substance use and your [friendships, family relationships, etc.]? Was this one of your reasons for changing your substance use and/or seeking treatment?
Interviews were recorded and transcribed verbatim. Identifying information of participants was removed to ensure anonymity and confidentiality. Transcripts were analyzed using thematic analysis, as described by Braun and Clarke.Citation34 The primary author engaged in multiple readings of the transcripts to gain familiarity with the data and to look for preliminary patterns and statements concerning treatment seeking. Once familiarity with the data had been obtained, first-level coding involved establishing initial codes by highlighting words in the text that captured key concepts and then naming these ideas in the side of the text. A code-book was created to document emerging codes, definitions for each code, and examples from the data.Citation36 During the first stage of the coding process, the study investigator and a research assistant independently analyzed seven interview transcripts to identify initial codes. The researchers then reviewed the codes that each had identified. Interrater reliability for the qualitative data was calculated, with results indicating that there was 93% agreement between the two researchers. Discrepancies in codes were carefully discussed by the raters, and changes were made in the codebook and used for subsequent coding. Second-level coding included examining the data at a broader level by reviewing the initial codes and pasting them into a Microsoft Word document, followed by organizing and grouping them with consideration given to the relationship between codes and themes.Citation34 The code piles were each given names to capture the overarching theme or subthemes. These were then reviewed and refined to ensure that they meaningfully represented codes and were discrete.Citation34 The transcripts were then analyzed as a whole to ensure no meaning was lost through coding the data. Statements were selected from each theme category to reflect examples of responses.
Results
The goal of the data analysis was to identify themes that captured youth identification of factors that influenced them to seek or delay treatment for substance-use problems. It became apparent that the factors they identified could be categorized as personal, social, or structural. A thematic analysis of the transcripts identified four themes capturing personal factors that influenced treatment seeking, four themes capturing social factors that influenced treatment seeking, and three themes capturing structural factors that influenced treatment seeking. These are described in the following sections in order from the theme endorsed by the most participants to the least commonly endorsed, with corresponding narratives from participant interviews to depict each theme further.
Personal factors that influenced treatment seeking
Theme 1: Mental and physical health
Youth reported that the desire to address their mental health problems and enhance their well-being influenced them to seek treatment. One participant stated,
I originally came because of anxiety … and I guess kind of talking with [my therapist] I realized also that the drinking was rolled into one (youth 1),
Realizing that I’d gotten to the point that I was just gross and I didn’t really take care of myself and ate all the time … I was sick all the time. I didn’t brush my teeth. I didn’t shower often (youth 14).
Concurrent mental health problems, particularly anxiety and depression, were reported by some participants to have resulted in delays in seeking treatment. Being worried about what others would think of them because they were in treatment, and that they might break down in sessions and embarrass themselves were reported. As one youth described,
It’s just being anxious about going … just not being able to get up and sleeping through alarms and everything. I think that’s just me being depressed (youth 13).
I guess really getting past any mental issues or having a greater sense of worth to motivate you more and to change things (youth 22).
Theme 2: Academics
For participants still in high school or postsecondary, academic success influenced some youth to seek treatment because they thought their substance use was getting in the way of their ability to focus on learning:
I don’t feel like I’d be able to study if I’m out partying and drinking every night and then my marks wouldn’t be the best (youth 16).
I don’t want to put on the university application ‘Yes, [I’ve been suspended from high school] for smoking marijuana at lunch’. That’s embarrassing (youth 8).
Theme 3: Denial or lack of motivation
Participants held perceptions and feelings about their substance use that kept some from changing or seeking treatment. As one described,
I think it’s just really myself and not having enough motivation sometimes, like I know that I don’t care that I’m drinking … I stop caring about changing and I have to like think, remember what I’m supposed to be doing and why … it’s like I’m my own worst enemy I think (youth 1).
I was like, ‘We probably shouldn’t continue to use’ and all that stuff, but at the same time you really like using, so you don’t want to stop using (youth 24).
