77
Views
0
CrossRef citations to date
0
Altmetric
ACTA REVIEW

Informed consent: attitudes, knowledge and information concerning prenatal examinations

, , &
Pages 1414-1419 | Received 10 Apr 2006, Published online: 03 Aug 2009

References

  • Royal College of Obstetricians and Gynaecologists. Report of the RCOG Working party on biochemical markers and the detection of Down syndrome. London: RCOG Press, 1993.
  • Royal College of Physicians. Prenatal diagnosis and genetic screening: community and service implications. London: RCOP Press, 1989.
  • President's Commission for the study of ethical problems in medicine and biomedical research; Screening and counselling for genetic conditions. Library of Congress, Card No. 83–600 502. Washington, DC: The Commission, 1983.
  • Marteau TM, Dormandy E, Michie S. A measure of informed choice. Health Expect 2001; 4: 99–108
  • De Vigan C, Vodovar V, Goujard J, Garel M, Vayssière C, Goffinet F. Mother's knowledge of screening for trisomy 21 in 1999: a survey in Paris maternity units. Eur J Obstet Gynecol Reprod Biol 2002; 104: 14–20
  • Sommerseth E. Gravides erfaringer med informasjonsrutinerne ved rutinemessige ultalydundersøkelser. (Prenatal ultrasound scan, women's experiences with the information routine.) (In Norwegian with English abstract). Tidsskr Nor Laegeforen 1993; 113: 1218–20
  • Gotzmann L, Schonholzer SM, Kolble N, Klaghofer R, Scheuer E, Huchj R, et al. Die Ultraschall-Untersuchung bei Verdacht auf fetale Entwicklungsstörungen: Zufriedenheit und Bewertungen aus Sicht der betroffenen Frauen. (Ultrasound examinations in the context of suspected fetal malformations: satisfaction of concerned women and their appraisals.) (In German with English abstract). Ultraschall Med 2002; 23: 27–32
  • Marteau TM, Slack J, Kidd J, Shaw RW. Presenting routine screening test in antenatal care: practice observed. Public Health 1992; 106: 131–41
  • Dormandy E, Michie S, Hooper R, Marteau TM. Low uptake of prenatal screening for Down syndrome in minority ethnic groups and socially deprived groups: a reflection of women's attitudes or a failure to facilitate informed choices. Int J Epidemiol 2005; 34: 346–52
  • Dormandy E, Hooper S, Michie S, Marteau TM. Informed choice to undergo prenatal screening: a comparison of two hospitals conducting testing either as part of a routine visit or requiring a separate visit. J Med Screen 2002; 9: 109–14
  • Van den Berg M, Timmermans D, Ten Kate LP, Van Vugt J, Van der Wal G. Are pregnant women making informed choices about prenatal screening?. Genet Med 2005; 7: 332–8
  • Thornton JG, Hewison J, Lilford RJ, Vail A. A randomised trial of three methods of giving information about prenatal testing. BMJ 1995; 311: 1127–30
  • Ononeze B, Gaffney G, Morrison JJ. Attitudes towards routine prenatal diagnostic investigations in obstetric practice in the republic of Ireland. Ir Med J 2003; 96: 135–7
  • Van den Berg M, Timmermans DR, Kleinveld JH, Garcia E, Van Vugt JM, Van der Wal G. Accepting or declining the offer of prenatal screening for congenital defects: test uptake and women's reasons. Prenat Diagn 2005; 25: 84–90
  • Dormandy E, Michie S, Weinman J, Marteau TM. Variation in uptake of serum screening: the role of service delivery. Prenat Diagn 2002; 22: 67–9
  • Michie S, Smith D, Marteau TM. Prenatal tests: How are women deciding?. Prenat diagn 1999; 19: 743–8
  • Grewal GK, Moss HJ, Aitken DA, Bjornsson S, Cameron AD, Pell JP. Factors affecting women's knowledge on antenatal serum screening. Scott Med J 1997; 42: 111–3
  • Browner CH, Preloran M, Press NA. The effects of ethnicity, education and an informational video on pregnant women's knowledge and decisions about a prenatal diagnostic screening test. Patient Educ Couns 1996; 27: 135–46
