Goals, Beliefs, and Concerns of Urban Caregivers of Middle and Older Adolescents with Asthma

Abstract

Objective: Caregiver goals, an integral part of a partnership for asthma management, have been found to influence asthma outcomes in children. These goals are likely to change during the transitional period of adolescence to address the needs of teenagers as they mature and assume greater responsibilities for their own care. Little is known about the goals, beliefs, and concerns of caregivers as they begin to shift responsibilities for asthma management to teens. This study sought to identify the asthma management goals, beliefs, and concerns of primarily African American caregivers of urban middle and older adolescents. Methods: Fourteen caregivers of urban African American adolescents aged 14–18 years with asthma participated in a focus group session. An iterative process was used to identify themes from the session related to asthma management goals, concerns, and beliefs of caregivers. Results: Caregivers identified goals that related to supporting their teens’ progress toward independent asthma self-management. They described significant concerns related to the teens’ ability to implement asthma self-management, especially in school settings. Caregivers also revealed beliefs that represented knowledge deficits related to asthma medications and factors that improved or worsened asthma. Most caregivers identified grave concerns about school policies regarding asthma medication administration and the lack of knowledge and support provided by teachers and staff for their teen. Conclusion: Caregivers are an invaluable resource in the care of adolescents with asthma. An opportunity exists to improve caregiver understanding of asthma medications and to provide support through improvements in asthma care for adolescents in school-based settings.

• African American
• disease self-management
• transition of asthma responsibility
• urban
• youth

Acknowledgments

The author would like to thank Julia Matthews, PhD, and Helen Stewart, DNP, for their contributions on this project.

Declaration of Interest

Wanda Gibson-Scipio: This study was supported by a $5,000.00 grant from the Board of Visitors, Oakland University, Rochester, Michigan.

Helene J. Krouse has no conflicts of interest.