Theme 4: Finances
Youth reported that the financial cost of alcohol and drugs was a reason for seeking treatment: “It’s just a reason that I cut down smoking, because I didn’t have enough money to support it” (youth 6). It was described as a “financial drain” (youth 10), and as one youth noted, “Drugs are expensive, so I don’t have the money and I want to save money, so I had to stop” (youth 29). Some participants resorted to stealing drugs or alcohol, or as one reported, “I’d be stealing money from family members and people I didn’t even know, just to finance those habits” (youth 14). Guilt was expressed as a result of feeling that their money should be used for other expenses: “I just felt bad. I don’t like doing that at all” (youth 13).
Social factors that influenced treatment seeking
Theme 1: Family relationships
Youth described the disapproval of family members regarding their substance use as influencing their treatment seeking. Specific examples included being told they have a problem, they need to stop, and that drugs and alcohol were contributing to an unhealthy lifestyle: “They obviously saw that I was going nowhere … They weren’t very happy about that” (youth 14). Some participants reported being put in control of their own change, as was evident in the following statement:
They sort of said, ‘Listen, it’s your life. We can’t really support [your drug use], and you are going to have to make the changes, because it’s your life.’ And I said, ‘Yeah, that’s true’ (youth 8).
The changes were not at all for me. They were for them. I wanted to at least give them the sense that I was doing better (youth 5).
Theme 2: Peer relationships
Youth reported that disapproval by peers was influential in their seeking treatment:
I had a friend who, like, expressed to me that they did not like the way I drank and that they wanted to see me not drink like that. They didn’t enjoy spending time with me if I would be like that (youth 5).
When I was drinking, the friendships were compromised … It affected that risk of losing friendships … Not drinking with me, not inviting me to things (youth 21).
I felt like … if I could get it under control, then I could improve my relationships with my friends or even maybe repair relationships that were damaged, and that was what motivated me (youth 5).
Theme 3: Romantic relationships
For participants who identified themselves as single, many wanted to seek treatment because they felt that their substance use was preventing them from successfully pursuing a romantic relationship:
I feel like it’s almost like I’m insecure about my drug use, and so … I don’t want to get involved with anyone, because I don’t want to have to deal with anyone telling me that I shouldn’t be doing that or feeling pressured to stop (youth 30).
So it was just like him saying, ‘Well, I don’t even want to be around you if you’re drinking. You’re completely crazy to me every time you’re drinking’ (youth 1).
[My girlfriend] was also supportive, like, ‘I know you’re going through some shit, but you need to see that this isn’t the best way to go about your dealing with stress’ (youth 29).
Theme 4: Being around individuals who use substances
Participants reported that socializing with family members, peers, romantic partners, roommates, and colleagues who regularly used drugs or alcohol in their presence delayed their treatment-seeking process. There was an evident fear in many participants that changing their substance use would have negative consequences on these close and meaningful relationships, including rejection and difficulty relating to others. One male stated,
[My family] wasn’t a reason [for changing]. They were more of a hindrance … we used to do drugs together. We’d all do bongs together: me, my brother, and my dad (youth 7).
Friends have been one reason why I’m kind of a little apprehensive [about changing], because I see my friends every day to smoke, pretty much (youth 9).
… there would be talk of ‘Maybe we should stop doing this, maybe we should change’, but nothing would ever really follow through with it (youth 24).
They’re really into weed culture. It’s easy for me to get high, because they bake. They learn to, like, infuse the weed into different things (youth 11).
Structural factors that influenced treatment seeking
Theme 1: Professionals
Participants identified various types of professionals who influenced them to seek treatment. A social worker or child youth worker was most often identified as having guided them to specialized treatment for substance-use problems, even if the youth was not yet convinced that they needed to change. Once in treatment, the mental health professional was often noted to have prompted and maintained their desire to change:
My psychiatrist and therapist both helped me change and they both made me realize that I needed to change, because if I didn’t I wasn’t going to live a productive and happy life (youth 18).