  • Smith DK, Shaw RW, Marteau TM. Informed consent to undergo serum screening for Down syndrome: the gap between policy and practice. BMJ 1994; 309: 776–80
  • Eurenius K, Axelsson O, Gällstedt-Fransson I, Sjöden PO. Perception of information, expectations and experiences among women and their partners attending a second-trimester routine ultrasound scan. Ultrasound Obstet Gynecol 1997; 9: 86–90
  • Gekas J, Gondry J, Severine M, Cesbron P, Thepot F. Informed consent to serum screening for Down syndrome: Are women given adequate information?. Prenat Diagn 1999; 19: 1–7
  • Gokhale LS, Cietak KA. Serum screening for anomalies in pregnancy: reasons for acceptance or refusal of the test. J Obstet Gynaecol 2002; 4: 392–3
  • Kohut RJ, Dewey D, Love EJ. Women's knowledge of prenatal ultrasound and informed choice. J Genet Couns 2002; 11: 265–76
  • Weinans MJ, Huijssoon AM, Tymstra T, Gerrits MC, Beekhuis JR, Mantingh A. How women deal with the results of serum screening for Down syndrome in the second trimester of pregnancy. Prenat Diagn 2000; 20: 705–8
  • Faden RR, Chwalow J, Orel-Crosby E, Holtzman NA, Chase GA, Leonard CO. What participants understand about a maternal serum alpha-fetoprotein screening program. Am J Public Health 1985; 75: 1381–4
  • Rostant K, Steed L, O'Leary P. Survey of the knowledge, attitudes and experience of Western Australian women in relation to prenatal screening and diagnostic procedures. Aust N Z J Obstet Gynaecol 2003; 43: 134–8
  • Kaiser AS, Ferris LE, Pastuszak AL, Llewellyn-Thomas H, Johnson J, Conacher S, et al. The effects of prenatal group genetic counselling on knowledge, anxiety and decisional conflict: issues for nuchal translucency screening. J Obstet Gynaecol 2002; 22: 246–55
  • Marteau TM, Saidi G, Goodburn S, Lawton J, Michie S, Bobrow M. Numbers or words? A randomized controlled trial of presenting screen negative results to pregnant women. Prenat Diagn 2000; 20: 714–8
  • Glazier R, Goel V, Holzapfel S, Summers A, Pugh P, Yeung M. Written patient information about Triple-marker screening: A randomised controlled trial. Obstet Gynecol 1997; 90: 769–74
  • Marteau TM, Johnston M, Pleinicar M, Shaw RW, Slack J. Development of a self-administered questionnaire to measure women's knowledge of prenatal screening and diagnostic tests. J Psychosom Res 1988; 32: 403–8
  • Michie S, Dormandy E, Marteau TM. Informed choice: understanding knowledge in the context of screening uptake. Patient Educ Couns 2003; 50: 247–53
  • Marteau TM, Johnston M, Shaw RW, Slack J. Factors influencing the uptake of screening for open neural-tube defects and amniocentesis to test for Down syndrome. Br J Obstet Gynaecol 1989; 96: 739–48
  • Seror V, Costet N, Ayme S. Prenatal screening for trisomy 21 with maternal serum markers: information for decision-making in pregnant women. (In French with English abstract). J Gynecol Obstet Biol Reprod (Paris) 2000; 5: 492–500
  • Sjögren B, Marsk L. Information on prenatal diagnosis at the antenatal clinic. Acta Obstet Gynecol Scand 1989; 68: 35–40
  • Jaques AM, Bell RJ, Watson L, Halliday JL. People who influence women's decisions and preferred sources of information about prenatal testing for birth defects. Aust NZ J Obstet Gynaecol 2004; 44: 233–8
  • Santalahti P, Hemminki E, Aro AR, Helenius H, Ryynänen M. Participation in prenatal screening tests and intensions concerning selective termination in Finnish maternity care. Fetal Diagn Ther 1999; 14: 71–9
  • Roelofsen EE, Kamerbeek LI, Tymstra TJ, Beekhuis JR, Mantingh A. Women's opinions on the offer and use of maternal serum screening. Prenat Diagn 1993; 13: 741–7
  • Marteau TM, Kidd J, Cook R, Michie S, Johnston M, Slack J, et al. Perceived risk not actual risk predicts uptake of amniocentesis. Br J Obstet Gynaecol 1991; 98: 282–6

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.