Medical Record Validation of Self-Reported Eye Diseases and Eye Care Utilization Among Older Adults

Abstract

Purpose: Vision impairment is an important public health concern. Accurate information regarding visual health and eye care utilization is essential to monitor trends and inform health policy interventions aimed at addressing at-need populations. National surveys provide annual prevalence estimates but rely on self-report. The validity of self-reported information regarding eye disease has not been adequately explored.

Methods: This cross-sectional study compared self-report of eye care utilization and eye disease with information obtained from medical records. The study population was 2001 adults aged 70 years and older who completed the Behavioral Risk Factor Surveillance System’s Visual Impairment and Access to Eye Care Module. Cohen’s kappa (κ) was used to assess agreement.

Results: Agreement between self-report and medical records was substantial for eye care utilization (κ = 0.64) and glaucoma (κ = 0.73), moderate for macular degeneration (κ = 0.40) and diabetic retinopathy (κ = 0.47) and slight for cataracts (κ = 0.18). Self-report tended to overestimate the number of subjects who visited an eye care provider in the previous year, and underestimated the prevalence in all but one (glaucoma) of the four eye diseases evaluated.

Conclusions: Though agreement was substantial for self-report of eye care utilization, results of the current study suggest that national estimates based on self-report overestimate eye care utilization.

KEYWORDS::

• Epidemiology
• Self-report
• Vision

Declaration of interest: This research was supported by the National Eye Institute (R01EY18966 and a supplement through the American Recovery and Reinvestment Act of 2009), the EyeSight Foundation of Alabama, the Alfreda J. Schueler Trust, Research to Prevent Blindness, and the Centers for Disease Control and Prevention (5U58DP002651). The authors report no conflicts of interest. The authors alone are responsible for the content and writing of the paper.