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Abstract
The experience of dementia for individuals and families, when it is a younger person who is affected by the illness, is rarely considered. Existing specialistliterature in this area is analysed here. Mostwork is rooted in a medical context but the social impact is important, particularly in relation to issues of the life-course. The article examines the case for specialist service provision and argues for the development of new research agendas to locate the experience of early onset dementia (EOD) within a more coherent theoretical framework.