- Baumgardner, D. J., & Burtea, E. D. (1998). Quality-of-life in technology-dependent children receiving home care, and their families-a qualitative study. Wisconsin Medical Journal, 97(8), 51-55.
- Capen, C. L., & Dedlow, E. R. (1998). Discharging ventilator-dependent children: A continuing challenge. Journal of Pediatrie Nursing, 13(3), 175-184.
- Coffman, S., & Folden, S. L. (1992). Respite care for medically fragile children. Journal of Home Care Practice, 5(1),16-21.
- Commission on Behavioral, Social Sciences and Education. (1996). Paying attention to children in a changing health care environment. Washington, DC: National Academy Press.
- Grain, L. S., Mangravite, D. N., Allport, R., Schour, M., & Biakanja, K. (1990). Health care needs and services for technology-dependent children in developmental centers. Western Journal of Medicine, 752(4), 434-438.
- Fields, A. I, Coble, D. H., Pollack, M. M., & Kaufman, J. (1991). Outcome of home care for technology-dependent children: Success of an independent, community-based case management model. PEdiatrie Pulmonology, 77(4), 310-317.
- Fields, A. L, Rosenblatt, A., Pollack, M. M., & Kaufman, J. (1991). Home care costeffectiveness for respiratory technology-dependent children. American Journal of Disabled Children, 145, 729-733.
- Fredman, N., & Sherman, R. (Eds.). (1987). Handbook of measurements for marriage and family therapy. New York: Brunner/Mazel.
- Guette, Y., Hansen, N. B., Robinson, J. L., Kirkpatrick, K., & Grywalski, R. (1991a). Hospital-based case management for medically fragile infants: results of a randomized trial. Patient Education and Counseling, 77(1), 59-70.
- Guette, Y., Hansen, N. B., Robinson, J. L., Kirkpatrick, K., & Grywalski, R. (1991b). Hospital-based case management for medically fragile infants: program design. Patient Education and Counseling, 77(1), 49-58.
- Graves, C., & Hayes, V. (1996). Do nurses and parents of children with chronic conditions agree on parental need? Journal of Pediatrie Nursing, 77(5), 288-299.
- Hazlett, D. E. (1989). A study of pediatrie home ventilator management: Medical, psychosocial, and financial aspects. Journal of Pediatrie Nursing, 4(4), 284-294.
- Hernandez, N. E., & KoIb, S. (1998). Effects of relaxation on anxiety in primary caregivers of chronically ill children. Pediatrie Nursing, 24(1), 51-56.
- Kaufman, J., & Hardy-Ribakow, D. (1987). Home care: A model of a comprehensive approach for technology-assisted chronically ill children. Journal of Pediatrie Nursing, 2(4), 244-249.
- Lantos, J. D., & Kohrman, A. F. (1992). Ethical aspects of pediatrie home care. Pediatrics, 89(5), 920-924.
- Leonard, B. J., Brust, J. D., & Choi, T. (1989). Providing access to home care for disabled children: Minnesota's Medicaid model waiver program. Public Health Reports, 104(5), 465-472.
- Leonard, B. J., Brust, J. D., & Nelson, R. P. (1993). Parental distress: Caring for medically fragile children at home. Journal of Pediatrie Nursing, 8(1), 22-30.
- McCubbin, H. I., & Thompson, A. I. (Eds.). (1991). Family assessment inventories for research and practice. Madison, WI: University of Wisconsin, Madison.
- McCubbin, M. A., & McCubbin, H. I. (1993). Families coping with illness: The resiliency model of family stress, adjustment, and adaptation. In C. B. Danielson, B. Hamel-Bissel, & P. Winstead-Fry (Eds.), Families, health, & illness (pp. 21-63). St. Louis: Mosby.
- Moore, J. B., Saylor, C. F., & Boyce, G. C. (1998). Parent-child interaction and developmental outcomes in medically fragile, high-risk children. Children's Health Care, 27(2), 97-112.
- O'Conner, P., Plaats, S. V., Betz, C. L. (1992). Respite care services to caretakers of chronically ill children in California. Journal Pediatrie Nursing, 7, 269-275.
- Palfrey, J. S., Walker, D. K., Hayme, M., Singer, J. D., Porter, S., Bushey, B., & Cooperman, P. (1991). Technology's children: Report of a statewide census of children dependent on medical supports. Pediatrics, 87, 611-618.
- Patterson, J. M., Jernell, J., Leonard, B. J., & Titus, J. C. (1994). Caring for medically fragile children at home: The parent-professional relationship. Journal of Pediatrie Nursing, 9(2), 98-106.
- Patterson, J. M., Leonard, B. J., & Titus, J. C. (1992). Home care for medically fragile children: Impact on family health and well-being. Developmental and Behavioral Pediatrics, 13, 248-255.
- Richardson, M., Student, E., O'Boyle, D., Smyth, M., & Wheeler, T. W. (1992). Establishment of a state-supported, specialized home care program for children with complex health-care needs. Issues in Comprehensive Pediatrie Nursing, 75(2), 93-122.
- Scharer, K., & Dixon, D. (1989). Managing chronic illness: Parents with a ventilatordependent child. Journal of Pediatrie Nursing, 4(4), 236-247.
- Stein, R. E. K., & Jessop, D. J. (1984). Evaluation of a home care unit as an ambulatory ICU. Final report. (Grant No.: MCR360402). Washington, DC: U.S. Department of Health and Human Services, Division of Maternal and Child Health.
- Stein, R.E.K., & Reissman, C. K. (1980). The development of an impact-on-family scale preliminary finds. Medical Care, 18(4), 465-472.
- Surgeon General's Workshop on Children with Handicaps and Their Families. (1983). Report of the surgeon general's workshop on children with handicaps and their families: case example, the ventilator-dependent child. Presented by the U.S. Department of Health and Human Services, Division of Maternal and Child Health in conjunction with the Children's Hospital of Philadelphia, December 13-14, 1982. Washington, DC: U.S. Department of Health and Human Services.
- Wegener, D. H., & Aday, L. A. (1989). Home care for ventilator-assisted children: Predicting family stress. Pediatrie Nursing, 75(4), 371-376.
- Youngblut, J. M., Brennan, P. F., & Swegart, L. A. (1994). Families with medically fragile children: An exploratory study. Pediatrie Nursing, 20(5), 463-468.
Issues in Comprehensive Pediatric Nursing
Volume 25, 2002 - Issue 1