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ORIGINAL ARTICLE

User involvement in mental health rehabilitation: a struggle for self-determination and recognition

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Pages 59-67 | Received 10 Jul 2009, Accepted 17 Jan 2011, Published online: 01 Jun 2011
 

Abstract

Aim: The study aimed to explore service user involvement in supported housing schemes as experienced by adults with mental illness in interplay with professionals during rehabilitation. Method: The study was designed as a field study in two supported housing schemes, using an ethnographic approach to data collection, including participant observation, informal conversations, and individual and group interview. Twelve participants aged 22 to 45 were included. The data analysis was informed by Ricoeur's theory of textual interpretation, and followed his three levels of interpretation: naive reading, structural analysis, and critical interpretation. Findings: The study showed that user involvement in rehabilitation was experienced by the users as a struggle for self-determination and recognition. Being able to decide and to have influence on daily activities and everyday life, together with having goals to reach during rehabilitation, were viewed as valuable. Situations without influence or involving coercion were reported especially during periods of illness or hospitalization. Conclusions: The results of this study contribute to knowledge about user involvement from service users' perspective, and highlight the difficulties experienced in achieving self-determination and recognition during rehabilitation.

Acknowledgements

The results are part of a PhD project at the Faculty of Health Sciences, University of Aarhus, Denmark, funded by the School of Occupational Therapy, VIA University College, Aarhus, Denmark in cooperation with the Department of Clinical Social Medicine, Centre of Public Health, Central Region Denmark. A grant was awarded by the Danish Association of Occupational Therapy.

Declaration of interest: The authors report no conflicts of interest. The authors alone are responsible for the content and writing of the paper.

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