[The emergency doctor] was just very direct in trying to tell me that I was being very dangerous and not behaving good and that I need to put lots of hard time into getting better … The clarity helped and it made me get my shit together (youth 10).
Theme 2: Dissatisfaction with previous treatment
Some youth described previous treatment experiences that made them seek treatment somewhere else or delay treatment. Participants reported feeling as though they did not relate to the other treatment-group members or to the issues being discussed in session: “I did not find it helpful to be in a group with kids that can’t relate to your situation” (youth 12). Similarly, another youth stated, “I was just … in a different place than what the group was kind of addressing with certain people” (youth 2). A female participant also described dissatisfaction with the counselors:
I didn’t connect with the counselors and I felt that they weren’t really necessarily helping me for what I wanted to be helped with (youth 30).
Theme 3: Transport and scheduling
Logistical arrangements were identified as having delayed pursuing treatment for problematic substance use. As one youth stated, “Transportation is the biggest thing … it’s like a 2-hour commute” (youth 29). Feeling as though they did not have time to come for an appointment because of activities or commitments, such as school and work, and the timing of appointments (eg, too early in the day) were reported as making it hard to seek and continue participating in treatment. When youth were available for a session, it was hard for some, because “The buses don’t run very frequently” (youth 9) or they could not afford the bus fare. Another youth reported,
You guys are in kind of an inconvenient spot, so if I was coming by transit I’d probably be less likely to come, but I’m driving, so it’s not too bad (youth 26).
Discussion
The results of this study confirm previous research findings demonstrating negative consequences of substance abuse on personal and social functioningCitation8 and the influence of personal, social, and structural factors on the decision to seek treatment for substance use.Citation14,Citation21 In addition, these findings extend our knowledge by revealing youth perceptions of influential factors for seeking or delaying treatment that go beyond the internal and external motivators proposed by SDT. Consistently with other studies,Citation11,Citation21,Citation32 the primary reason that youth sought treatment was the influence of family members, peers, or romantic partners. This aligns with SDT by reflecting external pressures and the resulting motivation to seek treatment to improve or maintain important relationships. Goodman et alCitation21 found that peer pressure to enter treatment was a significant predictor of motivation to seek treatment and more influential than family pressure for older youth. Youth in the present study more often reported disapproval from family members compared to peers, and support from peers compared to family members, as having influenced them to seek treatment. This is congruent with SDT, and suggests that family members act primarily as external motivators, while peers prompt internal motivation to stay connected to and accepted by peers. As discussed by Wild et al,Citation32 internal motivation, or what SDT refers to as self-interest and autonomous drive, may emerge once the youth has committed to the goals of the treatment program. Progression toward meeting a goal, observable results, and feedback from the youth’s social network appear to predict competence and in turn motivation to stay in treatment, which is consistent with previous findings.Citation26 However, it is important to recognize that prominent influences may shift between personal, social, and structural factors throughout the treatment-seeking and treatment-engagement stages.
Factors beyond those encompassed by SDT were also revealed as having influenced youth decisions to seek treatment for substance abuse. These predominantly included structural factors, including satisfaction with previous service utilization, accessibility of services, and availability of clinicians. These findings highlight the importance of considering influences beyond the self and social context, as proposed by SDT, to understand the treatment-seeking process. Going beyond SDT, it is critical to recognize ways to structure health-care services such that youth feel that treatment is accessible and that they will be adequately supported.
The discrepancy between the number of youth with substance-use problems and the number who seek treatment is a prominent concern.Citation11 This study provides insight on why this might be the case. Consistent with previous studies of treatment barriers,Citation37 youth reported avoiding seeking treatment because of negative views they held toward treatment or their perceived stigma of attending treatment, believing that it would reflect negatively on them. Also consistent with the present findings,Citation38,Citation39 lack of flexibility in agency hours and comorbid psychological problems were perceived as making it difficult to access care and keep appointments. In addition, youth in the current study uniquely reported dissatisfaction with the therapist, fellow group members, or program structure as factors leading to their hesitancy to pursue treatment. Given the association between motivation for behavior change and engagement in treatment,Citation32 it is critical that service providers find a way to address factors delaying youth treatment seeking, so as to make entering treatment more accessible, less daunting, and more individualized for youth.
Findings from the current study reveal the need for first-contact professionals (eg, family doctors) who work with youth to be well informed about treatment options when advising youth and referring them for services. Based on the findings of this study, motivational interviewing techniques should be used by professionals, given their utility in enhancing youth awareness of positive reasons for changing and negative reasons for staying the same.Citation40 Parents would also benefit from instruction on effective strategies to support their child to seek treatment for their substance use. It is important that parents attempt to maintain their child’s self-determination and autonomy, as opposed to coercing or pressuring them, in the process of thinking about changing and getting help.Citation41 While little intervention research exists that elucidates specific SDT-informed approaches for parents of older youth and young adults with substance concerns, such strategies as those included in multidimensional family therapy have been shown to have positive effects on treatment engagement and retention for adolescents with substance-use problems.Citation42,Citation43 Similarly, school staff should be encouraged to learn about evidence-based school substance use-prevention curricula, which has been found to have high fidelity for quality of delivery and participant responsiveness.Citation44 Cognitive-behavior therapies aimed at sustained change in substance use and behavior have also been found to be effective and easily adaptive for implementation in schools.Citation45
There were some variations in the experiences of participants. Indeed, the same factor for some youth was experienced as supporting treatment seeking, while for others it was a hindrance. For example, peers were identified as having expressed concern or offered suggestions about where to go for treatment, yet peers were also noted to have influenced resistance to treatment, because using substances was their primary social activity. These results reveal the importance of service providers gaining an understanding of the complex network of factors influencing a youth’s treatment seeking for their substance use, particularly with regard to social factors (eg, peers) and personal factors (eg, comorbid mental health problems). This should involve the youth and professional identifying the circumstances and triggers maintaining their substance use, as well as reasons for seeking treatment to change their substance use.
There are methodological limitations in the present study that should be addressed in future investigations. Interviews were conducted at various points in participants’ treatment. Specifically, for some youth, interviews were conducted shortly after intake; for other youth, interviews took place after they had been receiving treatment for a number of months. This may have biased the sample, in that youth who did not seek treatment and those who left treatment early are not in the sample. It may be that youth who had been in treatment for a while were for the most part motivated to change at the time of the interviews, and this could have clouded their memory of why they were previously resistant to changing. Subsequent studies should investigate youth perceptions during the intake process, and should include youth who have not yet sought treatment, as well as those who have dropped out of treatment. It is also possible that those who had a more or less challenging treatment-seeking experience did not wish to partake in the research. All participants were obtaining treatment services from one urban treatment facility, and the sample size was relatively small, especially given that it spanned ages typically associated with developmental transitions. Accordingly, limitations to the breadth and generalizability of findings should be considered. Future studies that gather perceptions across various hospital and clinic settings may reveal a more varied experience of seeking treatment, including a broader range of challenges and influential factors.
Despite the limitations of the present study, these findings have added to our understanding of factors influencing youth to seek or delay treatment for problematic substance use. While previous literature has reported on motivations for seeking treatment, this study used SDT to consider the perspective of youth with regard to internal and external influences, as well as structural factors. The breadth and depth of these findings can provide valuable insight for clinicians and service providers to develop strategies to enhance youth desire to change their substance use, make it easier to access treatment early, and engage youth once they have entered treatment.
Acknowledgments
The authors would like to thank the staff and students who supported the study, and in particular the youth who participated. The authors would also like to acknowledge Dr Lisa Hawke for her support in preparing this manuscript.
Disclosure
The authors report no conflicts of interest in this work.
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